I am a warrior!!!
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Fight the Good Fight...
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rmarlar333
@ridinghood13 Thank you hun... sending hugs to you! I so understand I have all the above... stay strong hun... together we all can heal and win this war.
marifun
@jrtharcrow Hi Jennifer, I think you need to meet Rachel😊She's new to Posh! 😊👏
jrtharcrow
Well welcome fellow warrior @marifun seemed to pair us nicely. I am a fighter since 1993 of primary lupus +with a lovely combo of 11 other disorders/syndromes/diseases that associate themselves with lupus.....joy joy. This is a wonderful place to meet likeminded women, earn cash and a tremendous envious closet. Love your spreading awareness nicely. Whoot whoot!!!!!!
jrtharcrow
Wait what @malar33 u live in tx. Wear at? I am in Ftw keller/alliance area. July 19th in Grapevine Posh is hosting a party. When I find the tag I will add tag you. If you can rsvp would love to meet you.
thevintageroze
Hello honey nice to meet you. I'm fighting crohns and @jaimerstone has been my rock! I know it's a hard and long road but don't give up! We are all fighters here!! Please if you ever need to just talk or vent just tag me and I will be more than happy to listen❤️
rmarlar333
@jrtharcrow Hello Jennifer nice to meet you hun and thank you so very much! I am in the DFW area and am hoping to be able to attend The Posh Party in Grapevine.
rmarlar333
@jaimerstone Hi and thank you dear...
rmarlar333
@nkhob Hello... nice to meet you and thank you.
jrtharcrow
@rmarlar333 me too, but we never know what we wake up too (good or bad day) I am praying we both get to go and meet. 💜💜💜💜💜
rmarlar333
@jrtharcrow Me too indeed...
lifeinstiches
💐 I honor every woman who is a warrior of any disease or disorder there is & posts it👏👏 It makes me proud to see so many standing tall & fighting the fight everyday😘 For that I commend you all. I too suffer from many things but don't talk about any of it😢 I often thought there should be a place us Posh ladies can go to as a closed/private group on Facebook to chat about our daily pain. Is there one?
rmarlar333
@hotpantsrhoads Well thank you and you keep fighting the good fight too hun... any time you need to talk, vent, a sounding board... just tag me in. I am a member of several groups on FB for people with Lupus and Chronic Epstein-Barr Virus these are great groups for people with autoimmune illnesses/diseases... I also, have WPW/LGL, which is basically the electrical part of my heart does not operate normally and am a member of a group for that as well. There are many wonderful woman that have posted on here that too are dealing with chronic illnesses and they may know of other groups depending on what your are looking for. My niece @andrea_27s also suffers with chronic illnesses and may know of other groups too.
andrea_27s
I love you with all my heart and being able to be there for one another only makes us stringer. ❤️
rmarlar333
@andrea_27s I love you too baby girl!!! You are correct... we must stand together and let others know they are not alone, that then is three fold! It helps another/others, it will helps ourself, and it spreads the word-awareness... this then makes us stronger!
lifeinstiches
Thank you for understanding😘
rmarlar333
@hotpantsrhoads No problem hun... any time and thank you.
wenrella
Me to!
mistielee
@rmarlar333 Rachael, thank you for all those wonderful shares!! I'm gonna start tagging you on the party alerts more often!! Don't feel obligated to share all of them...it can get overwhelming...unless you work good under pressure!! Lol. But I want to get you some Host Picks!! Your closet is looking very nice💖 so let's step it up a notch...ok?! Later Love!!
rmarlar333
@ mistielee Hi Mistie... Aw well thank you so very much... I have really been trying to get all this down and know that good pictures are a first start. My awesome niece @andrea_27s has been guiding me so much and checking on my closet to tell me what I should change or improve... she is so sweet and all of the wonderful women that have welcomed me I am amazed.... again thank you so much and plz if there is anything that you think would be helpful plz share that with me... You are super great. Thank you ♡
andrea_27s
Your doing a great job Aunt Rachael! Can't wait for you to come over so we can do some more work! I love you
rmarlar333
@andrea27s Thank you so much sweetie! I can't wait either... it gonna be awesome.
rmarlar333
@mistielee Thank you so very much!!! I got a Host Pick tonight... Wow I'm excited and so grateful!
mistielee
@rmarlar333 Yay!! We will keep tagging!! So excited for you Racheal💖 Woo hoooo!! 🎉🎈🎉🎈🎉🎈
christinedeeann
Welcome and happy poshing happy to help if you have any questions☺
christinedeeann
So sorry I thought you said you are new to posh I didn't mean to be so light hearted. Wish you only the best, take care☺
rmarlar333
@christinedeeann Thank you so much for lovely comment... I haven't been Poshing too very long thus far... just a few months now, and is when I made my New to Posh post... a few months ago!!! I have learned so much from so many awesome women here on Posh. Best wishes and always Happy Poshing!!!
gettumgirl
You should totally keep this on top of your closet...so that everytime your closet is shared....it to will be shared...so far down people will miss it...just trying to help
rmarlar333
@gettumgirl okay great thank you so much!
