๐Fibromyalgia Awareness Day May 12th! 26th Anniversary Coming Up๐Wear Purple
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๐ฆ๐ 26th ANNIVERSARY OF NATIONAL FIBROMYALGIA AWARENESS DAY.
โข ARE YOU A FIBROMYALGIA WARRIOR??
โข DO YOU KNOW ONE?
โข YOU PROBABLY DO, YOU JUST DONโT KNOW IT.
โข WHY - BECAUSE YOU CANโT SEE IT.
โข WHY - BECAUSE MOST OF US SUFFER IN SILENCE.
โข WHY - BECAUSE MOST DONโT OR WONโT UNDERSTAND.
โข WE ARENโT LOOKING FOR YOUR SYMPATHY, WE WANT A CURE.
๐ WEAR PURPLE IN SUPPORT OF AWARENESS.๐
โ READ 1 ARTICLE TO EDUCATE YOURSELF. โ
โข WHY - BECAUSE YOU PROBABLY KNOW SOMEONE, YOU JUST DONโT KNOW IT, OR WORSE YOU DON'T BELIEVE THEM! ๐ฆ๐
โก How are all the Fibro Warriors out there? โก
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348 Comments
aligirl1213
These are AMAZING!! I love them! You did an awesome job Amy!!
May 13Reply
moongoddess7
@aligirl1213 Thank you sweetheart! I made a whole bunch, I made a post on Facebook about it! ๐
May 13Reply
aligirl1213
@flutter_buys Hey Karen! I wanted to share Amy's beautiful slides. She is indeed a warrior and she now knows she is not alone! Hope both of you have a wonderful Mother's Day!!
May 13Reply
flutter_buys
@aligirl1213 @moongoddess7 Hi Ali & Amy! Thanks so much for sharing this with me Ali! ๐๐๐ And Amy, Iโm so happy you are supporting Awareness for our illness. I wholeheartedly believe that we need to raise awareness! I never knew or heard about fibro until diagnosed! I didnโt even believe I had it! Until educating myself on it then finally coming to terms with the disabilities! (Continued) ๐
May 13Reply
flutter_buys
@aligirl1213 @moongoddess7 There are so many people here on Posh that truly support us by us all standing together and helping one another! Thatโs one of the reasons I love it here! ๐๐๐๐ฆ๐ฎ๐บโ๏ธ๐ I shared ALL things purple Friday and Saturday! Today Iโm going to as well! Hoping you are both feeling well today! I love your slides btw! They are excellent! You did an amazing job Amy! Helps others to understand! ๐๐๐๐โ๏ธ๐บ๐ฎ๐๐ฆ Hugs! xoxo
May 13Reply
moongoddess7
@flutter_buys Thank you sweetheart, I'm trying to have a good day but it's not working out that way right now, but like we always do, we put on a smile and say everything is okay! I hope you are having a good day, as well as @aligirl1213! You ladies are so sweet and caring, thank you so much! We are all warriors!!
May 14Reply
waytruthlife
SIS, WE TRULY ARE SISTERS I TELL YOU, WE BOTH HAVE FIBRO!!!! YOU PUT THAT TOGETHER AS PERFECT AS EVER HONEY !!! SO SAD, YET OHH SOO TRUE HUH !!!! EVERYDAY IS A DIFFERENT ANIMAL ๐๐๐IM ALWAYS HERE FOR YOU IN SPIRIT SIS & IN PRAYER 24/7 !!!!
LOVVVVVE YOU !!!!! XOXOXOXO G ๐๐ถ๐ต๐ถ๐ต๐ถ๐ถ๐ต๐ต๐ต๐ถ๐ถ๐ต๐ต๐ถโ๐น๐
May 14Reply
aliciainbagland
Fibromyalgia? Yes, ME TOO!
Love reading all your posts!
Got tested for several things,
Until my Neurologist diagnosed me.
Yes, everyday is a different battle.
Letโs be friends and support each other.
Thank you for sharing! You are NOT alone!
May 14Reply
thebookmark
Thank you for doing this. I have fibromyalgia, lupus, gastroparsis POTS and PTSD. It is sad that people look at me and say โbut you donโt look sickโ๐.
May 15Reply
moongoddess7
@clarkmasterson I'm so sorry to hear you are in so much pain! I also have Lupus, PNES, Orthostatic hypo-tension, 6 bulging disks, degenerative disk disease, Fluid in my spinal cord, Severe depression & Anxiety, but so far I have beaten skin cancer, Cervical cancer & now working on breast cancer, I also have Factor V linden, I had a PE in my R lung that killed off half of that lung,
May 15Reply
moongoddess7
@clarkmasterson Some of the things I can't even pronounce. But I will keep pushing forward, I have 7 living kids & 2 grandsons! xoxo
May 15Reply
moongoddess7
@nayleesmom I'm so sorry love, my thoughts are with u xoxoxox
May 15Reply
thebookmark
@moongoddess7 thereโs a reason why they call us warrior moms. We fight battles that people canโt see.
May 15Reply
moongoddess7
@catalina789 You are such a doll! We can support each other through our pain and lift each other up because we know the pain everyday and night... I've lost all my friends, my family says I'm faking my pain, I have seizures & they say I fake them too. So Posh is my outlet! xoxoxo
May 15Reply
aliciainbagland
@moongoddess7 I feel itโs a monster. I have a hormonal imbalance. Almost died as of recently. I decided to FIGHT. I take NATURAL medicine only and I stay away from medicine. I started going to the gym. Iโm being STRONGER than ever now! I changed my diet. I highly recommend Omega XL for PAIN. FIGHT ON!
