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To all those with chronic pain or illness...

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May you always have a hand to hold, may you always have a friend to listen, may God grant you gratitude in the midst of grief, blessing in the midst of suffering, and a chance to touch the life of someone else with hope to go forward! My prayers are with you tonight. Remember, YOU are BEAUTIFUL...whether you wear Gucci or a gown that ties in the back. Keep your joy and spread the love...

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Comments (153)

elizabethandraeWhat a beautiful heart you have! A life with chronic pain is one I never planned on; it's never something you think of. Some days, you get down because your mind goes to all the plans you had, where you thought you'd be at this point in life, and you can feel like a failure - I know I let Satan keep me in that mindset too often. I have had back pain, on and off, for around 15 years, and in 2020 was diagnosed with Tarlov Cyst Disease and then in April 2022 with hEDS (a connective tissue thing)

Jan 04Reply

elizabethandraeI know the pain of the back and nerve pain can something be so overwhelming and it's all I can think of. But I know like you said God won't waste our pain and suffering, and if it brings other closer to Him, it will have been worth it in the end. I will keep you in my prayers (one of my goals this year is to write down things to pray about so I don't forget). <3

Jan 04Reply

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krissy007@maggie_pie brought on a bit of tears 😘

May 30Reply

maggie_pie@krissy007 oh, thank you so much! Thank you for all the shares! You are a sweetheart!

May 30Reply

krissy007@maggie_pie 😘

May 30Reply

maggie_pie@hisgiggles Oh Debra, my prayers are with you... Health problems are some of the hardest things to deal with, aren't they? I've met a lot of amazing ppl here...a lot of support, and I hope you have many ppl around you to support you!! You deserve it! All my best to you tonight! :)

Jun 14Reply

scarlettstainedI have much pain I don't share.but know this...this life is short and temporal.squeeze every smile and joy you can and continue to be a light to others in darkness to show the way to strength in our Song.our future eternity will be painless no more teats.So let's make this life count all we can!!

Jun 14Reply

scarlettstainedNo more tears

Jun 14Reply

maggie_pie@ericka_c so sorry you have that burden to carry! Any time you need an ear or some prayers, just give me a heads up... We're in this together ;)

Jun 18Reply

marywm@maggie_pie God bless you Maggie!!

Jun 20Reply

joellienicoleHi Doll! So lovely to hear from you!! I actually had a lot of symptoms from the time I was born and then as a baby I did have a lot of atbx for pneumonia several times. My mom said there was a 2 year period where I was on an abx the entire 2 years. My GI symptoms didn't seem to get better or worse during or after that. However, when I was 13 I went on a mission trip to Africa and was heavily cautioned not to drink the water... Well, it was the only water we had so we all drank it. Everyone I was with got very ill but I did not and I came home and didnt have a single symptom for an entire year. I was healed! The following summer, I went on a mission trip to Romania and the same thing happened with the water, only this time I too got ill. I was there for an extended period of time and by the time I arrived home every last one of my symptoms were back and full force. I also experienced puberty that fall and when that happened my symptoms went from bad to worse. They finally gave me a diagnosis of Eosinophilic Gastroenteritis. Since then, none of the treatments have helped... I even tried drinking different waters from other places in the world to try to repeat what had happened in Africa- to no avail. Things got worse again 6 months prior to graduating nursing school- I almost bled to death 9 separate times. In the end of 2009 they discovered all of the thyroid issues and fibromyalgia and all of that. I was able to work until feb 2010 but have been bedridden since then. The reason I mention this is because the thyroid/fibro/chronic fatigue was after I had a very severe bout of strep throat and a ton of abx. I know this was super long but who knows, maybe we did have something similar. I should mention though that thyroid issues run in my family- my gma had thyroid CA, my mom and aunt have chronic thyroiditis and of course so do I. So to be fair I believe I had this issue for a long time before the strep incident, it was just dormant or not bad enough to be diagnosed. I do think the strep/ abx made it progress very very quickly. I've been through more trx for everything than I can count. Nothing really helps. The only thing I haven't tried that I'm about to is bio identical hormones. Sorry this was so long but perhaps something in there will sound familiar and you may have a suggestion... I'm desperate! :( Thanks so much for thinking about me! You are so sweet! I have been praying for you!! Hope you are having a fabulous week and at least having moments of relief and true rest!! Xox 💗

Jun 20Reply

maggie_pie@joellienicole thank you, Joelle, for responding, and being willing to share your story! I'm so very sorry that you have had to endure so much illness and suffering because of it. It's a really hard road to walk! I ask about the ATB thing, because several years back, I was exposed to TB at work...did the profylactic ATBs of INH for 1year. At the end of that year, you can imagine how much flora I had left...you guessed it, NONE. so when I adopted my 6month old son from Korea who came home with a raging colonization of virulent Candida, I came down with what I thought was a stomach flu that NEVER went away! It then turned into pancreatitis, leaky gut syndrome, multiple allergies that I never had before, chronic fatigue and pain, and my immune system finally shut down because it was overwhelmed by the allergies. I went for nearly 3 years without a diagnosis, developing bruising and nose bleeds like crazy, lost weight and got down to 83lbs, and could not hold down or digest any of my food (became allergic to all of it!). Finally, a friend sent me to Dr Frances Waickman, in Akron Oh. The man saved my life, literally. He didn't tell me til later, but had I contracted so much as a cold, I would have died, my immune system was that bad. The culprit? A virulent strain of Candida. He tried 4 antifungals before he found one that worked. Sporonox was the one that workd for me, along with desensitization to all my allergies. It was a 4 year recovery in all, but now I am completely clear! Not even hay fever any more :) not to mention, have gained more weight than I need! Dr Frances has since retired, but his son, Michael Waickman is still practicing, and he still follows me. That's my story... The pancreatitis was cleared up once the right antifungal was found, along with diet and Creon. So many drs thought I was crazy though! My son also developed the same symptoms as a baby after ATBs for an ear infection at 10 months old. They wrote in my chart that I was a Munchousan's!! Can you believe it?! My son acted autistic! Nose bleeds, skin rashes, fatigue, tearful... It was a mess, until we found dr Waickman! Well, I hope my story helps in some way. Wish you could see this dr. I just can't help but wonder if you have a nasty candida strain... Well, let me know what you think...blessings

Jun 20Reply

joellienicoleWow! I'm so sorry you've been through all of that too! It all does sound very very similar to what I have been through. I have actually been tested for candida several times, but nothing. They seem to think I have a really severe case of the EG. Part of the problem is that most people with EG are children and they seem to mostly recover around puberty. No one can figure out why the opposite happened for me. I see a new Dr on Monday, so maybe she will have some recommendations for me. I have seen every doctor in this area (and other areas) possible, including the Mayo Clinic- where they told me that there was nothing left for me. I am just trusting God that he will see me through! Thanks so very much for telling me your story, sometimes I don't have the best attitude about my life but you are a true example. Thank you for being YOU! Perhaps I may call Dr. W if this new dr doesn't help me! Thanks again so very much! I will be praying for you, everyday!!! *hugs* Joelle

Jun 20Reply

maggie_pie@joellienicole I would be very interested to hear how your visit at Mayo goes...will be praying for you!

Jun 21Reply

msmara18Oh I hear you/feel you!!!! They are STILL testing me! And every day I live with the pain :(

Jun 21Reply

maggie_pie@msmara18 hi Melanie, just wanted you to know that prayers are being lifted up for you today. May you experience relief and restoration today, and be visited by joy and friendship. Thinking about you.

Jun 21Reply

maggie_pie@joellienicole hi Joelle, lifting you up in prayer today... I hope it's a good day for you today! Blessings...

Jun 21Reply

msmara18Oh thank you. I've been in a lot of pain lately :( and on top of it all I just had a double root canal done yesterday!!

Jun 21Reply

maggie_pie@msmara18 Oh, I'm so sorry to hear that! Lots of rest, dear...and don't feel guilty for it! Be very kind to your body :). I too have been quite bad lately...must be something in the water, LOL! ;) I'll keep you in my prayers ...Bon courage!

Jun 21Reply

joellienicoleRight back at you, Doll!!! Thanks so very much!! Xoxo💋

Jun 21Reply

southernstyle88@maggie_pie Hi Maggie, I feel your pain as your on that table, been there too many times, so I send you many blessings also to ease your pain of whatever you might be going through. Whatever it is, if it involves pain, it's no fun. I pray for you right now that God relieve your pain & illness wherever it might be & that you might find some comfort tonight & rest easy. May God Bless you & yours hope you have a good weekend & I'm Sherry btw, Happy Posh'ing to you!

