ANKYLOSING SPONDYLITIS...my journey!

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This is a listing of only a few things I deal with on a daily basis...there's so much more! But I try to remember every day as my health declines, to be THANKFUL FOR MY BLESSINGS! There is ALWAYS something positive no matter what your struggle! Look for it & be THANKFUL! It will change how you feel about everything! Peace, Love, Happiness & Health to all! ??

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cheapshelley and 17 others like this

42 Comments

yisel13 Beautiful and encouraging words! ❤️

May 20Reply

peacegoddess 💞✌️🌸

May 28Reply

theposhkings @macsgal2010 I truly wish more people took the same approach as you do on a daily basis!!!! Too many do not realize how fortunate they really are. Stay strong and beautiful!!!!! 😍❤️💛💚💙💜😍

May 30Reply

macsgal2010 @funfashion213 I try very hard to spread awareness & positivity. Its not always easy, I wont fib. Example...this past month has been much more difficult than usual but when able...I do what I can. Everyone has a struggle of some sort. One is not worse than another, only different! At the same time, we all need to realize that we are blessed & that's what we need to focus on even though there are times more difficult then others! Peace, Love, Happiness & Health for you & all your loved ones! 💖

May 31Reply

kingkath123 God bless and I had a kidney transplant and am so grateful and positive every day for my health now❤️

Jun 01Reply

gambie23 You have such a positive attitude, stay strong. You are an inspiration💕💕

Jun 22Reply

macsgal2010 @liledamame25 Thank you! You've helped me obtain my goal today! I feel that if I can make a difference in one persons life each day, weather its making them smile, helping with advice, giving a kind word etc...than I have fulfilled my purpose for that day! Blessings for you today & every day my new friend! 💖😘💖😘

Jul 09Reply

lolalique Many blessings to you. 💕🙏🏻💕

Jul 29Reply

macsgal2010 @kimt1818 Hello hun...I am interested in the entire set of you Tiffany jewelry. I by far am not a cheap person but circumstances in my life, beyond my control (Genetics), have changed the rest of my life. I have wanted a set of Tiffany jewelry for a long time but...well circumstances have prevented it. This is a selfish request...I don't purchase things for myself but I simply want something for me.

Jul 30Reply

macsgal2010 @kimt1818 I would love to give you what you are asking but can not get even close. I do not want to insult you by just making the offer of What I have in my Posh account. I wanted to check with you first. To see if you would even consider that sort of offer? Regardless of your decision...I wish Peace, Love, Happiness & Health to you & all your loved ones! 💖💖💖💖

Jul 30Reply

kimt1818 @macsgal2010 what's the offer 275 is the lowest I can go.

Jul 30Reply

macsgal2010 @kimt1818 Thank you hun for getting back to me...I surly wish I could afford that but sadly...the amount of medical co pays are insane. Especially for something that there's no treatment no cure! Lol I just realized that!!!! The chemo I received is a hail Mary so to speak. Praying it will slow the progression of the disease. But thank you dear...didn't mean to go that far! Peace, Love, Happiness & Health to you & all your loved ones! Please have a wonderful day! 💖💖💖💖

Jul 31Reply

nurseninja1 God bless you and may he heal you. I can relate to your daily struggle. I have a lot of the same symptoms. Having back surgery in a week. Lost my job last week that I had for 14 years because of taking off work too much to go to my physician appointments. But most importantly we have our families and our lives to be thankful for.😁💜💜

Jan 15Reply

cherieito @nurseninja1 wondering how your surgery went?👍😘

Mar 04Reply

nurseninja1 @cherieito thank you for thinking of me. It went well. Just now starting to feel myself again. In all honesty, I don't see any change in my pain levels from before the surgery to after. I won't ever do it again, that's for sure. 😁 Hope you are doing well.

Mar 04Reply

cherieito @nurseninja1 I'm glad ur getting back to your old self💟👍, but unfortunately I heard that surgery doesn't help pain in the spine😩I wish they could figure out something!! The older I get the worse I feel even with weight loss & light exercise 😕

Mar 04Reply

nurseninja1 @cherieito yes I heard that too but I had to do something to stop the nerve damage

Mar 04Reply

cherieito @nurseninja1 I know, did it seem to help at all with the nerve damage? I noticed I'm starting to have more problems with it too😩

Mar 04Reply

meradarx My journey also no joke😥

Mar 21Reply

macsgal2010 @cherieito it went well! Thank you for checking. I'm still very tired but the implant is already making a big difference in my life! Long recovery to go, but I will get there! Much love Lucy 💙💚❤️🦋😘

Apr 01Reply

macsgal2010 @cherieito sorry...I just realized you were cheating with someone else in my closet! Embarrassed!