May 15Reply
bettyboony
Iโm a warrior ๐๐
May 20Reply
moongoddess7
@bettyboony I like that we can all be here for each other! xoxox
May 20Reply
bettyboony
@moongoddess7 ๐ค๐
May 20Reply
kimmysue1979
This is great thanks so much for this๐๐
May 20Reply
gemsrpretty
Amy this is absolutely amazing your graphics and sentiments are beautiful and so true๐๐ป๐ my favorite thing to say when someone says โoh you look greatโ I say itโs not my looks that hurt๐๐คฆโโ๏ธ๐คทโโ๏ธ๐I am so thankful to have found posh bc I had to retire for health reasons after 20 years of a fabulous career & this has given me a wonderful way to share my treasures & also meet wonderful women like yourself, Gayle and so many others. Sending you love & soft hugs๐๐ป๐ฆ๐๐
May 21Reply
moongoddess7
@gemsrpretty "soft" hugs, u definitely understand the pain. Being a photographer for so long, it was my passion, I was able to help people capture memories that they would be able to look back at & smile. When I couldn't do it anymore, it was heartbreaking, I had a huge clientele & they still contact me but I just can't do it. My last straw was when I had a seizure at a wedding. I was soooo
May 21Reply
moongoddess7
@gemsrpretty embarrassed (lucky I didn't break one of my expensive cameras) but I was lucky that I was really done with the wedding just getting some fun dancing pics, but after that I knew I couldn't do it anymore, I didn't want to disappoint any one. But when I found posh, I was so happy cause now I get to use my creativity on here & meet awesome people, which....
May 21Reply
moongoddess7
@gemsrpretty really is nice cause I lost all my friends, I guess no one wants to hang out with someone who can't go out. 98% of my family stopped talking to me too, they say I'm faking, that's hurts so much. I also have lupus, fluid in my spinal cord, 6 bulging disks in my back, very low blood pressure, so I pass out all the time which in turn the doctors took my drivers license away.
May 21Reply
moongoddess7
@gemsrpretty PNES my seizures caused from severe horrific abuse & trauma from my past... I have a list of things wrong that I can't even remember all of them. I have a blood disorder, Factor V leiden, I had a PE in my right lung and it killed half of my lung. I have beaten cancer 3 times, but I'm working on cancer again. But I have 7 living kids & 2 grandsons so I will push myself until I just can't... xoxoxox
May 21Reply
gemsrpretty
@moongoddess7 Dear beautiful moongoddess Amy I had to take a moment say a prayer and find my gratitude๐๐ป reading what you deal w daily breaks my heart๐ขI wish I lived near & I could help you in anyway possible & give you a big soft๐ค just to let you know you are loved๐ my sweet friend you are incredibly gifted with a beautiful heart๐
May 22Reply
gemsrpretty
@moongoddess7 You inspire me & I am awestruck by your tenacity & perseverance to be honest I canโt even imagine how you get through the day you my dear are amazing truly I mean that from the bottom of my heartโฃ๏ธThen I saw that you have 7 kids 2grandkids my goodness you look like youโre 30 years old! I get stressed out over my ๐พ๐พtwo dogs๐
May 22Reply
gemsrpretty
@moongoddess7 Anyway I know Iโm gonna keep running out of characters you are one of the most gracious & most kind to take the time to offer some feedback on my Photos I couldnโt believe it w everything that you have going on so thank you so much๐๐ป๐
May 22Reply
gemsrpretty
@moongoddess7 I will share share share ๐๐๐your closet when ever possible I want to support you & Will send the link to some of my friends too. Please know that you do not need to reciprocate share you have your hands full and I have the time. Iโm sending you lots of ๐positive vibes, love๐sunshine๐& hugs๐ค๐
May 22Reply
queenfish
@moongoddess7 Hi Amy! Iโm glad to have noticed this post and will be CONSTANTLY SHARING THIS INFO. Itโll be amazing to see how many warriors there are, bc a lot of us are able to hide it pretty well. I was finally diagnosed in 2002 after yrs of suffering.
May 22Reply
queenfish
@moongoddess7 Sadly, Iโm still suffering daily almost 20 yrs later...and believe me, Iโve tried EVERYTHING AVAILABLE IN EVERY AMT AND COMBINATION...and Iโm still struggling daily ๐ฉ๐ญ๐คชLITERALLY!! MUCH LOVE TO U ...and all u other Warriors I havenโt yet met ๐โค๏ธโค๏ธ๐
May 22Reply
chicksover50
I have Fibromyalgia too. You're not alone. Love youโค
May 23Reply
shaela91
๐๐๐๐im a warrior also ๐๐๐๐
May 29Reply
miaelva
@moongoddess7 thank you so much for these beautiful pictures. I too have suffered with Fibromyalgia for over 20 years but for 10 of those not knowing what was wrong with me. I also have had migraines over 20 years. I wish you many more days filled with joy and less pain. ๐๐ค๐๐โ๏ธ
May 31Reply
moongoddess7
@queenfish OH love, I'm so sorry to hear of ur suffering, I completely understand ur frustration. I only leave my house when I have therapy or a dr. appt. I just can't handle people looking at me all crazy parking in the handicap spots (Not me cause the dr. took my drivers license away because of my seizures) because I don't "look" disabled. I'm here for ya love!
May 31Reply
moongoddess7
@gemsrpretty Girl you have me tearing up over here, your words means so much to me! I do always have a lot going on but I love helping people. From the age of 9 I've been abused in ways that would blow ur mind. NO ONE was there protecting or helping me, not even my mom! So I always vowed to help & protect as many beautiful souls as I can. Gayle is one of them, I will do everything I can to help her!