Jun 22Reply

akjajooI just went through back surgery a month ago. I remember seeing a big machine like that before they put me under. I was so terrified and couldn't stop crying. My mom was here for the procedure, thank god because my husband was a nervous wreck. They told them I would be in recovery for an hour then be in my room. I was in recovery for 2.5 hours because I was not breathing right while on oxygen and I kept holding my my breath because of the pain I felt from the incision. I had two huge bulging discs pushing on nerves and my whole left leg was numb. Now it is just one part of the L5 area nerve that is giving me issues. They are actually trying to send me back to work part time light duty the 2nd week of July, it should be interesting considering my job is an officer at a prison. I know these past two months have not been great for me and I still have 3 more months to recover from what they say. Well I hope in time you will be healed and pain free completely, back pain is not fun at all. 💐

Jun 24Reply

maggie_pie@sherry8888 thank you so much Sherry! Blessings on you tonight!

Jun 25Reply

maggie_pie@akjajoo hello Amanda, thank you so much for your message... I'm so sorry for all that you've been through, and that you are still having some problems! My advice to you is to take the time you need to heal, and not allow anyone to push you into working too soon. I had surgery 3 yrs ago, and did great! Then herniated my disc again, and was right back to square one! Then, the surgeon wouldn't touch me after that...since then, I've been passed from dr to dr, no one willing to operate, and my body deteriorates more and more. I now need a wheelchair, have several herniated discs in my neck from the strain of using a cane so heavily, have problems with elimination and trouble swallowing. I only tell you this so that you will be very careful with your back, and your recovery. Work is just not worth it! No amount of money is! I hope all the best for you! You will be in my prayers...taking care of yourself is always the right thing to do...for you and for those who love you ;) may you soon be pain free!

Jun 25Reply

maggie_pie@joellienicole Hey Joelle, just wondering how things went at the Mayo Clinic today...was thinking of you and praying...

Jun 25Reply

akjajoo@maggie_pie thank you for your advice I appreciate it. My doctor said that 1 in 25 after surgery will hurt themselves again. I feel work is being pushed since it is workman's comp but I'm not sure. I rest as much as I can, I have been a stomach sleeper since I was a baby so it's hard for me to sleep through the night on my left side or back, right side is ever so often okay. Sorry to hear how things have went for you but at least family is their to help us through things like this, some are not so fortunate.

Jun 25Reply

joellienicole@maggie_pie Thanks so very much for thinking of me!! You are so thoughtful and sweet! I actually went to the Mayo clinic a few years ago (they had no recommendations for me). I was just seeing a new surgeon today about my esophagus. He definitely wants to do surgery but he also thinks I may have an adrenal tumor and wants me to get it checked out. So for right now I feel like I'm at a standstill and just super frustrated. Thanks so very much for thinking of me, you are such a darling and it brought a smile to my sad face today! I am blessed by you, friend! X💋x

Jun 25Reply

southernstyle88@maggie_pie Ms.Maggie Pie, I'm sending so so many Blessings your way tonight & to all the many Posher friends above that is in pain or hurting in one way or another. I know I read every one of the stories above & my heart was melting for every single one. 🙏 I pray for each one of you tonight my posher friends.

Jun 25Reply

maggie_pie@sherry8888 ((((((Sherry)))))) such a good, kind lady, you are! Thank you!

Jun 25Reply

maggie_pie@joellienicole I'm sorry to hear that there's ONE MORE thing on your list to check out/ get seen for. I can feel you there with the super frustrated thing. Sometimes it feels like we are chasing our tails, doesn't it? There's just so much limitation in the practice of medicine....so many specialties, they rarely communicate to all get on the same page... It IS frustrating! Just know that none of this is in vain. I believe God is not only good, very good, but He is also frugal (Scottish like me, LOL!!)....he won't let any ounce of suffering go to waste, but will use it for His, for our, and for others' glory and ministry. You ARE doing the mission work you had longed to, in a very powerful way. Me too, even tho I don't like this pain. Lol, my 15 year old son came to me today after pitching a fit over how "unfair" I am to make him tow the line... THANKED me for helping him build good character! Now if that's not a testimony to the impact we are making, I don't know what is, Joelle... He sees it, solely because he sees how very hard it is for me to just "do life" with the every day stuff. Take heart, you are pure gold, my friend!! I will keep you on my daily prayer list...

Jun 25Reply

maggie_pie@akjajoo Amanda, I think you are spot on with the workers comp thing. That is a big challenge, they rarely have a worker's best interest at heart. If you are able...don't let them bully you. They will not take care of you if you become disabled like me, you know? I really don't want you to go through that. PT is soooo helpful too, in preventing scar tissue forming. Don't ever stop doing your exercises... It will help keep from having that scar tissue form at the 6month-1year period after surgery. There's a supplement that helps prevent that as well... You may find it helpful. It's called MSM. You would have to take 4 grams (4000 mg) a day for it to have an effect, but its been proven to prohibit the formation of scar tissue (which causes most of the cases of failed back surgery cases). Just something to consider. Well, hold your head up, Amanda! You are going to feel better! It takes about a year for all that bone pain to totally subside after sx, but you will be feeling so much better if you just treat your back very carefully :) you r in my prayers...

Jun 25Reply

joellienicole@maggie_pie Maggie, It is really so very nice to feel understood. Sometimes I feel like no one gets it. ...and how can they when they've never experienced such pain? It can be a lonely existence and I am SO grateful that you reached out with this post on here. It is obvious how many people you have touched just on Poshmark, Im sure it doesnt even compare to all the others in your life. I hope my life will impact as many people as you have and that regardless of whether or not I ever make it to another foreign country, orphanage, or work as a nurse again, my existence and suffering will have changed the life of even just one. I have a true friend in you, I am so grateful to get to chat with a true gem and Godly woman like you. I know God has a plan and a purpose for my life (and I know it must be great because of how hard the devil is trying to take me down)!!! 😊 Thank you again for thinking of me and praying for me. I too have been praying for you and will continue to everyday. I know God's healing is on the way for both of us! YOU are my best find on Poshmark! 😉 Much love, Darling and please keep me posted on how you are doing or if there is anything specific I can pray for you about? x💋 Joelle

Jun 25Reply

maggie_pie@joellienicole I feel the same way about you, my friend! You are so right...how can anyone understand such pain unless they have lived it, and lived it for some time. You are right too, about God's plan for you...and the devil's determination to stop you. You must be a person of great love and compassion. There is nothing the evil one is more afraid of than pure love, unconditional love. Thank you so very much for your prayers. I do cherish them! Would you pray for God to reveal to my neurologist, and his surgeon friend, just exactly what's going on in my spine? I see the neurologist on July 2. The next test I must do, the only one left to do, I believe, is a CT myelogram. I think I must do it for them to see how impinged my spinal cord is...but I'm so afraid of doing it. The spinal tap alone was agony, and took a 2 week recovery for me :( please pray for this grueling test ahead of me. Also, my financial situation. It's quite bad...and I've mounds of paperwork and phone calls to do to apply for aid from each hospital I have racked up bills with. I'm sure you know how that is. In the mean time, I'm only able to walk about half the time...my legs and feet refuse to obey me or even hold me up sometimes. It's so frightening to watch my body failing right before my very eyes. My lovely Douglas stays faithfully by my side, but its a heavy burden for him, more than he lets on, I know. I will pray over these issues for you as well! I hope that ppl can see Jesus in me through all I say and do. My hope is that ppl will see, and come to Him because of what they see. I need God's help to handle this with grace rather than become impatient. Please pray I do so. Thank you so very much, Joelle! It has meant so much to me to talk with you, you are such an encouragement! Praise God for you!