Apr 01Reply

macsgal2010 @flutter_buys Will you share this for awareness please? Thank you Lucy 💙💚💛❤️🦋

May 12Reply

flutter_buys You got it! Hoping you had a good day! 😘💕🙏💕

May 12Reply

macsgal2010 @flutter_buys Thank you my friend! I pray you did also! Lucy 💙💚💛❤️🦋

May 12Reply

cicherry @macsgal2010 , I read some of your comments and I can say you are such a strong and positive person! Love you for that! ❤️ Keep it up! We all struggle with one thing or the other. Wishing u God's healing , protection and strength. 😍💕💋🌺

May 26Reply

macsgal2010 @cicherry Thank you for all your well wishes! Yes...everyone has their own journey, and to each person, its little, it's big, it's theirs to walk. We can have well wishes & positives thoughts but we can never know what it's like unless we walk their shoes; even then, there's going to be a difference! No two journeys are alike. 😘 Stay safe & well my friend Lucy 💙💚🦋

May 26Reply

cicherry @macsgal2010 , so true! Thanks big sister. God's blessings !

May 26Reply

sugarlizard @macsgal2010 Hello Honey Bunny. I recently retired from my work due to rheumatoid arthritis, fibromyalgia, and degenerative disc disease. Perhaps there are things we can't do anymore, but there's a lot that we can do. I will send a Prayer Angel your way. Blessings.

Jul 25Reply

samantha5409 I also have AS, as does my 19 year old sister and my dad. It can be really tough!

Jul 27Reply

macsgal2010 @samantha5409 We are a very special group of people that's for sure! 💐 Are any of you on ant biologics? I've been on Remicade two years in August. I pray you all are doing well! Lucy 💙💚🦋😘💐

Jul 28Reply

melfstone @macsgal2010 Lucy I have this also. Other things also. I try to stay happy.

May 06Reply

iluvgzus I'm sorry u suffer so much. I'm happy u r finding ways to cope! I have fibro so I know how hard it is when other people have no clue wut u go thru. Prayers! God bless u!

Jul 08Reply

goodgenes_cc I agree. I was diagnosed with the same thing about 2 years ago. I am 35 and it has changed my life forever. I also try to look for the positive things. I am blessed with my health other than that and I try to take it day by day, some days are better than others! Wishing you nothing but happy and healthy days🙏🙏🥰🥰👏🏻👏🏻

Apr 04Reply

goodgenes_cc I actually went to see a rheumatologist and got prescribed Humira. Depending on your income you might qualify for it for free. Just something to look into🙏

Apr 04Reply

macsgal2010 @cloud9sales Please know you are not alone! Seven types of arthritis & 5 autoimmune diseases. Along with Diffuse idiopathic skeletal hyperostosis. Very special indeed. I meant no offense. I have A LOT of followers because I am homebound; I can only shop on line so I know when all the good sales are. No one has ever taken my “heads up” offensively…until now. 😪 I am truly apologetic. I wish you nothing but the best!!! 😘💙💚❤️

Jan 30Reply

macsgal2010 @cloud9sales I say I’m retired because I’ve not been able to work since my early 40’s. Being medically the way I am, sometimes I’m embarrassed by it. Being 61 and not working for 20 years; most people don’t get it. So no…only what I get from disability and that isn’t much.

Jan 30Reply

macsgal2010 @cloud9sales To be honest, you’ve made me feel like a lot of people do when they don’t try to understand. Shame, you’re disabled but know exactly how to make me feel just like abled body people do. Huh well…..I still wish you well & meant no harm! 💙💚❤️

Jan 30Reply

macsgal2010 @cloud9sales I am NOT complaining! I’ve learned these last couple of decades…complaining is a waste of energy & emotion. When I can help someone, such as letting them know about great sales or being honest why I’m not buying from them, I do. Please please understand, I’m not trying to hurt you or come after you. I truly wish you the best.

Jan 30Reply

macsgal2010 @cloud9sales I’m asking…please please stop being mean. I do take it personally & it will affect me for days. I truly wish you hope, love, happiness & patience. 💙💚❤️

Jan 30Reply

macsgal2010 @cloud9sales Okay…I give up. If someone told me where there was an amazing sale & that’s why the weren’t buying from me…I’d thank them for the information & their honesty. As far as the other candles, my mistake. When I buy, I buy only B&BW You’re not selling because the prices are a bit high. I know, you’re going to blow another gasket but honesty hurts sometimes.

Jan 30Reply

macsgal2010 @cloud9sales You’re charging more than the original store, at regular prices. Look on Poshmark at the prices of other sellers, some, are high but they’re not selling either. Look at the ones who are selling……oh & before I forget, B&BW’s shipping is always $5.99 it’s been years since I’ve been in a store. Oh…also…if money is so bad, move out of B.H. to somewhere more reasonable! Free advice. 💙💚❤️

Jan 30Reply

macsgal2010 @cloud9sales you really are a sad person funny for me but sad for you. I can see why you have no friends. You know, if you want to correspond with someone because you’re lonely…I do understand. Let me know, otherwise…come one…you’ll never get the time back you’ve spent. Life is very very short & God didn’t mean for you to live this way. Once again…all the best my dear. My offer stands. 💙💚❤️

Jan 30Reply