May 31Reply
moongoddess7
@gemsrpretty I just feel like the more love I can put in this world, the more people I can help that just maybe more people will slow down and be kind to others. I mean the littlest things can make someones whole day turn around, like me reading what u wrote helped my day today! Thank you so much love!! I am very grateful to have a friend like you! xoxoxo
May 31Reply
moongoddess7
@chicksover50 I sorry for the pain u have to go through everyday! I love ya girl! xoxo
May 31Reply
moongoddess7
@shaela91 We will all stand together!! xoxoxo
May 31Reply
moongoddess7
@miaelva Oh sweetheart, I'm so sorry to hear about ur suffering! I have many medical problems but this silent disease makes all my other pain 100 x's worse! I wish the same for u doll, love ya!! xoxoox
May 31Reply
chicksover50
@moongoddess7 I stand with you.
May 31Reply
hannahisthrifty
Thanks for posting this and speaking up on behalf of the Fibromyalgia community! Without Poshmark, some of us might not have ANY income. Keep fighting the good fight; youโre not alone ๐๐ฅ
Jun 01Reply
moongoddess7
@chicksover50 Tall and proud girl!!
Jun 02Reply
moongoddess7
@hannahisthrifty We are warriors! You are right about the income too, I can't live off of my disability money, I need posh! xoxox It's so nice to meet another warrior!!
Jun 02Reply
nava1121
Selenium deficiency... western medicine doesn't treat fibromyalgia better to go homeopathic.
Jun 05Reply
myhauntedheart
So sorry to hear this friend!!! Thank you for your courage and for bringing awareness to the masses!!! Iโm sending love, light, and healing vibes your way in mass quantities!!! โค๏ธ๐ซโจ
Jun 06Reply
lynda721
Me too... And My Best PFF Karen @flutter_buys
Jun 07Reply
violetskys7
@moongoddess7 I too have Fibromyalgia and know full well its devastation. Wishing you more better days.๐๐๐๐๐๐
Jun 07Reply
mrsp_boutique
HI MOONGODDESS7!! YOU HAVE FOUND ANOTHER WHOS SUFFERS FROM FIBROMYALGIA AMONG ALL THE OTHER HEALTH ISSUES IT BRINGS! JUST KNOW MY PRAYERS GO OUT TO YOU AND I FEEL YOUR PAIN AND ANQUISH, AND ILL PUT YOU ON MY PRAYER LISTS TO SEND PRAYERS YOUR WAY! KEEP YOUR HEAD UP AND GET PLENTY OF REST!! WE ARE ALL WARRIORS IN SO MANY DIFFERENT WAYS! STAY STRONG AND KEEP UP WITH ME AND I YOU!! WE CAN BE SUPPORTIVE TO EACH OTHER!! LOVE YA GIRL!! SAUNDRA
Jun 11Reply
moongoddess7
@lillylife Getting my treatment done today! Wish me luck! xoxo
Jun 11Reply
moongoddess7
@saundrasaylor Hi Saundra, it's so nice to meet u, I'm Amy but everyone calls me ~ Moon! Let's stand together!! I'll be making a chat room for all of the chronic pain ladies out there to come and talk, share ur stories & NOT get told to not chat on someones listing or whatever, it will be a safe place for all of us, I'll tag u when it's up xoxox
Jun 11Reply
stevierae1717
I do too !!!!!!
Jun 11Reply
littlefire33
@moongoddess7 You are so inspiring. You stay positive, supportive and strong to everyone...including people like me that you have never even met.
Iโm keeping you in my thoughts as you keep,fighting on. Wishing you only pain-free, illness-free, healthy, happy and prosperous days๐
Jun 17Reply
a_fire_inside
Me too! I feel you!
Jun 19Reply
frankiec79
I have it as well. I try and fight it but sometimes it wins ๐๐
Jun 21Reply
moongoddess7
@frankiec79 It does win a lot, but we are all here together.. We are Warriors, people who don't have it don't understand it, but that's okay cause we can be here for each other I plan to make a post just for everyone who is dealing with Chronic pain, Tramas, mental illnesses, tragedies, ect... It will be a safe place where we all can share our stories. We share with each other what has helped or not helped. I'll tag ya when I get it up xoxo
Jun 22Reply
moongoddess7
@lillylife I'll always be here for you doll, it's a good day very time we wake up! Some people take that for granted but no me, not any more. I'm glad to be here every morning! xoxoxo
Jun 22Reply
moongoddess7
@littlefire33 @lmw0082 you 2 are so nice, I just know how mean some people can be, including my family and "friends", I don't have any of them in my life any more, just my kids, grandkids, and my pff's!! I'm happy to find great caring people on here, it really helps me get through my days! xoxox
Jun 22Reply
a_fire_inside
@moongoddess7 unfortunately there has been alot of ugliness around here lately. Know that you can always visit for a virtual hug. I'm so proud you told the haters "goodbye" in your life. You just don't need that. Keep your babies and the good vibe people close : )
Jun 22Reply
kaelavae
I love this ๐ Iโm also a fibromyalgia warrior! I was diagnosed at 17. Its crazy how many people donโt know about fibromyalgia or simply donโt believe in it ๐ญ hope you all are doing well!
Jun 23Reply
jking9515
These are amazing! Thank you for helping to spread awareness.
Jun 24Reply
trunkles
Hey Moon! I hear you're not feeling well... I don't need any help with anything, just wanted to send you some love. Hope you feel better soon! ๐๐๐
Jun 26Reply
moongoddess7
@trunkles Hi sweetie, I'm sorry I haven't been in chat for a bit, I am in a lot of pain & I clam up when that happens, it's my youngests birthday today she is 12 now! She is everything to me, she was sexually molested when she was 7 so her & I r really close. She is so depressed today!