Jun 25Reply

joellienicoleHello friend! I'm sorry it has taken me so long to respond. I too know what it looks like to see my body fail before my very eyes. I am praying for you and trusting God to heal you- and in the mean time to give you moments of PEACE. I'm so sorry you are going through all of this. I am praying for your doctors and that they have the wisdom they need to aid in your healing, and that just like a few years ago, they would be the answer to our prayers!!! I know finances are so difficult in this situation, I am so grateful that my parents are able to help me in that area and to care for me. However, I know it is a massive burden for them...even though they'd never say so. I am so happy that you have found a man to love you and stick with you! I hope that will be the case for me soon...although I pray I am well by then. I will continue to intercede on your behalf! Thanks for the encouraging words, as always!! I will be checking in on you but if anything pops up in the mean time, let me know! Much love dear friend! 💗

Jun 26Reply

joellienicole@maggie_pie Hello friend! I know you said you had an important appointment today (Tuesday July 2, I know I'm a few minutes behind!) Just wanted to tell you I've been thinking about you and praying for you. Did your appointment go well? I hope you feel as though you made some progress or got some positive news! Let me know if there is anything specific I can pray about. Much Love. X💋x💋

Jul 03Reply

maggie_pie@joellienicole Oh, what a sweetheart you are! I did see my neurologist today. And it seems like I'm banging my head to a brick wall for how closed he is. Even after my neck having 3 more herniations than before, and no evidence of any other pathology, he still insists my problems are not caused by my spine! It's as if something is blinding all of them to the obvious. I can even feel where the pain is coming from. He did, though, want me to be tested with a urologist. The one I had seen before is an expert in neurogenic bladder, and said in no uncertain terms that my spine was the problem. He wants me to go back to him for testing, as well to see another neurologist who supposedly has time to scour the research. I just feel as if I am running out of time. The pain and spasticity from my waist down is so intolerable, and the weakness grows worse day by day. I truly believe I need surgery on those herniated discs, now 7 in all. Please pray for a miracle before I become paralyzed. I know God is still a good God, but He seems silent, and I just don't understand. Thank you so much for thinking of me! You don't know what it means to me! God bless you, Joelle! Please tell me how you are...

Jul 03Reply

smadamsWow! I just started PM a few weeks ago to try to sell things to pay for my never ending medical bills, but I can see I'm gaining more than money-- so much support out here! So encouraged to not feel alone. Diagnosed with late stage Lyme disease 3yrs ago, but I've been sick/misdiagnosed for 12yrs. Pain, all the time, but PM is a nice little distraction :) thanks to all of you ladies for sharing your stories and words of encouragement 💚

Jul 03Reply

joellienicole@maggie_pie Oh Darling!! I am sooo sad to hear this and sooo sorry you are going through this. I was hoping and praying it was positive. I have to tell you though, i got chills while reading this and even a bit tear-y eyed because it stuns me how similar our experiences are. I too, feel as if God has been unbelievably silent. I feel like doctors don't listen to me and they just punt me around from specialist to specialist and none of them are willing to try to put ALL of the pieces together. It's so hard. I come home from appointments and cry to my mom, its so frustrating and sad to feel like I have to fight with the people I am going to for help to get anywhere. It makes me want to get back in bed and pull the covers over my head!! All of that to say, I get it and its the hardest thing I've been through and I am so sorry you're going through it too. With that being said... I know our God is faithful and His timing is perfect. I definitely dont understand it sometimes but I know that His ways are better than mine. As you know, I've been on many mission trips and have seen God perform miracles with my own eyes. Most notably, a woman in Thailand who during the Tsunami was hit in the face with debris and lost her eye sight. On the same day, she lost her home, all of her belongings, and EIGHT of her family members. Just as Jesus said (Mark 16:18) "You shall lay hands on the sick, and they WILL be healed!" ...I heard Him speak that to me at the beginning of my trip and, it came to pass! I laid hands on that lady and she was-IS- healed. Sister, I am believing God for YOUR miracle!!! I will continue to pray for you. *Hugs* Joelle

Jul 03Reply

joellienicole@maggie_pie One last thing... This quote came to mind- " When we long for a life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure." -Peter Marshall You are already as strong as an oak, and as beautiful as a diamond! 💎💗💗💗 Much love my dear friend! 💗

Jul 03Reply

maggie_pie@smadams hello Samantha, thank you so much for your kind comments! So very good to meet you! Very glad for your support as well. I'm also fairly new here, have been on PM only a few months at the most... But I was also surprised by how many of us here are suffering with chronic pain or illness of some kind. PM is such a great community, because of the ppl who are part of it! You must of course be on guard against the few bad apples out there (scammers and the like), but for the most part, everyone is very supportive and kind! I'm so sorry to hear about your illness! And that it took so long to get a diagnosis. I am beginning to think our medical community needs a bit of a shake up, where standards of practice are raised so that less ppl fall through the cracks! I'll keep you in my prayers, if that's ok, and please know you have an ear here any time you need it ;) blessings....

Jul 03Reply

smadams@maggie_pie Thank you again! Prayers are welcomed with enthusiasm! I'll be sending some up fir you too :) And yes, the medical community needs a pretty big shake I'd say.

Jul 03Reply

maggie_pie@weedy_wendy thank you so much for your support!

Jul 16Reply

andrea_27sI love this part of posh. Somehow we all find one another to find loving and understanding hearts. It doesn't seem fair but it is what it is. We still have to wake up and greet each day no matter how hard that may be. I'm 32 Nd have had my own painful health issues for four years now. I really should start back on drs visits but it just seems like a waist of time. I hope and pray all the very best :) <3

Jul 31Reply

maggie_pie@andrea_27s thank you so much!! I'm so sorry you are suffering with your health as well... You are right, so many of us are suffering and not well. I hope all the best for you in your recovery! Much love...

Jul 31Reply

sassyhill1224Such beautiful words from a strong and beautiful woman. True example for your children and many other women.

Aug 07Reply

maggie_pie@sjs27 thank you so much for your likes!

Aug 07Reply

southernstyle88@maggie_pie Debra, don't stop until you find a Dr that will do something for you. I had my C5-6 bulging until I couldn't move my neck without it hurting, couldn't dare turn it enough to drive to get to work. So my Family Dr sent me to a neck surgeon, he sent me for the MRI's, then sent me for the CT myelogram, I think that's what it's called, it's where they either put it in my vein or I had to drink it & they tump me almost upside down, you talking banging pain in your neck-Holy 🐮 it hurt! I'd rather have a tooth just yanked out that have to go thru that ever again! Most painful test there is! I remember, they inject it in your back, cause I had to go lay flat for the next 24 hours so I didn't get a headache. I ended up having the surgery a fusion on my C5-C6, now my C4-C4 is bulging my I forgot the letter but its the middle of my back right where my bra would buckle, I have 2 bulging there & I have degenerative disc disease on my bottom disc. I can't sit in the same position for more than an hour at the most. It kills me to stand longer than a few minutes. My life has totally been turned upside down. I have fibromyalgia & fibromyitis, I can't work, I barely drive, at most across the street & that's only if I have to. I hear crack & crick in my neck just turning it back & forth a little. So my point is please don't settle for nothing. You're entitled to a 2nd opinion. I was told by my Female Dr. That all this was happening because I don't have any collagen left in my body, so I already had a blow out in my knee-surgery, had to have the bladder sling mesh(wished I'd never had it done!!!!!!!! If I could go back & take it out I would. It's terrible. But I had more issues with mine. Another story another time. 😟 Get a 2nd opinion. Sherry hope my story & believe it or not, this is the short version (hope it helped you some) Sherry

Aug 09Reply

maggie_pie@sherry8888 hi Sherry, thank you so much for sharing your story, and for your kind support to Debra and the rest of us. I am so sorry for all you are going through. I feel like I can relate on many levels. I too am suffering severely, and it seems none of the medical community at least as of yet, cares...or at least that's how it feels much of the time. I'm sure they do care, some of them really do, but are not able to fix it. This has been an incredible journey in so many ways, both good and bad. I will keep you in my prayers, Sherry! Keep your head held high, and don't let anyone tell you it's not real. You are an overcomer! You definitely have a friend here :) blessings....

Aug 09Reply

southernstyle88@maggie_pie Maggie, I was talking to you & had another Posher on my mind when I started typing. I do apologize for that. I thought I typed Maggie, but my message was to you. So sorry.

Aug 09Reply

maggie_pie@sherry8888 oh, thank you Sherry! You're so sweet. Such good timing too... I just had an upsetting discussion about the whole doctor thing with my sweetheart. Not upsetting because of him, but just the attitude of the doctors so often. I, as a patient, have no credibility. Which is hard for me to deal with after being a well respected ICU charge RN for many years. Surgeons used to even ask my advice because they thought that highly of my skills and judgement. Now, if I even suggest doing a certain test, or looking into a path of thinking, I'm considered a difficult patient. Or if I don't respond to a treatment, I'm considered difficult, or worse...noncompliant! So I feel like giving up... Like I'm banging my head on that same brick wall over and over :(. I used to love the healthcare field... I was committed to healing patients and their families. Now I feel disillusioned. Thank you so much for your kind support! You don't know what it means to me!

