😍MAY IS WILLIAMS SYNDROME AWARENESS MONTH😍
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My son has Williams Syndrome. He is missing 28 genes on the 7th chromosome. This causes many medical, mental, & physical problems for him. Only 1 in 10,000 people have this rare deletion. Most people are not diagnosed till much later in life due to the lack of knowledge of it. I'm hoping to bring awareness so that diagnosis is much earlier so the necessary interventions can take place before it's too late. Thx for viewing & reading! Please share & help me spread the word about Williams Syndrome!
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20 Comments
susansboutique
This is very informative. I've never heard of it. Each of my sons were born with special health concerns. Oldest has had 5 pacemakers since birth and is 33 now. Other don is 30 and has ADD, LDs and recently needed a brain tumor removed. Your son is beautiful and God has special plans for him and YOU! Thank you for sharing this so I can also help bring about awareness! Good luck and God Bless! 👼
wsadreamcatcher
Aww! Thank you so much! My son definitely brings me so much joy! It doesn't matter what kind of day I've had, he always makes me smile & his happy personality is so contagious! He is very social & friendly to everyone he meets! Thanks for sharing! 😍
stungforever613
Thats my lil Evan!! This is Monica btw hehe
wsadreamcatcher
@stungforever613 Evan loves his Mrs. Monica!!
stungforever613
And I love my lil Evan! Well big Evan now!! So proud of how great he is doing in school
wsadreamcatcher
@stungforever613 I'm so proud of him too! You guys have done such an awesome job with him! I couldn't ask for a better team than you guys at RES! 😍💖
adriane1b2
Thank you so much for sharing!! What a beautiful boy and a beautiful family ☺️☺️
wsadreamcatcher
Thank you!! 😍☺️💖
vintage_lass
@wsadreamcatcher thanks so much for following me, lovely! Your closet is adorable ❤️
wsadreamcatcher
@bayoubutrfly Thank you!! 😍
Yes, it has been very challenging at times. He's 8 now & still has a lot of medical issues but it has gotten a lot easier to deal with. He has a very low immune system, so along with him being in school & with the weather changing & getting cooler, he has been sick several times already. When he was younger, he spent several weeks at a time in the hospital every time he got sick.
He makes me smile & I thank God for choosing me to be his mom. 😍
barneysbargains
Hi there! I used to work with a guy who's daughter has Williams Syndrome and until you hear the day to day life happenings, you truly have no clue of what it is. God bless you and your family and especially the little one! Your family will be added to my prayer list as well as posted to the "Prayer Warriors" group I belong to on FB.
barneysbargains
Recently they did a story on Williams Syndrome on the Today Show. I don't know if it'll show up in their archives or not, but it's worth a look if you have time!
barneysbargains
@tramnes1 I'm also going to add you to my prayer list and our Prayer Warriors group on FB. If you want to add me on FB and be an active member of our Prayer Warriors group, please feel free to add me. Janelle Brubaker Cullen. The group is private, and not a "Bible Thumpers" group, but a sincere group of people that love the Lord, & believe in prayer. This goes for anyone who has commented on this page. Just remind me that you're from PM
barneysbargains
@wsadreamcatcher Have you tried ZiCam for colds? They make a generic brand @Walmart. I swear by it! I have a low immune system as well & when I feel the first symptoms, I take this every 4 hours & it usually never turns into anything. If I've started it too late, I still take it with whatever the dr prescribed & it does help reduce the severity & duration of the illness. Pls check w/your dr first. It comes in several forms; I use the dissolving tablet & have been for years.
barneysbargains
@susansboutique You're family is going on the prayer list and "Prayer Warriors" group also!
wsadreamcatcher
@barneysbargains thank you!
barneysbargains
@wsadreamcatcher You are so very welcome
eloradawn
My daughter has Williams Syndrome also
wsadreamcatcher
@eloradawn 💞They are such special people!
eloradawn
@wsadreamcatcher yes they are!!
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