Jun 26Reply
moongoddess7
@trunkles I'm going 2 spend my time today with her so I won't be able to share to the parties, if someone has the time I would be so grateful. Any shares today would be very appreciated. I think I will make a post for a sale for her birthday, I'll tag u in it! You mean a lot to me! Thank you for always checking in on me love!! xoxo
Jun 26Reply
workin4mygirls
Count me in as another fibro member. Amongst other issues I also have interstitial cystitis-fun fun fun!๐คฆ๐ผโโ๏ธ
Jun 26Reply
tristaleigh04
Love you and my sister Kim loves you your amazing beautiful ๐๐โญ๏ธ๐๐๐
Jun 28Reply
everboutique
Thank you for posting this and educating. ๐ It sounds like self care is important and you do what you can in spurts as energy decides. However you are a gifted and strong lady to create such a beautiful closet and your graphics are AMAZING! (Btw, what app is that?) If I can ever do anything for you Pal, please let me know. Thank you for your openness, and hard work. You are an awesome game master and person. ๐๐งก kashi
Jul 06Reply
peacegoddess
โค๏ธ๐
Jul 10Reply
yayalisa67
I wear purple too. The struggle is real!! ๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐๐
Jul 12Reply
moongoddess7
@lilmissy6hi doll, thank u for leaving me a message, I'm sorry to hear about what you are going through ๐ I like meeting pff's that know what I'm going through. But the best part is knowing that we are not alone, I'll be checking out ur closetโค๏ธ
Jul 12Reply
moongoddess7
@peacegoddessโช
Jul 12Reply
moongoddess7
@yayalisa67 it's nice knowing we are not alone โค๏ธ
Jul 12Reply
peacegoddess
โช๏ธโฎ๏ธโฃ๏ธ
Jul 12Reply
peacegoddess
I will be in purple attire today.๐
I hope your sunrise has you off to a good start and your day is filled with light and loveโฎ๏ธ
Jul 12Reply
that1mom8506
thank you for all that you do to help us find a cure for this debilitating disease, that's a pain in our rears day in and day out! #mighty warriors.. also wear purple in remembrance of Lupus day which is in May, most women with lupus will have fibromyalgia but won't even know itโฃ๏ธ so I pray for all those men and women out there that are suffering just like myself keep up the great work and may God heal us allโฃ๏ธ๐
Jul 13Reply
moongoddess7
@that1mom8506 I also have lupus, so that makes sense, nice to meet you fellow warrior!
Jul 13Reply
cmschrib
@moongoddess7 Thank you for posting this. I'm so sorry to hear about your health but sis you're not alone, although it truly feels that way no matter what anyone says I am a fighting warrior as well. I just wanted you to know that. My thoughts and prayers go out to you.
Jul 15Reply
moongoddess7
@cmschrib Oh doll, Thank you for commenting on here. It's nice to know there are so many people out there that actually understand! Love & light to you sweetheart!
Jul 15Reply
ambentzen
These slides are awesome. I too have fibromyalgia and I also have ehlers danlos. Most people donโt understand because I look normal. I am not. We definitely need more awareness and for people to understand there are all kinds of illnesses and they all arenโt immediately visible. Stay strong and keep fighting ๐๐๐๐๐
Jul 15Reply
maucri
Hi Amy I just saw this post & it is wonderful! U sound a lot like me but you have quite a bit more going on! I also have fibromyalgia, myofascial pain, lupus, shogrens, TMJ, POTS, autonomical failure, seizures, lymphocytic coliticis & 3 other problems with belly. I pass out constantly due to low blood pressure, it just wonโt stabilize, so annoying!
Jul 16Reply
maucri
But my family believes me, unlike yours! That is terrible, I feel so bad for you, please buzz me if you ever need to talk. U made a purchase from me, remember the 3 shirts for your gurls? So if you have any help about the passing out, Iโd really appreciate it, pretty much been housebound now since last July. Itโs just awful n I Posh too lol. Canโt go out because I scare people & used to exercise but pass out!!!! Easier to stay home!!! Ok well hope you feel better & prayers to you!๐
Jul 16Reply
moongoddess7
@maucri Hi doll, I'm so sorry to hear about ur problems, that's why I made this post for anyone to come and share & not get yelled at for talking on a post. I wish I had some help for u about the passing out. I pass out multiple times a day. They took my drivers license so I'm housebound as well. Posh is my outlet! It used to really suck, but I came to the sense that it's better than people talking about me, one time a kid was recording my having a seizure at the docs office after..
Jul 16Reply
moongoddess7
@maucri that, I just stay home, I only leave when I have dr appts. I can't handle waking up to people surrounding me, or calling 911 or laughing or taking pictures or videos.. I just can't handle it. my anxiety goes crazy when I have to leave the house. last week we went to a movie and on my way out I passed out, it was a crap show. I hate it!! xoxo I'm here for ya tho doll! Vent away anytime! xoxo
Jul 16Reply
moongoddess7
@ambentzen Thank you, I have the same, no one but my kids believe that I have ANY problems at all. They say I'm pretending just to get disability, man I would change shoes with any of them in a heartbeat! They have no idea. The looks I can't handle, when we park in a handicap spot old people look at me & shake their head even tho I'm in a wheelchair!! So sad! We are all warriors!!