Aug 09Reply

shellysitemsMy name is Shelly and they want to do surgery on my neck c4 c5 or maybe c5 c6 but I think I can live with the pain. Im 50 year old and over weight in good health but still scared I hear all the story's and think I'm so luck that I just have to worry about my neck. So sorry! my heart and prays go out to all of you my husband for about 5 year now burning in the bowels hard lumps some times and been to more than 4 dr been to more emergency room and he is tried to go to dr Thank you all for share my prays are will you all

Aug 09Reply

mommycSure did bring a bit of tears..u seem like a wonderful person

Aug 17Reply

dbarn@maggie_pie I read your post and I too along with my mother live with chronic pain to the point it disrupts our life especially mine because I have two older teenage boys that have Had to put a lot of things by the wayside. And I feel like ive cheated them out of a lot of things they would have liked to do as a family.. But 6 years or so ago I had to have my SI joint fused to my hip joint because the SI would not stay in places. As a result of that surgery I had to have another hip surgery and a back surgery all in less than a years time, I won't go into everything cause it is a Moby Dick story. But the bottom line is so many times I felt so lonely like I was the only one whose children were missing out cause their mom couldn't do this or that which the other moms were doing. I was prob too hard on my self but when it's ur children not participating its hard even when they seem to be ok with it. I don't know what your prognosis is, But I hope1 and believe that you will be healed completely in Jesus' name. If you ever need to talk or want to talk my email is denisetbarnette@gmail.com and my phone is 797-346-3912. I'm usually easier to catch by email. Keep your chin up even if you have to put your thumb under it!!!!!!

Aug 24Reply

maggie_pie@dbarn Oh Denise, you are so kind! Thank you for your support! I am SURE you are an amazing mum!! But I know exactly what you mean....and feel it quite acutely. I try to trust that God knows what He's doing, and can fill in the gaps that I can't fill. But there is a lot of guilt...sometimes shame too. Thank you... I will try and email you. I so appreciate your openness and your kindness! God bless you for it!

Aug 24Reply

lilmscrys💜💜💜

Aug 26Reply

maggie_pie@bryson_3 thank you so much for all the likes! And for browsing through my closet! Always good to meet kind ppl!! :)

Aug 28Reply

bryson_3@maggie_pie My pleasure as well God Bless you.

Aug 28Reply

sterlinglife3😘Your Such a Love !!! Thank you...

Sep 03Reply

neon_resaleYou are a strong loving woman!

Sep 06Reply

maggie_pie@sweetpeaphilips thank you so much for the like, and for stopping by my closet! Many blessings...

Sep 08Reply

amycrawford💗❤❤thanks for this💗❤💗. Been dealing with a rare autoimmune disease for the last two years, so scary sometimes. I'm selling my clothes because I lost so much weight from it that I don't even fit into adult clothing anymore!

Sep 09Reply

maggie_pie@amycrawford oh Amy! I am so sooo sorry you have been going through such a hard time with your health! Is there anything I can do to help you? Have you been given a diagnosis? Sometimes that is the hardest part...getting accurately diagnosed. Are you able to take in enough nutrition? Please let me know if there is any way I might be able to help you... I'm a critical care RN, and do have some connections if you need to find a specialist. But I feel your struggle, I so hope you will be completely restored very soon! You are in my prayers. So very glad to have met you! Please stay in touch, and let me know how you are doing...

Sep 09Reply

amycrawfordThanks so much!! Yah, I do have a Dx, thank god...it's a rare disorder where I am basically allergic to my own hormones - both estrogen and progesterone...it took a long time to figure it out, though! What a nightmare! Thankfully I am managing it now and have an amazing team of doctors from an amaaaaing hospital...slowly starting to gain weight back now, I am juuuust starting to fit I to xxs! Lol, it's amazing the little things that can get me so excited.

Sep 09Reply

maggie_pie@amycrawford omg! That's such an amazing story! Praise God that you are on the mend!! It's so hard to find really good doctors, and even when they are brilliant, it's sometimes so hard to figure out! I hope you gain every bit of your healthy weight back! Enjoy those milkshakes!! LOL!! Yeah... I was quite sick about 15 years ago with a weird infection...got down to 83 lbs and my immune system shut down. I came so close to not making it. Thankfully, through a miracle, I was led to a dr who correctly diagnosed and treated me. He totally saved my life! Hang in there, Amy! You have people ruiting for you! What a brave lady you are! And you still have your sense of humor too! :) you're just too cool!

Sep 09Reply

amycrawfordThat is so crazy! I really understand what you went through...I went down to about 84...it was literally painful to walk up a flight of stairs, and same thing with the immune system just shutting down - it was like every tiny virus or infection that blew in on a light breeze made me crazy sick. I seriously thank God every day for my doctors, who decided to test me for this super rare disorder, even though it seemed like such a long shot. I really don't know how much more I had left in me by the time we figured out what was happening and why! Seriously divine intervention. Anyway, thanks for the love!!!

Sep 09Reply

lauraellingtonAmen and Amen

Sep 11Reply

jojobobolagoThis brought me to tears as I just returned from the pharmacy to pick up those meds that do nothing more than take a little bit of the edge off. If only there was an answer. 💜✌

Sep 11Reply

maggie_pie@jojobobolago I'm so sorry you are in such circumstances! Thank you for your comment... I think we need each other's support...there's just so much that doctors just don't know,even when they are doing their best. And not all care to do their best. I hope you have doctors who care, and a family who understands. It's so good to meet you!

Sep 11Reply

jojobobolagoNice to meet you too Maggie! 😘 I have a great support system. But on,y those who go through it truly understand it!💜✌

Sep 11Reply

ludazaiterYour words are so wise we take life for granted and should be thankful every moment for all we have and never complain for everything we want. I wish I had the power to heal🙏😞

Sep 13Reply

marywm@maggie_pie Thanks Maggie God Bless you too💖💖

Sep 23Reply

maggie_pie@s1ppi thank you so much for the like, and your support! Blessings...

Sep 30Reply

maggie_pie@lemonwacki Thank you so much for the likes and shares...I do value deeply all the support from this lovely community of courageous women. So many of us have struggles, and I see so much courage and kindness being given here! So very good to meet you! :)

Oct 01Reply

tutuohtooSo nice to meet you also, Love! I too deal with chronic pain issues from too many years as an ER nurse. Surgeries to both hips, one shoulder and left foot. Then a car accident caused the need for injections at least four times a year. Chronic pain is not fun at any level and I empathize with anyone who has to live with this. Prayers to you sweet one <3

Oct 01Reply

maggie_pie@lemonwacki omg...I am so sorry for the pain that you endure...all that you have been through. Sometimes it feels like a slippery slope...like once it gets started, there's this tipping point where one thing cascades into the next problem and so on and so on. It definitely happened with me...started with an adenomyosis in my uterus, undiagnosed, which got missed for over 20 years, that pulled enough on the spine to herniate that disc...and then some more mistakes were made, and then all the discs in my neck went. Now I'm up 25 lbs, blood pressure is up, not able to exercise even in the pool...I just pray something else doesn't go too. I can't imagine what you have to deal with! I feel like mine is more than I can bear most of the time. I wouldn't wish this pain on my worst enemy. I have found, though, that there are some books out there that are very helpful for me to keep my perspective. And keeping a gratitude journal daily also really helps my mood and outlook! Praying with Doug when we pray regularly. And I have to have my Christian music...especially when the pain is at it's worst, or my emotions really take me for a ride. I really haven't yet figured out how to cope with my 15 year old son's teenage mouth and attitude ...he has obsessive compulsive personality disorder too. It's just such a bear to deal with...even with the medication. That added to all the rest, and financial pressures...well, you know what I mean. You will be in my prayers, and if there's ever anything specific you would like someone to prey for, please don't hesitate to ask! It's one thing that I CAN do :). And you can always email me if that would be more comfortable. molly_patel@msn.com. So very good to hear your story! Thank you for sharing it with me. I hope you have a really really good day today!!

Oct 01Reply

tutuohtoo🍃🌷Thank you for sharing your story with me. You have been through more than most people will endure in a thousand lifetimes. Please know that I will pray for you. We may not always understand why we go through things such as this but our Heavenly Father has a plan for us that was made before we were born. You are touching many with your life and positive attitude and this may be part of God's plan for you. Matthew 19: 14...this helps me. God Bless You😘

Oct 01Reply

cingads@kdiandraaa 👆👆🙏

Oct 04Reply

maggie_pie@katralvin thank you so much for your like, and your support! Always here to lend an ear, and honor your story of strength...blessings!