jakeamom12
Gentle hugs to you! I have Fibromyalgia,Chronic Fatigue and Epstein Barr.❤️❤️❤️
jakeamom12
As well as depression and back issues...
rmarlar333
@jakeamom12 Aw thank you so much hun... and to you too!
rmarlar333
@jakeamom12 I do understand... If you have a FB there are many great support groups on there.
rmarlar333
@alise28 Thank you so much for your encouraging words...
lifeinstiches
@alise28 thank you your are very kind & lol I hate Facebook anymore too. We all have issues😂😂 mental ones 😂😂😂 but as for the health ones oh well what can we do other than laugh & prayer we will get thru them👍 I am ok talking about my health on here it is on my wall now. U do talk to a few people on here off Posh but not many. I did have a chat room & I would take it down & put it back up so it stayed private but then I noticed Posh was removing it even if there was nothing in there? Kinda weird as it is not against the rules? I see many people with them on there wall. Ok I am off for my afternoon nap which I must take if it want to do anything. Talk soon 😘
fashionheiress
@rmarlar333 I'm a warrior too...!!
rmarlar333
@fashionheiress Hi!!! Hope you're having a good evening... stay strong! :) If you ever need to talk I'm here!
fashionheiress
@rmarlar333 You do the same as well. Thank you :)
abstractdreams
👍💋
rmarlar333
@hollynoel25 I hope you get to feeling better quickly! :)
hollynoel25
@rmarlar333 Ty so much! I have so many pain issues.. Broke my back on a trampoline @ 12.. And docs always lean toward fibromyalgia or things like it, I'm not so anxious to add another label, and they're already treating me with basically the same meds anyway. I have spinal stenosis from my injuries, a sneeze of inflammation does a number on my body. Praying for everyone here, I have anxiety & insomnia as well.. Women seem to get more of this stuff .. Maybe cuz we are warriors more so than men! Have the most beautiful day you each can have today!❤️💕🌺💕✌️😘❤️
chicaccessories
Hi Rachael, stopping by to give you big hugs and kisses. Sorry you are having a tough day. Wish I could be there to sit with you. Saying a prayer and sending positive vibes your way. I💕💞💕💞💞💕💞💕💞💕
rmarlar333
@mistielee Hi Mistie, Thank you so very much my dear Pff! My internet wasn't acting up this time... indeed it was my health! The night of my Co-hosting party I had become a bit ill... and was trying to push through! I had so much fun, even in the midst of it all! Ended up being bronchitis & w/ my Lupus acting so crazy these days, as well my CEBV
rmarlar333
@mistielee (Chronic Epstein Bar) which went up to 600,000 it truthfully just took a complete toll on me! I am trying hard every day to maintain and catch up! I honestly feel like so many of You ladies here on Posh are family... My Posh Family! Thank you so much for sharing my closet! It absolutely brightens my day to be able to get onto Posh (even if I'm having to play catch-up lol.) I have truly missed you all! :)
mistielee
@rmarlar333 Rachael I'm so glad you are on the mend!! We all have bouts in life that is for sure but when it comes to serious health issues... It must take a toll like I've never known. It's hard not to take your health for granted when you have always been healthy! So glad your back. I will be praying for your conditions. I truly missed you❤️ Welcome back and don't worry about the sharing!! Xo
rmarlar333
@chicaccessories Hi Andrea, I can't thank you enough for stopping by with big hugs and kisses and your kind words... You’re too sweet and so kind-hearted! It really means the world to me and I greatly appreciate you more than you know, and am truly moved by your thoughts and kindness! My health has been just horrible...
rmarlar333
@chicaccessories I think I truly became depressed about it but I know that God is good and is giving me peace and strengthening me to withstand! I have so missed getting onto Posh and sharing, cheering, etc... with you all... it brightens my day! I have truly missed you, thank you so much for being You my dear Pff! :)
hrachal
I'm so sorry, Rachael! I haven't really seen you on here, had no clue it was because you weren't feeling well! I will be a better friend and check in on you...and share your closet and to parties when you are unable to. Wishing you strength and no flare ups! Love ya friend! 😘😘😘
chicaccessories
Good morning. Hope you have a great day. My feed is still insane so I have been missing messages. Hola all is well. 💗💖💝💝💓💕💗 Andrea
chicaccessories
Rachael, hang in there. I am sorry about your health struggles. It must be so tough. I think of you daily. I have met many ladies on Posh who have become a good support system. Please find me on FB so that I can say hi there on the days you are not on Posh. I am Drea Jones there. E mail drdimples at hot mail 😘😘😘
rmarlar333
@hrachal Heidi, Thank you so much! You my dear have already been and are a great friend and Pff! I have dealt with my health issues for a large part of my life as I have multiple health issues... with most of them intermingled however, I fell and broke my left knee in four places (tibial plateau fracture) and was left non-weight bearing for 2 plus years and CRPS (Chronic Regional Pain Syndrome) set into my left leg. Due to my Lupus,
rmarlar333
@hrachal now over 2 years later I still have a non-healing tibial plateau fracture... the Lupus has just taken over and is not allowing my bones to heal! As well, I have CEBV (Chronic Epstein Bar) which my IgM/titers have now gone up to 600,000. I use to work at a traumatic brain injury rehabilitation centers and was a nurse many years, (before my health took over my own life.) I have seen so many people that have truly gone through so much major life struggles,
rmarlar333
@hrachal with their health and injuries... and I have definitely learned through this journey that people banning together (even if just by a app, social media, etc...) can and do build, encourage, and bring much joy to people that have major health issues... and that is exactly what Posh and each of my lovely and awesome Pff's do for me...