Jul 16Reply
moongoddess7
@jmandi7180Oh Hun I'm so sorry to hear about your medical problems! I guess the way I see it, until someone has walked in one of our shoes they can't possibly understand! I just wish the ones that don't believe would please keep it to themselves! I'm right there with you on the bed & shower... ๐
Jul 18Reply
avengedbeauty
OMG can I steal this? I too have fibro. And right now I'm going through a hell week of the fatigue. I just know a flare is coming. I can feel it. I'm still somewhat new to the diagnosis. But I believe I've had it for quite some time. Oh! And I wanted to add some stuff to your bundle but I was already scared the box was too heavy lol
Jul 19Reply
moongoddess7
@avengedbeauty Sure doll, just please give me credit for the pics!! We stick together!!! We r warriors โค๏ธโค๏ธ ๐๐๐
Jul 20Reply
whatsleft
@moongoddess7 Hi! I am right there with You! I also have Lupus and RA! No one gets it except us that have these immune system problems! I just smile when someone tells me I do not look sick! They just do no know! Have a wonderful day and just keep smiling!!๐๐๐๐
Jul 20Reply
edgestyle
Awesome presentation of Fibromialgia! ๐๐ผAmy you Rockโผ๏ธ
Jul 20Reply
littlefire33
@gpsilver60 One of my dearest friends on Posh who is currently in the hospital and hiding her phone to sell/share/support. She has a gazillion friends, epic life and posh advice, and most importantly....a fighting spiritโฅ๏ธ
Jul 21Reply
moongoddess7
@whatsleft If they only lived 1 day in our shoes!! We are warriors!! Strong & Proud! ๐
Jul 21Reply
moongoddess7
@edgestyleThank you doll ๐
Jul 21Reply
moongoddess7
@littlefire33 Love you are a very special soul! I am very happy to have run across our Dream Team, it wouldn't have happened if it weren't for you! I love you girl & yes I'm still hiding my phone lol! They haven't even noticed it's gone! Lol ๐ Hope to be home tomorrow! ๐๐๐
Jul 21Reply
littlefire33
#rebel Thatโs just one of the zillions of reasons I love youโฅ๏ธ
Jul 21Reply
avengedbeauty
Hey love did everything arrive okay? I'm a bit worried. My boyfriend put the package together for the first time cuz my pain so I'm worried about how he did. I wrote your note of course though <3
Jul 23Reply
moongoddess7
@avengedbeauty I just rated ya! I'm sorry that it was late, I have been in the hospital! Thank you for everything!
Jul 24Reply
avengedbeauty
thank you so much for the amazing love note!!! I was actually thinking of you when I went shopping last! lol
Jul 24Reply
avengedbeauty
@moongoddess7 Someone reported the one I put on page counterfeit....
Jul 26Reply
moongoddess7
@avengedbeauty lol, seriously!! I swear people have nothing better to do. There is nothing counterfeit about a post of information!
Jul 26Reply
moongoddess7
@avengedbeauty Did you have to take it down?
Jul 26Reply
avengedbeauty
@moongoddess7 They took it down. I know who it was. so don't fret about it. I'll just have to find a new one I guess.
Jul 26Reply
bella_row
YOUโRE FABULOUS AMY. STAY ๐ช๐ฝ STRONGโค๏ธโค๏ธโค๏ธโค๏ธ
Jul 31Reply
yogijennypenny
You are never alone. I admire your advocacy. I have severe Crohnโs disease and almost never looked sick for 20 years before I had 3 organs removed. I understand the struggle, love. Our diseases are different but the daily struggle was much the same. Stay strong, brave warrior. ๐ช๐คโจ๐
โ๏ธ๐
Aug 02Reply
moongoddess7
@yogijennypenny Love, Thank you for sharing your suffering with me, you're right we don't have the same illness, but the same pain nonetheless! We are stronger in numbers love!! You stay strong as well!!
Aug 02Reply
jojomall
Hello Moon, I too have fibromyalgia. I take no medication for it now, for I mostly have beaten it. No regular doctor helped me, it was a functional medicine Doctor who lead me in the right direction. My body was attacking his own self because of my food sensitivities that I did not even know I had. I had to cut out all dairy gluten eggs and some beans and sugar from my diet. It was slow, but I did notice improvement within 2 weeks after my lifestyle change. complete relief in 3 mo.
Aug 03Reply
jojomall
I also have some mild thyroid problems that contribute to it, that now I am on medication for through the same doctor. My regular doctor would not acknowledge any thyroid problems because it did not show up on my regular blood tests enough to warrant treatment, even though I checked off every box on the thyroid questioner sheet. It takes a really good doctor help you. And the lifestyle change is very hard to stick to. At times I find myself cheating and then I pay the price again with flareups.
Aug 03Reply
jojomall
Anyway I just wanted to let you know that you may want to try new path to see if it works for you also. Insurance does not pay for many of the tests, So it is expensive but my health is worth any price. Good luck to you๐
Aug 03Reply
moongoddess7
@thebookmark I'm sorry to read about your condition doll, Here is a safe place I created for all of us with any kind of chronic pain!! xoxo We are all warriors here for each other!! xoxo
Aug 04Reply
thebookmark
@moongoddess7 thank you so much for having this platform for us. On top of fibromyalgia I also have lupus, gastroparsis, POTS, type 2โdiabetes and PTSD. My blood pressure has been running 60/40 range and that leaves me feeling exhausted ๐ด
Aug 05Reply
yorkietimestwo
I'm new on here & just came across your closet.You are BEAUTIFUL & talented! I NEVER talk about this but I have had severe scoliosis and ddegenerative disk disease since I was a child..I TOTALLY GET LOOKING NORMAL & FEELING LIKE CRAP & putting on a smile & pretending all is good just to not have to explain! I can COMPLETELY relate to just about everything you said & I just want you to know I like all the others here think your awesome for creating this place & writing these posts!!โคโคthank you!!
Aug 06Reply
moongoddess7
@yorkietimestwo Oh sweetie I'm so sorry to read about your pain! I also have degenerative disk disease, lupus, PNES (seizures) Very low blood pressure ect.... You are with friends now! We all stand strong together!!