Oct 04Reply

katralvin@maggie_pie You are welcome. I understand what you are going through. My hubby had 2 back surgeries and he has M.S. He did 26 years in the Army and now can't walk without help. It is a struggle every day but we have our faith, family and I have Posh. 😊

Oct 04Reply

maggie_pie@katralvin oh Katrina, your husband has paid a heavy price for his wonderful service! Please give him my deepest thanks! Our servicemen are amazing courageous men who must be held in the highest regard.... I'm so sorry for the suffering you and he go through! I pray that you have resources to help, and loved ones around you to support you. It's a hard road to walk... I have a very good friend with MS, and I know it is very individual as to how it affects each person, but I see him at about the same disability as I am now...and he was doing so well only a few years ago. It is hard. We talk all the time, and share stories with each other...some so funny, and some just heartbreaking. Your husband is blessed to have you by his side! You are a lovely woman...I can tell by your closet and your photos! Thank you so much for visiting! I'm so glad to know you... God bless! Give that man a hug ;)

Oct 04Reply

katralvin@maggie_pie Thank you. We just take it one day at a time. I will give him a hug for you. 😊

Oct 04Reply

maggie_pie@cocoamy thank you so much for your like! So glad to know you...would be honored to hear your story if you would like to share it. No obligation at all...very grateful for all the support for each other here on posh! Have a lovely night!! :)

Oct 08Reply

cocoamy@maggie_pie I have stage 4 Intersitial cystitis (IC) which feels like you have the worse bladder infection but it never goes away. i can only hold 1 ounce of fluid so I'm in the bathroom up to 80X a day so I pretty much cant leave the house for too long, also endometriosis, fibromyalgia, an auto immune disorder where the cells from the inside of my organs are growing all over my organs and causing chronic wide spread inflammation, chronic food allergies, airborne allergies. I have had my large intestines removed, uterus, ovary, piece of small intestine, I cannot digest food properly and I am buying time until my bladder is to be removed. I am constantly removing body parts that get too much over growth on them. The Dr's have no answers other than i am very sick and they cant figure out the exact cause. in 2010 i was rushed to the emergency room bleeding internally from my butt and had to have a blood transfusion. The cells growing on the outside of my organs were attacking my intestines and causing bleeding. And to top it all off I also have 4 bulging disc in my back and a bone spur. I live on pain medicine, pain pumps and I inject lidocaine via catheter into my bladder every day. My children love me but resent the heck out of me b/c they were so young when this happened it has hurt their life. And now the very dog my husband bought to give a friend is going blind and needs surgery. I don't mean to seem negative. I m actually a pretty positive person but when I have too many bad days in a row that don't get controlled with my meds I tend to vent a little. I'm just having some " why me days", but I will get over it. I really hope you have good days. Chronic invisible pain can be the hardest to deal with. I lost my best friend of 28 years b/c she could no longer see me thru my disease. She moved on to other friends that were healthy and it tore me apart. But enough about me what is your situation? B/c I am very interested in hearing others medical issues and helping any where I can.

Oct 08Reply

maggie_pie@cocoamy Amy, I'm so very sad to hear about your ongoing and very perplexing, very distressing illness... It is so hard when no one has answers. Answers about causes or about cures. I understand when you say your children resent your health problems. My children also have resentments about my chronic pain, all the things I can't do with them, or for them, or afford because $ is so tight. It has been a hard path to have them walk...and hard conversations with them about their and my disappointments. But at the end of the day...what really turns out to be important is do I show them I love them. My bad days...not always so well....sometimes I take advantage of being bedridden though....and catch my daughter's fav show with her on Netflix on my laptop here...cuddling up together. She loved to rub my shoulders ....or lay hands on me and pray for me. And my son...my teenage son will hang out on the bed with me and the dog...and that's when we have those heart to hearts that he doesn't talk about anywhere else. Those are the kind of things that they remember. Maybe not right now, but in the future...they remember that we listened, that we cared. I have a spine problem. Cervical herniations (all the cervical discs), and one in the lumbar spine. I have constant pain, weakness in my legs, numb areas, hyper reflexes below my waist, urinary and bowel retention, and problems swallowing and choking. The pain is quite severe. I am in a wheelchair a lot now...thank God though, there are times when I can walk. It is definitely isolating and lonely, even with loved ones nearby. No one can really relate to what my existence is. But still, I am so very blessed. I met my sweetheart through this back problem...because his brothers are orthopedic surgeons. He is such a good man! I pray that your pain is eased tonight! And that your day is filled with sunshine and big joys! I will be praying for you...god bless you tonight. I will try to write more, but I have to wait til the pain is a bit less....until then, hugs!! :)

Oct 08Reply

cocoamy@maggie_pie I agree 100% with what you said. That is exactly how I try to live. On my good days I try to live big and my bad ones I try to create a soft place in bed for us all to land and watch TV and great movies together. It's hard for kids to understand especially teenagers with their teenage brain. My biggest problem is my lack of a support system which is why sites like this are great. A place to go and enjoy others and feel normal (virtually) thru fashion. I think about others who have walked in our shoes before there were computers or social sites and it helps me see how lucky Iam to at least have this. I've learned we can't be to hard on ourselves. Most of us are just doing the best we can. I hope you too have some pain fee days and your in my prayers and thank god for the wonderful man in your life b/c they are priceless.

Oct 08Reply

maggie_pie@cocoamy that is a beautiful way of expressing it! A soft place to land! I totally agree with you about the teenage brain, LOL!! It's hard to say with my son what is OCPD, and what is a rediculously flaky teenage mind! LOL! I'm so thankful for this site, too! And for the phone to reach out to ppl Please take good care today! Hugs....

Oct 08Reply

cocoamy@maggie_pie thank you for your kind words and if you ever need to vent you can come talk to me. We all need a place to go when it's hard to cope and we need a re-boot. I am willing to help you re-boot anytime.

Oct 08Reply

funknee3God bless! Wishing you healing and happiness. 😘

Oct 10Reply

buffalosweetieWhat a wonderful post and tears just reading the commonality we all share. Thank you for uniting people and inspiring compassion

Oct 21Reply

maggie_pie@ooofah1 thank you so very much for the like and shares! God bless you! ;)

Oct 21Reply

sdshopperAmen! And to those with ailments no one can see as well! Blessings💓

Oct 24Reply

rusticgaldecorThank you for your kind words. You are in my prayers.

Feb 03Reply

maggie_pie@tammymccollum Dear Tammy! I am so sad to hear about your ordeal! I think there are many similarities in our situations...and I cringe to think of anyone else having to go through this kind of pain and disability. Funny too...how ppl will just not see it, the severe pain, or worse, they see it and presume it's psychiatric, or that "no one could ever be in THAT much pain all the time". Oh yes, one CAN! LOL! ppl who haven't lived it just don't get it... And those who want to be supportive just don't know how. We have to show them, and be patient with them. Please feel free to email me any time... molly_patel@msn.com ...or if you're interested in chatting on the phone, I'd be honored to hear more of your story. I could email you my phone no. Please know that you are not alone...and that you WILL get through this! There will be beauty in the journey that you might otherwise never see. Try to keep looking for the beauty, the goodness, and the every day mercies! I hope to talk with you more...so VERY good to meet you, Tammy!!

Mar 30Reply

missrochellesI'm hoping you're feeling ok this week. I'm not doing so well but I NEED to list items to sell! 😳😝 I'm sure you know how that feels. You're always in my prayers😘😘😘 I'm so happy we found each other😻😻💝💝

Apr 02Reply

maggie_pie@missrochelles I'm sad to hear that your having a hard week... I DO know what you mean!! LOL! I feel like such a sorry case sometimes for all the stuff I need to do that has yet to be done while I am flat on my back in bed...it's been up and down for me...got out and took a walk the other day...started out feeling much better than usual, but not even around the block had walked too far, and since then have been quite bad indeed. Saying prayers for you, my good friend. Stay strong, and know God is with you. So very good to talk!!

Apr 02Reply

4ksloveu@maggie_pie By the stripes of Jesus you are healed!!

Apr 02Reply

maggie_pie@4ksloveu thank you so much Kyra! I appreciate your prayers and encouragement!

Apr 02Reply

abstractdreamsBeautifully said.

Apr 15Reply

maggie_pie@linmp1031 Thank you so much!!! Thank you for your generous shares and likes, and all your sweet words! :) you seem like such a sweetheart! I love your sense of humor! :)

Apr 15Reply

abstractdreamsMy pleasure hon! We need to support each other, especially those of us carrying any kind of burden...which is probably most of us in one way or another!💋 May I ask what's going on in the top pic? It just breaks my heart.

Apr 15Reply

maggie_pie@linmp1031 this is fluoroscopy, used for spinal injections, myelograms and the like. It's truly miserable to go thru with some of these docs because they are so barbaric! I never could understand why someone would go into pain medicine if they have hardly any compassion for the pain ppl are living in. Most of them just don't believe it's real, or possible for a patient to be in severe pain all the time, or have severe pain with a minor insult or procedure. I think because they have no personal concept of it...