rmarlar333
@hrachal I pray daily that God blesses me with the strength to be here for each of you as well! If you happen to not see me sharing from time to time... please know that with all my heart I am thinking of you all and
rmarlar333
@hrachal wishing you all mUch success... and as soon as I am able I will be back and do everything I can to catch up, for that honestly brings great joy to this Soul! For today, Yay! I am blessed and able to be on and share with you lovely ladies!!! Thank you so much for sharing and Poshing with me! :)
rmarlar333
@hrachal Sorry, I was a little wordy there... I forgot all about the 500 character rule here on Posh. So, I had to break up into 5 parts... sorry :)
hrachal
You are so awesome and continue to fighters day! So proud of you! If you ever need ANYTHING, I'm here for you! Even if it's just to listen as I know this goes a long way. Many blessings for you! ❤️😘❤️😘❤️
hrachal
No, thank you for sharing! I had no idea there was so much to your health. You've been on quite the journey and are quite the fighter! 💕💞💕 Heidi
rmarlar333
@hrachal Awe... Thank you so much!!! I am fighting the good fight and will continue to do so until the good Lord calls me home! I am very blessed to have you as my Pff! You are a grand blessing! I am here for you as well, even just to be a sounding/venting board!!! Hoping your day is blessed, joyful, and successful! :)
rmarlar333
@chicaccessories Andrea, Thank you so much! Oh I know that your news-feed is still insane and blowing up... absolutely! Hope you have the most successful and beautiful day! Yes ma'am you are so right there are so many wonderful ladies here on Posh that indeed are an awesome support team, including You dear! I am very blessed to have you as my Pff and Posh family! I will certainly look you up! Thank you!
original_couve
@rmarlar333 I will help you fight your Lupus if you help me fight my M.S! !!!! Maybe together we can kick their butts!💪💪💪💪💪💪💪💪💪💪💪💪💪💪💪
rmarlar333
@conniemarie12 Awe... Thank you! Amen!!! I'm here for you! Right... the battle is never won yet alone! :)
mamacatz
Great uplifting post. I feel so alone and isolated in my diseases but this made my heart smile. I am still learning about my DX of lupus. I had tested positive several times over the years but the doctors just brushed it off saying it was not uncommon to have false positives. It was a female rheumatologist that took the time to actually "listen". Depression, PTSD, epilepsy, anxiety and chronic pain are there in addition to the lupus and feels SO overwhelming most of the time. Cont.....
mamacatz
I would love to connect with some fellow poshers here and on any informative/support forums out there. I'm usually more eloquent but brain fog is awful today. Cont...
mamacatz
I'm with ya ladies, I support and applaud you for reaching out and expressing yourselves here in the land of the pretty and fabulous, I don't often feel either anymore but reading the words of encouragement tells me I'm not alone and need to stop the negative drum in my head. Thank you, blessings and look forward to connecting with you lovely ladies!
babygreen275
Hugs to you and salute for not quitting! I have rheumatoid arthritis, Lyme disease, fibromyalgia, and COPD and asthma. I fight PTSD everyday, too.
rmarlar333
@ridinghood13 Thank you so much for the shares! You are so sweet! 😊 Hope you had a very blessed Thanksgiving and are doing well! 😊💖💗
mistielee
@rmarlar333 Thank you for the shares!!💞💖💕😘NITE XO
co_spgs_closet
shared 20+ items from your closet with my followers 😉
rmarlar333
@co_spgs_closet Thank you for the share's! 😊 I shared 20 + items back (from your closed) to my follower's!
the_back_rack
Fellow lupie, hashimotos as well. May the spoons be in our favor! 🥄🥄🥄
janeannm
I also have lupus.
rmarlar333
@janeannm I so understand... it's definitely been a difficult journey! I wish you much joy and success. Gentle hug! 😊 Have a good evening!
janeannm
@rmarlar333 Same here. I wish you the same and more. 🙏🏼💕I hope your evening was pleasant also. Kind hug back to you. 🤗 I ask God to make things as easy as possible for us, our loved ones and all good people everywhere❣️
gamer_princess
@rmarlar333 hello hun could u tell me about this and sorry your going through this
rmarlar333
@gamer_princess Hi! This is a post to help bring awareness to some of the illnesses that I live with... there are many of us that suffer with many types of illnesses and I just want to help support and encourage each of us that might need encouragement along our journey. We are not alone, together we are stronger! Have a blessed day! ⚘😊💖
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