Aug 06Reply
yorkietimestwo
@moongoddess7 thank you so much! I honestly never really tell people or talk about what I go through because I feel like most people just wouldn't understand OR think it is "real" because I look "normal" on the outside (as long as you don't see my back,which I keep covered๐) So it feels really good to see what your doing & meet somebody so kind & understanding,really..Your kind words a minute ago really made me feel good! I'll keep in touch..thank you,bless you,goodnight beautiful๐
Aug 06Reply
genevesca
@moongoddess7 Hey beautiful Sis. Hope I'm catching you on a well-feeling day. I also have Fibro, epilepsy (tonic-clonic & psychogenic seizures), severe anxiety, PTSD, and all the many diagnoses that come fibro. I recently was diagnosed with pityriasis rosea, too (it just looks ugly). Us warriors are actually the strongest people even though people think otherwise, because physically and emotionally we deal with SO much.๐ค๐
Aug 09Reply
starsinhereyes
This is a beautiful thoughtful post! I think awareness and knowledge are key!!! Thank you for sharing something so personal! I have fibro and degenerative disc disease too! I also have Ankylosing Spondylitis.......it effects more people than Rheumatoid Arthritis but no one knows what it is! It starts in your early twenties not when your old n gray! I never share this but felt inspired!!! Much Love โฅ๏ธ๐๐ค
Aug 10Reply
moongoddess7
@yorkietimestwo I completely understand what u mean, I don't leave my house (except 4 my dr. & therapy) because I just don't need the stares & feel the judgement. Once my hubby talked me into going 2 a movie not 2 long ago, after the movie when I was going down the steps I had a seizure. When I came too, I could just feel the eyes staring at me without even looking. I'm not going back! I like having a place 4 all of us out there 2 be able 2 openly share without judgement! I'm here for ya!
Aug 10Reply
moongoddess7
@genevesca Yes sister you are so right, my own family (except my kids) don't talk to me, which I'm fine with now because they think I'm faking because I "look" ok. It's very sad. My own parents don't even believe me, so I just tell people if it comes up that they have passed, because that's how I feel. I plan to write a book about my life. They all don't know it yet but they will!! xoxo
Aug 10Reply
moongoddess7
@starsinhereyes Oh I'm so glad you shared. I can't even remember what I all have, (which is one of my problems) but it's more than I can even believe. I have been so independent my whole life, I have been blessed with great kids & I even have 2 grandsons. But now the dr.s won't even let me drive, I feel like I so useless as a person. Heartbreaking. I was.....
Aug 10Reply
moongoddess7
@starsinhereyes a great photographer and I can't even do that anymore so I use my photography & creativity on posh. If I didn't have this as an outlet idk where my mind would be! xoxoxo
Aug 10Reply
starsinhereyes
@moongoddess7 yeah Posh has really helped me to have something to be proud of! I'm glad you've found this outlet too! Hope someday to have as giant & cool of a closet as yours! โฅ๏ธ๐๐๐๐๐
Aug 11Reply
yorkietimestwo
@moongoddess7thank you your so kind! I am so glad I found your closet!โคโคโคTara
Aug 11Reply
grace4d
Hi Fibro warrior! I don't feel like one, lol. Often barely get out of bed. I've been 22 yrs with it but not properly diagnosed until 10 yrs ago. b4 that they told me I had myofacial pain. I've trouble taking most meds, I break out etc. I wear flutter_buys fibro Warrior top she has. Awareness & prevention should be researched by Drs! If we could prevent this 4 others? Wow! You've said it all on how life is 4 us! Thank u! ๐โโ๏ธ๐ปDee
Aug 13Reply
convintageous
Hi Amy and all you brave beautiful women. I never really knew what fibromyalgia was until I read this feed which had me in tears. I will share the information as much as I can in support of ur efforts for public awareness and to hopefully someday soon find a cure for this horrible insidious disease. You are all remarkable & so strong. My background/ family
Aug 18Reply
convintageous
situation is similar to urs Amy so I do understand suffering alone and in silence. I have a pair of cool purple Lands End clogs/mules listed. I think they are size 8, need to double check. I want to give them to anyone from this group who can fit the size & would like them. Iโm going to change the price to $3 and write these โfor a warrior w/ fibromyalgia onlyโon the listing. God Bless you all๐๐๐
Aug 18Reply
moongoddess7
@convintageous You are such a sweetheart!!! I will spread the word doll!! xoxoxoxox
Aug 19Reply
convintageous
Thank you๐Iโm on vacation so not on too much over the last couple days. Youโre the sweetheart. ๐๐so glad to know you
Aug 20Reply
moongoddess7
@echoskyhorsei hear ya sweetheart, I only leave my home 1 time a week for my Dr. Appt. Disability isn't enough when you have 7 living children & 2 grandsons and a house bills ect... Posh has been an excellent outlet for me! If you need anything lmk love! ๐๐๐๐๐
Aug 20Reply
lulababyb
YES!!!!!!โคโคโคโค THANK YOU!!!
Aug 22Reply
uptowngirl69
Hi, I , like you, live with chronic pain. I have major lower back issues. They want me to have surgery, but it's such an iffy procedure. I don't know if I'll be better or worse. It's a chore to even get out of bed every morning. It's a chore to try to get sleep. I've lost friends because I can't be the life of the party anymore. I live off Ss and we all know how much that pays, so that's why I joined Poshmark. To supplement my income. I feel your pain, and I will pray for you sister.
Aug 26Reply
aubreyau
๐ Me too. Thank you so much for posting this. I've been wanting to add this info to my about me but not been sure how, you sure made a beautiful post about it. I am either going to make my own or credit you if I use yours. Love! ๐
Aug 26Reply
poshitnow
Hey cutie, how are you these days? Did you have a nice summer?