Apr 16Reply

abstractdreamsI have always felt better about a doctor if they could say "Wow! That's some scar you have, I thought mine was..." doesn't matter how that sentence ends. If they have a big scar, that makes all the difference. They've had surgery, so they've been in pain before/after!! I think many go into medicine for money, not the right reason!

Apr 16Reply

ringleader@joellienicole @maggie_pie Wondering if you've come across the research of some on using cinnamon leaf essential oil which is considered antiviral, antibacterial, antifungal... After my long term antibiotic treatment for Lyme, a bacterial infection, I followed it with cinnamon essential oil for two months. It's helped so much. Along with that I've detoured to using Ningixa Red which has grapefruit seed extract and citrus essential oils - all of which are helping me through with battling the bacteria. So much is picked up in extensive international travel, which I've done as well, and we don't really know what we are dealing with, always. God knows the way through, and I know He led me to these. Just thought if share in case you might want to research to see if it's for you. Blessings and prayers for you. Chronic pain sufferers have such a special place in my heart after all I've been thru... 🌺💚💙💛🌺

Apr 30Reply

maggie_pie@ringleader Thank you, Holly, for your valuable experience! It's so good to hear from others what has helped, and what their experience is! You are such a blessing, and I wish for you complete wholeness and total healing! For whatever measure of health you have today, I pray that it continues to improve, physically, mentally, emotionally, and spiritually. It's so good to meet you here...this community has been such an encouragement to me... I am still very bad with my health, with my spine problems, and the side effects of my pain meds, but I believe that one day soon, I will be healed. I am so grateful for all my sisters here who always build each other up and help each other! You are such a beautiful group of ladies! :)

Apr 30Reply

joellienicole@ringleader Thanks so much for the suggestions Doll! I really do appreciate it and I will look into it! :) you are a blessing!! 💗💕💗

Apr 30Reply

tissueYour words are stirring and inspirational. I wish I had no company in this pain, but it's nice to know people out there (you) take the time to raise the rest of us up. God Bless you and heal you. Please contact me ANYTIME you need to talk, vent or share accomplishments. Be Well, Rosanne

Jul 28Reply

maggie_pie@tissue Oh Rosanne, your message is so kind! I am sorry that you, too, are suffering! This is surely a really hard road to walk down in so many ways… I am so incredibly fortunate to have my loving man to be with me and hold my hand when I need him, and my two amazing kids. They are teenagers, so I'm sure you know what that's all about, LOL! But for teens, they are just great kids…big hearts full of compassion, and I think a true desire to just do the right thing. I am so very very grateful for that! Things could be very different on that front, with them having a mom with SO much disability. I really drop the ball so much when it comes to parenting, because so often I'm stuck in bed with so much pain that I can't function as a mom. I think God must be intervening on my behalf (a LOT), to help my kids along despite all of the things I'm not doing. Especially because my son, 16, has OCD and anxiety…it's been pretty rough these past 3-4 years with all he's gone through… I don't understand the why's sometimes, you know? But I have a sense that he would not be as on track as he is, had I not been in this struggle with my health and with pain. So, if this is what it takes to get him raised with a good heart and with a soul of integrity… then I'm happy to go through it. It's hard, but it's pretty amazing what this one thing brings out in people, you know? Douglas has been SUCH an amazing boyfriend…a man like no other! I never would have seen the depth of his sweetness had we not had this to share and walk through. So, for me, there is so very much to be grateful for! Lots to still be hoping for, for sure, but I'm learning more each day about having a heart of contentment and as well, a heart that can hold things with an open hand…and be able to let things go. Thank you so much for writing me here! May I ask about your story? I would love to hear about it… :)

Jul 28Reply

tissueHi Maggie, I enjoyed reading about your family and how they're there for you. It's so important for us to still be a part of that and not apart from that! Douglas is a gem..does he have any brothers?!! LOL. The saying about God opening a window when a door closes is so true. It appears to be just that regarding your 16 yr. old Son. I wish you wouldn't say you're dropping the ball as a Mom. That applies to moms who choose to do that; not us. You sound to be a wonderful Mom, one who cares a great deal about the present and future of your family. I've often thought about the addage "God doesn't give you more than you can handle" and I think that while this SOMETIMES applies, (in hindsight, of course!) it also is a source of great confusion when we don't agree with His decision!! I often find myself saying, as I look up towards Him "You must mean the woman down the street because I've met my quota"! My COPD is a result of 9/11. In it's aftermath, I went back to NY and volunteered at the USO (I was there during 'Nam, also). I visited several firestations (my oldest Son is a firefighter) in the disaster area. My breathing became difficult about 8 yrs. ago and has gotten progressively worse. I cough EVERY day, mostly ALL day. That's caused bruised ribs, a torn rotator cuff, sciatica injury and severe strain to my back and stomach. In other words, if I were a horse they would probably shoot me! LOL Although I'm disabled with my breathing to not be able to do 90% of what I did, I would do it all over..even knowing the outcome. I love my Country and am very proud of my younger Son who is a Petty Officer 1st Class in the Navy. My Daughter, my youngest and God's forever gift to me, lives next door and takes care of me when I'm in need, as do my Grandchildren. The model for some of my items on Posh is my doll, one of my younger Granddaughter's who lives next door. She 's a great source of joy and comfort to me. WOW, have I rambled! Thanks for sharing and listening, captive audience that you are! Be Well, my PFF. God's grace and comfort to you and yours. Rosanne

Jul 28Reply

maggie_pie@tissue Rosanne, it is so nice to hear about your family… and to hear your story. Your attitude is inspirational… and I suppose you are right, we didn't choose this to befall us. Things just happen. and I know I'm not choosing to be absent from so many things… I do try my best to be at as much as I can, even paying a heavy price of rebound pain later. At least my immediate family understands that, even if old friends and other ppl don't. Thank you for your kindness, and your gentle viewpoint. what a blessing! God bless your son, all your children and grandchildren, and you! it's so very good to meet you.

Jul 28Reply

tissueHi Maggie, OH BOY,!! do I know what you mean by paying for it afterwards! Sometimes just the fact that I'm "out there" takes a toll on me. I call it being up and on. It's a clever ruse to act like I can actually do it! LOL So many days, more often than not and because I can't sleep from the choking, coughing and pain I don't even try to leave my casita. I wanted to share this with you. I got it from another Posher and it's spot on with what you said about old friends and other people not understanding. It's affected me so much because I did public speaking to Veterans and a lot of organizations for the Blue Star Mothers. We're an organization of Moms who have children in active Military. If you remember in "Saving Private Ryan", the banner in the window with the Blue Stars, that's us. I also volunteered at the VA hospital with visitng the Veteran's and their families. Because of my constant coughing I can no longer do that either. Work is out of the question. I worked in the movie industry and would be shot if I coughed like this on set!!!!! Anyway, enough of that jazz..here goes... God says "The reason some people have turned against you and walked away from you with no reason has nothing to do with you. It is because I have removed them from your life. They cannot go where I am taking you next. They will only hinder you in your next level because they have already served their purpose in your life. Let them go and keep moving. Greater is coming". I hope you find some answers, as I did, in that statement. Posh love and hugs, Rosanne

Jul 28Reply

maggie_pie@tissue yyeeeeaahhh…. that seems to be so true. I can see it now, at least with some of the ppl who stepped out of my life. it felt like abandonment at the time, very painful, very confusing. But now that I've had some time away from those relationships, I can see that they were not healthy. I'm kind of surprised, too, that I didn't notice the boundary issues before when i was in relationship with them….but I was blinded I guess. Thank you for that. You are a wise person. I'm off to bed to try to recover from, well, yesterday, LOL!! I hope you have a fairly pain free and cough free night! I can only imagine how difficult it must be to be coughing so much! I know how awful I felt with pneumonia, I can only imagine it must be similar. I'm so sorry you have to live with such a condition. Have you ever tried codeine for relief of the cough? I don't know if it would be appropriate for your condition… but its a very good cough suppressant.

Jul 29Reply

tissueAs a matter of fact, my Pulminologist prescribed codeine on Tues. this past week! I am SO excited at the possibility that it might supress my coughing and therefore my choking! Stay tuned LOL! We seem to be very much alike, you and I. If I'm correct, I would call you a people pleaser. In being that, (we) hold on and give opportunities to people we otherwise wouldn't bother with (life suckers). I forgot something I taught my Daughter and now teach my Granddaugter. Someone should compliment YOU, not just you complimenting THEM. Indeed we are judged by the company we keep! Off my soapbox!! Posh hugs!! Sleep well. my friend. I wish you a painless, pleasant, kissing the stars kinda sleep! RO

Jul 29Reply

missymauiThank you for sharing. It's always a comfort to not feel so alone when suffering physically. Kind words and support offer great support. Thank you

Oct 03Reply

maggie_pie@missymaui Thank you, that is very sweet of you to say. I'm sorry that you are going through these troubles too. It seems there are so many of us! Rest seems to help for me, and I find I must schedule whole days, sometimes up to 3 days of bed rest to calm down a bad exacerbation of the pain. I also try to watch funny films when I'm at my worst to lift my spirits and distract from the negative. But it is definitely a challenge to find strategies that work. What have you found helpful, if you are willing to share? I would be interested in hearing your story… I so appreciate you stopping by and leaving a comment. It's a comfort to know that other people "get it" and are living well in the midst of pain. :) God bless, and I hope you have a very good night!