Aug 28Reply
moongoddess7
@poshitnow I'm sending you a post that will tell you how I am doing love!! xoxoxo
Aug 28Reply
moongoddess7
@aubreyau That's fine love and thank you for your kind words!! xoxo
Aug 28Reply
moongoddess7
@thecoachstore I created this post for all of us out there that live with chronic pain. I have a lot more then fibromyalgia but it doesn't matter where the pain is coming from! I just wanted a place where we can all share our stories in a safe place. We r all here for each other doll!! We r warriors together we can get through one day at a time! xoxoox
Sep 01Reply
lemurianmuse
@moongoddess7 Hey There. Iโm Ginny in the party players group. Tell me more about your fibro. The reason I ask is that I was diagnosed with that over 29 years ago and came to find out it was Lyme disease plus 4 co-infections. I also have Lupus, and RA. All these problems are linked. I can hook you up with some good reading that might help you feel better.โค๏ธ
Sep 03Reply
moongoddess7
@lemurianmuse Hi Ginny, it's nice to meet you! U have a great closet! I also have lupus, factor V linden (blood disorder) I have PNES, (Seizures), Orthostatic hypotention (low blood pressure), I have fluid in my spinal cord at the base of my neck, 6 bulging disks in my back, Right now I also have bladder cancer, just found out that I have skin cancer for the 2nd time,
Sep 04Reply
moongoddess7
@lemurianmuse I have beaten skin cancer before, as well as cervical cancer & breast cancer. I need surgery on both of my knees because of all the falls I have torn (girl I am not even going to try to spell it) I have a bleeding ulcer... there's more I just can't think which is another problem. Oh I had a PE that killed off half of my right lung from one of my falls. I would love some good reading love, ty for offering!! xoxo
Sep 04Reply
jerik
I love this, I never see any of this sort of stuff, but I really donโt know anyone with the illness either, except for myself...this was really a great display!
Sep 04Reply
tracisposh
Fibro girl here๐! #fibrosucks
Sep 04Reply
lemurianmuse
@moongoddess7 seems we are of the same tribe. I also had a PE. How I survived Iโll never know. Praise the good goddess. Lol. What is it with us? I see I naturopath in Indonesia for consults. He told me my body is actually held by โGodโ because thereโs is no way in hell anyone could survive the Shit I did. I think you are the same. Blessings to ya.๐
Sep 08Reply
moongoddess7
@lemurianmuse We r from the same tribe sister! My doctors said I shouldn't have survived my PE, it was killing off my R lung, I'm glad they were able to find it, it did kill off half of my R lung, so now there's painful scar tissue & fluid surrounding that area. That's also how they found out I have Lupus & Factor V linden blood disorder. But because I have seizures and...
Sep 08Reply
moongoddess7
@lemurianmuse Orthostatic Hypotention which is my blood pressure is so low I pass out all the time. So They took my drivers license! It seems as if someone is building walls in front of me over & over but I always know our Goddesses will be there for me. I talk to Luna all the time. In my current situation, I's stuck, but I talked to Luna at the last full moon & asked her to .....
Sep 08Reply
lemurianmuse
@moongoddess7 Im Here anytime for you. My body is totally attacking itself. Iโm currently in liver failure and have right sided dilated cardiomyopathy which rears itโs ugly head now and then. I am weaning myself off all the meds I take (with guidance of course). Western medicine has failed me terribly and many others. Iโm also an RN. Iโm starting acupuncture next week with a traditional Chinese medicine doctor. Something tells me that this is what I need.
Sep 08Reply
moongoddess7
@lemurianmuse bring people to my closet for any purchase, not asking to get rich just to save up enough money to allow me to get my kids out of here. I've had abuse of all kinds since I was 9, I believe most people would have turned to drugs to cope but I turned to Luna for guidance! I have no "blood" family any more, they can't handle my medical problems! Which I'm okay with because..
Sep 08Reply
moongoddess7
@lemurianmuse I have all of my goddesses like u & my pff's, IK I can't reach out & touch all of u but IK that u r all here for me! I'm grateful for the purchases, the shares... but mostly the Love everyone has been giving me. I'm going to leave this state, I feel I belong here, this isn't my path, I must have veered off of it at some point, but as soon as I have enough $ saved I'm out of here!! It's really nice to know u, many Blessings to u as well!
Sep 08Reply
lemurianmuse
@moongoddess7 awwwww itโs great to get to know you. We have things in common. My husband and I are leaving Pennsylvania soon all. Like you said, itโs not the path we desire. I have met some of the finest souls here. True, beautiful people who have suffered immensely. I feel like we were all bound to meet to love and support each other. I also have lost so many family members because they donโt want to be supportive. Itโs ok. Iโve learned to release them with love.
Sep 08Reply
lemurianmuse
@moongoddess7 there are plenty of people that DO love And understand. So happy we talked. Again, anytime you need an ear to vent or just to listen, Iโm here for you and I understand what it is like to lose your health. You have a beautiful, loving spirit. I feel very blessed to know you. ๐๐๐๐๐
Sep 08Reply
hepcatt
Look at Dr. Richard Horwitz and Dr. John Bergman on YouTube when you get a chance. Those with Fibromyalgia are basically "Doctors" in their own right, after years of grueling medical misdiagnosis, so I'm just guessing you have more than a basic understanding of medical
Sep 12Reply
hepcatt
Terminology under your belt. . . You might find some of the information on those channels interesting if not personally useful. Not trying to pry, just ran across this listing and thought I'd share with you some information that has been helpful to me on my own journey๐. Best-Ella
Sep 12Reply
pdfpposh
Wow... how cool to meet others in the same situation. I have had fibro since 1993... it was barely even diagnosed back then!