Oct 03Reply

missymauiRest always helps the best, but it's difficult sometimes to get comfortable enough to get really good rest. I really love to get DVDs series from the library-I just picked up Downton Abbey and I watch it in bed on my portable DVD player. Pain meds don't work so I try to do creative things to keep me occupied and something to look forward to. So far I have taken up knitting-it's great and you can do it sitting on the couch or in bed. I took some art classes at the museum and found that I love doing charcoal paintings. The best thing that I just started was a blog. It lets me blow off steam, relieves some of my stress and just feels good to get it all out sometimes. Even the ugly stuff! It's so nice to meet people who really understand-so glad I came upon your page.

Oct 03Reply

maggie_pie@twggy hey Twiggy, I'm so grateful for your comment, and to meet you. You will be in my prayers. I totally understand about not having the energy to tell the story... I hope that the rest of your Sunday will be restful and have beauty in it! God bless...feel free to contact me anytime you feel like you need an ear.

Oct 26Reply

stephmariepieThis made me so happy. Especially the Gucci and the gown part. :) Do you mind if I borrow that saying? I love it! I have chronic knee pain and fibromyalgia as well as a heart and lung problem the doctors are still working on figuring out. My mum has fibro and chronic back pain, so we both know all too well about it! It's snowing and a big cold front moved in, plus I have pneumonia so I've been in bed all week. Going crazy! Trying to watch funny tv shows and some good Christmas movies on Netflix to keep my mind off the pain! :)

Nov 13Reply

stephmariepieGod bless you, I read your post about raising money and said a prayer for you and your family. If I cannot buy, I'll share your items. I hope that helps at least a little. Remember to always have hope! Do you know what hope stands for? Hold On Pain Ends :) xoxo

Nov 13Reply

maggie_pie@stephmariepie Hello Stephanie... I'm so pleased to read your comments tonight!! They are a great encouragement to me just now! And I love your name with "pie" at the end :D you said there was a cold front coming in...where do you live? I'm near Cleveland Ohio, and we just got our first snow tonight. Just a dusting...but the cold is hard to bear with all my problems, I'm sure it is harder for you as well! You've got the right idea...great comedy! :) I watch Netflix a lot too, lots of stuff to laugh. A merry heart is like medicine to the bones. I try to fill my mind with worship and praise music too, and listen to Bible studies to try to keep my focus on God, keeping a grateful heart and a humble attitude. That's what I find so challenging sometimes. I'm sad to hear that you have such big health problems...and are still trying to find a diagnosis. Are you ok as far as health insurance? I'm hoping to find something I can afford here in a few days... It's definitely tough these days. I'll be saying some prayers for you and your mum, Stephanie. Thank you so much for your prayers! I don't take any of them for granted. I'm very pleased to know you! I hope you have a comfortable night tonight!

Nov 14Reply

maggie_pie@stephmariepie oh, I'd be happy for you to use any post of mine :)

Nov 14Reply

stephmariepieMaggie I am honestly tearing up right now! You are such a kind soul and I'm so glad God introduced us! I talk to God often throughout the day and find hope in reading amazing Bible verses and quotes about The Lord and other inspirational messages in general. I live in Pittsburgh PA, about 3 hours from you. :) It's been in the 60's and today it was 30, we got our first snowfall too which although makes my soul happy and singing "it's beginning to look a lot like Christmas," it doesn't bode well for my bones! Fortunately I am snuggled up with my cozy blankets, heating pad, and fresh baked chocolate chip cookies my little sister made! She's such a help and a blessing. My dad works long hours but still comes home and cooks and cleans. I don't know how he does it! Thankfully I'm on my parents' insurance since I'm only 23 and it's an amazing plan! I'm so very blessed to have my family helping me and supporting me, especially now while I'm getting a lot of tests done for my heart, lungs, knees, and some other issues now as well. Your message truly made my night! I hope you stay warm and as pain free as can be! Maybe you can curl up with a good movie or book :) I have tons of suggestions since I'm home or in bed a lot. Oh! And Pie is my nickname! Lol when I was little it was cutie pie, angel pie, sweetie pie, now it's just Pie :) My dad actually just came in and said goodnight pie! Thank you for your kind words and prayers, especially for my mum. It means so much to me and I really appreciate it. She's one of my best friends and the strongest woman I know. I don't know how she does it but I admire her so much and want her to feel better too. God bless you and yours! Gentle hugs! Xoxo

Nov 14Reply

maggie_pie@stephmariepie (((((((Stephanie))))) (that's a big hug for you). You are such an amazing young woman! The regard and honor that you have for your whole family is such a rare and beautiful thing. I hope that my kids will grow to have such qualities! Your parents must be so proud of you, and your sister. Funny that you said something about me watching a movie tonight... my sweetheart comes to visit most evenings after his work, tonight we watched the news as usual, but I couldn't stay downstairs for too long. The pain was pretty overwhelming. So I put myself to bed, and he came upstairs, opened the laptop, and we watched this film called "Stand By Me" by director Rob Reiner (he was Meathead on All In The Family, if you've ever seen that old show. I used to watch it growing up, so to find out that actor is now a big time director was pretty cool!). It was a great movie! My Douglas has a nak for picking good films to watch. He is used to finding something to distract me from my pain. The film had some language, but the themes were deep, and for us somewhat old folks ;), it brought back a lot of memories of life when we were kids. It definitely pulled me in...so it's a good attention grabber...and does tug at your heart strings a bit. Well, it's pretty late...so I'll be off. You amaze me, Stephanie. You're strong, courageous, and you love your family with such a beautiful heart. I'm so glad to have met you today. g'night :)

Nov 14Reply

stephmariepieMaggie you are an absolute angel on earth and beautiful inside and out! Your family is precious! I've heard of that movie! I've been meaning to watch it. I tend to get sucked into things so quickly, so I'm hooked on a tv show on Netflix and I've been binge watching that-laughter is great medicine, that's for sure! I'm always reading about 5 books at once, coming up with some craft ideas for my good days, and I've been trying to push myself to do more cooking, baking, and cleaning. Before I got sick I took care of everything and I loved it! At 17, I was clipping coupons, putting them in my labeled organizer, grocery shopping, cooking, inventing yummy recipes, cleaning, helping my mum with heating pads, ice bags, laundry, dr appts, helping my sister with homework and taking her to school & picking her up, packing my dad's lunch, going to school, having a part time job, and making time for my friends and boyfriend at the time. I miss it so much Maggie. I'm sure you can relate! I was going to nursing school, had great grades, and found out I have a fibro. There's no way I can be on my feet for those crazy 12 hour shifts 3 days in a row! God has a plan for me and His plans are far greater than my own! I do get really bummed sometimes and upset that I can't do all those things for my family anymore. So I was doing pretty good, had Kenny G Christmas album playing, and my sister gave me pneumonia! So I've been down all week and dying to get the Christmas tree up, put some things on posh, cook, bake, craft...just anything to focus on the good in life! I have so much to be thankful for and I think about those things every day. Each day, I've been writing things I'm thankful for because I think gratitude should be celebrated all year, not just thanksgiving! Am I right?! For example, I'm so very thankful I met you today! You're a beautiful soul and from what I've read, you've done an amazing job with your kids. :) Thank you so much for the things you said about it, it warms my heart. There's this little knick knack on our kitchen windowsill of a bunny peeking out of some flowers in a flower pot and it says "count your flowers, not your thorns." Another favorite is "we could be upset that roses have thorns or we could be rejoice because thorns have roses." I'm glad you nice night and I hope tomorrow is a low pain day :)

Nov 14Reply

kissame2uI just want to say thank you to all of you who have shared all your stories. I was very active and energetic till I turned 35-40 then my life seemed to fall apart with chronic pain and fatigue, depression they all seemed to run my life. But when I hear how much you have all been through and you still have love, laughter, and kindness in your lives and hearts to reach out to others, it brings tears to my eyes, to know that I am not alone and to keep on fighting. There will be bad days, but there will also be great days, So thank you for making me feel that I am not alone. If anyone ever needs a shoulder to cry on, or some one to laugh with, or just need some one to listen, I will be here also for new friends anytime. (810)459-9431. Have a Blessed Holiday Season all of you, and you all are in my prayers as well!⛄❄😊

Dec 21Reply

tooposh2014I am just amazed by all these stories I live in pain 24/7 but some of you guys painful situation are remarkable how all of you handle it is strength in God AND Use Of Every Medical PROFESSIONAL You Can Find So I Going Consider Some Of Your Ideal Beside Physical therapy it made me worst but you all are living proof thru Maggie starting a forum how many of us live with debilitating disease but we push on posh on as well. So thank you for this open forum again. And I wish all of you nothing but the best in your journey Thank You !!!!!!

Jan 17Reply

maggie_pie@shashaswag Thank you so much for liking, and for your kind support. It's great to meet you. Blessings...

Jan 20Reply

disneytinkAnen..

Feb 01Reply

joyceh48Thank you so very much this makes me feel better I stay in chronic pain all the time I love to do poshmark I love talking to all the lady's and look at all your beautiful closets thank you for all the strength you lady's have given me god bless you all so very much

Feb 28Reply

wendy_huber96Beautiful! Prayers to all dealing with such a tough situation as chronic pain.. It can be so difficult but know we are never alone! God loves us & never leaves us! He is our strength in weakness! 💐

Dec 23Reply

maggie_pie@wendy_huber96 thank you so much for your kind encouragement... I hope you have a beautiful season! God bless you!

Dec 24Reply

chinupbeautiful@maggie_pie My prayers are with you ladies. I understand completely and sometimes wonder when I can do no more if I'm judged by the people around me (though I know they love me, just don't understand) Maybe they're thinking I'm exaggerating when I truly am not. I was a victim of abuse but blessed to have gotten out. Unfortunately am unable to work and I miss it so much!!! Thank you for this! I have you and others lifted up in prayer.

Feb 22Reply

gallery_nomadYou go girl!

Mar 27Reply

jojobobolagoOh dear Maggie, this just brought me to tears. Lately, I haven't had much gratitude, or grace for that matter. But I certainly feel grief and I question my God. Perhaps I should not stay away from here so much!! It's been a long time. I am in and out, but not very active. I hope you are having some some days, along with the not so good. 💜😘

Jul 05Reply

maggie_pie@jojobobolago Dear Joanne, I'm so privileged to read your message this morning! Thank you! I've been struggling with gratitude lately, myself, as some problems feel bigger and solutions feel further away....

Jul 06Reply

maggie_pie@jojobobolago ... And yet I am reminded by a timely word, of the patience of God with me...and all my mistakes, bad attitudes, poor judgment, or slowness to do good.... Somehow, remembering how longsuffering he is with me helps put perspective for me on those things I am losing patience with. (My loved ones who are not understanding at the moment, my doctors who don't have answers, and my kids who demand more than I can give).....

Jul 06Reply

maggie_pie@jojobobolago ...Somehow, remembering his great goodness and patience with me (and believe me, I've given God a run for his money!), it brings a measure of peace and comfort... Let's me once again let go of having to have my way, and be able to trust his kindness to bring me right to where I need to be for all that he's promised me. I hope that a special word comes to your door today that brings your heart freedom and comfort and peace. .....

Jul 06Reply

maggie_pie@jojobobolago and I hope that your beautiful body would have relief today, rest, feeling loved and cared for. Be good and kind to yourself, because you are precious and lovely! You are loved. May unexpected blessings find you today and lift your spirits ❤️🌸🌺

Jul 06Reply

jojobobolagoThose feelings for me cause me to isolate , which is not good. My chronic pancreatitis symptoms have progressed over the last year+. 9 hospitalizations last year alone. That is one of the reasons my Poshmark activity pretty much stopped, which is funny since illness brought me here in the first place. You always had such kind, hopeful words for me. I have really started missing my old Posh buddies. Three years since diagnosis and my pain is still not controlled, not for lack of trying.

Jul 06Reply

jojobobolagoTwo weeks ago, after 3 years of paying me benefits, the LTD insurance co. decided I'm no longer disabled. With my benefits being denied, I now face the probability of losing my home. Legal fees for appeal are so far out of reach. But, I'm prepared for the fight. I will not let them win! I already moved once because of this. But I'm near my grandchildren now! That makes me very happy! Since I've been sick I've always said 'losing is NOT an option'! I need to hold myself to those words!

Jul 06Reply

jojobobolagoAnd your caring continues. Thank you for those reminders. I'm just not there right now. I will be again. Just not now. Thank you, my dear. Have a wonderful day.💜

Jul 06Reply

maggie_pie@jojobobolago i'm so sorry for the difficult situation that you find yourself in! Is there anything I can do to help? Anytime you need an ear, I'm privileged to listen.... You will be in my prayers 🌸🌺🌺

Jul 06Reply

jojobobolagoThank you very much!

Jul 07Reply

deesandg1@maggie_pie Hi. I've read thru these heart wrenching life stories. Please keep your faith and determination. With every lol you increase your joy in life. One of my favorite scriptures is proverbs 3:5&6. If you don't have a modern English bible you can read it online at JW.org. May the God of peace comfort your hearts.

Jul 13Reply

maggie_pie@deesandg1 I love that scripture too! Thank you so much for your encouraging words... I try to keep my thoughts and mood in the right place, but it's a challenge in the struggle of day to day. But God is so gracious and patient with me. I hope all the best for you, blessings 🌸🌺

Jul 14Reply

droschThank you! This was very nice to come across. I am a chronic pain suffer. Life is a struggle and when you find things like this it makes your day!

Jul 24Reply

maggie_pie@drosch thank you so much, Donna. I hope you have a blessed evening and experience relief from your pain tonight. So many people really don't know what it's like to live with the burden of chronic pain or illness. I'm reminded of that at times when good intentions meet my suffering, and it reminds me to be patient with them. It's hard to embrace something one has never experienced. You are in my prayers. God bless!!

Jul 24Reply

teresaposhlove@maggie_pie WOW! What a time to stumble into your closet. I'm Teresa I'm going in tomorrow 4-10-17 for my 2nd knee replacement. I also have fibro and lupus. I was in a car wreck in 91 they said I would never walk well I do Thanks to Our mighty Dr and master of healing our God! I hope to be back real soon my closet is on vacation till I get better.

Apr 10Reply

la_bella_figuraLove anf needed this! I've had cronic back pain all my life due to roto scoliosis 40+ degree curvature plus rotation. Will need surgery but I choose not to have it. Also had whiplash twice in less than 2 years one due to a hit and run car accident and the other on the job. In 2006, my back was broken in 3 places. It is a hell I wish on no one. There is not a day that I dont wake up without pain in one degree or another. I just learn to live with it.

May 02Reply

styledlife@maggie_pie I'm in tears reading this post and the comments from all the others who suffer too. My heart goes out to each of you. It's such a lonely path to be on. Thankful to have a loving family, but it is so hard having a son I feel I am letting down by being housebound. I want to write mire, but it's late and I'm already on Posh past bedtime. Lol Just thank you for opening your heart and baring your soul so others can say "me too" and find some empathy. ♡

Jan 10Reply

maggie_pie@styledlife I just read your comments on my listing, and I apologize for being so long in responding! Lately there have been more challenges coming my way. I'm so grateful for your comment.. and I can very much relate to your feelings as a mom. I often wonder what my kids lives would be like if I were well. But, that, I believe, is in God's hands. Please hold your head high, and don't let the lies of perfection suck you into that black hole.

Feb 09Reply

maggie_pie@styledlife You are a beautiful, hard working mom who loves her son. And they know that we love them. A friend of mine once told me that as long as my kids know they have one person who believes in them, they will be fine. They are turning out well. God's grace pours out over all of our efforts. It does 💕

Feb 09Reply

jkjk47@maggie_pie I stumbled across your closet & this beautiful prayer that you put out into the universe tonight. I know we don't actually know each other, but reading your words of encouragement helped me to feel connected in a way I haven't in a Very Long time. It's been just over 10yrs since my autoimmune diseases were diagnosed and the path since then has been far from easy. So Thank You for your kind and uplifting words. I will consider you a PFF from here on. With gratitude, Janee. ❤️

Jul 07Reply

maggie_pie@jkjk47 Janee, thank you so much for your kind comments! I'm very glad to know you. so sorry for such a long delay. I have been away with health issues, but am trying to get back here to enjoy all my posh friends! I hope you are having a good Monday morning today! God bless you!

Mar 11Reply

Jan 04Reply