Sep 13Reply
msking711
I have fibro too. And I think this awareness post you have here is awesome :) Sending you many spoons love ๐โค๏ธ
Sep 25Reply
yjl
I do too... sending good vibes your way hope you have a good day ๐ค๐ค๐ค
Sep 30Reply
findzbyapril
Amen! ๐๐ฝ๐
Oct 03Reply
ses54
@moongoddess7 Omg I didnโt know you also had Fibromyalgia? I have that awful disease too! โน๏ธ๐ข๐ Gentle Hugs ๐ค to you! ๐๐๐๐๐
Oct 09Reply
trendyuptop
๐๐Hi Amy, I'm Jennifer or @trendyuptop! I was diagnosed with Fibromyalgia about 15 years ago when very little was known about it. More recently I've added a Lupus diagnosis on top of that. It is a truly tough disease, but we are tougher sister. It has changed my whole life, and the way I live it, but there are certain things I have found that help. I do have a Rheumatologist that believes in all things homeopathic as well. Happy to share sometime. We are the WARRIORS! Blessings!!๐๐๐๐
Oct 13Reply
moongoddess7
@hepcatt @trendyuptop @ses54 @findzbyapril @yjl @msking711 @pdfpposh
Hi Sisters! Usually I am on top of getting back to comments, so sorry. hepcatt Thank you for that info, I will certainly be looking that up. Jennifer, I also have Lupus, I've come across a lot of warriors that have fibro & then find out about having lupus! Hummm I wonderful if they are some how connected. cont....
Oct 13Reply
moongoddess7
I have so many medical things wrong, I hate the PNES, those are sudo seizures, that brought on by stress/trauma, I've been abused in EVERY way since I was 9, so they believe that the PNES (u can just google those letters if u r wondering about it) came about from all the trauma I went through & never resolved or had closure from them. I'm sooooo glad I posted this. I mean if I posted something.. cont...
Oct 13Reply
moongoddess7
about everything that I have my closet would really be a downer, but I chose fibro because there are way to many people (including doctors) that say it's just a made up disease, but I guarantee that if they lived even 1 day in our shoes they would believe. I no longer have family (except my kids) or friends outside of Posh but I'm okay with that now because, I've learned that the people u can reach out... cont...
Oct 13Reply
moongoddess7
and touch, normally don't have a clue about the constant pain we live with. I have tried so hard to mask my pain when I'm around people but, I had to accept that my life no longer will be the same. So I finally gave into the reality that my life has changed & I need to cope with it! That's when I posted this & when I look up & see all the messages it reminds me that I'm not alone! We all have each other! xoxoxox
Oct 13Reply
msking711
@moongoddess7 You are definitely not alone. My fibro (not to mention C-PTSD, blood disorders, etc.) has cost me many relationships because people's first inclination is to try to "fix you" and when they can't they either accuse you of faking it or blame you for it. But there are people who get it, like the ones here. I'll never understand why some say it's a "fake disorder" just because we dont know everything about it though.
Oct 13Reply
msking711
@moongoddess7 We used to think that about schizophrenia too and a lot of people got hurt because of it. Either way, keep your head up. We might not have a cure but there are MANY ways to manage it. โค๏ธ
Oct 13Reply
trendyuptop
Exactly!! We are not alone. I have found many here on Posh. I never had children as I could not, and that is difficult for me. I do suffer from PTSD, pretty severe trauma from some past events. In my heart I believe that certain trauma impairs our immune systems enough to encourage these painful diseases. And since I live in Michigan, the inside of my house is very familiar.
Oct 13Reply
yjl
@moongoddess7sending gentle hugs for you sis โคโคโค๐ค๐ค๐ค
Oct 14Reply
gemsrpretty
@moongoddess7 Hi beautiful๐I was just stopping by to say hello to give you a virtual soft hug๐ค let you know I always keep you in my thoughts and prayers๐๐ปI did a few shares๐ never feel the need to reciprocate๐Iโm here for you so doing some quick shares I hope life getting better for you ea day๐xoxo
Oct 14Reply
moongoddess7
@gemsrpretty You are so sweet! Thank you for checking in on me!! It means a lot to me! Well I have 2 weeks from today before the movers get here. I have to pack, this is crazy. I'm trying to sell some of my bigger items, I sold my washer today! I can't believe how much inventory I have for posh. Not just the stuff posted but I have at least 4 to 5 x's more not posted. I just need thing to start selling! My daughter...
Oct 14Reply
moongoddess7
@gemsrpretty went to home coming tonight so I had to help her get ready! Love her, she looked so beautiful!! I'm so exhausted, I've going around the house trying to see what I all have to get rid of. My whole house is a huge mess.
Oct 14Reply
supb
There are so many of us Fibro-Girls on Posh! Many u always have enough spoons. :)
Oct 21Reply
terrythemom
Amy- these are amazing, I know you are going through an even more unbelievably - unimaginable situation right at this moment but I wanted to let you know I am a silent suffering warrior-as well. In addition I also have a rare an only partially diagnosed auto immune disorder. @moongoddess7 you have another sister in heart and arms.
Oct 23Reply
nycide
Thank you for all those words No one can understand the loss of what was before and how hard it is to accept within yourself Iโve lived with this for over 20 years when no one knew what it was and I count myself lucky to have found a doc right away instead of going undiagnosed for years ๐
Oct 24Reply
splurgetherapy
I have fibromyalgia as well. My best wishes n thoughts go out to u!
Oct 24Reply
sweetjess1979
Gentle hugs fellow fibro warrior๐ we just have to take it one day at a time...no one truly understands the pain we endure every single day so itโs refreshing to see I can also find support here on Poshmark as well!๐
Oct 31Reply
sweetjess1979
I feel so blessed to have stumbled upon your closet/page. It definitely was meant to be cause today is a really bad pain day for me but reading these other comments from our fellow fibro warriors have uplifted my spirits. Hope your having a reduced pain day today!
Oct 31Reply
butterfliesposh
This Share party was meant to be. I not only have a new PFF but also a Purple Warrior Sister. I also suffer severe Fibro. Nerve damage, Osteorthritis. And I just recently was assaulted and now suffer PTSD and Dysthymia. So I decided to take up thrifting as a hobby and now I am here. Keep fighting and be strong. :)
Oct 31Reply
jadrch
@moongoddess7 ๐๐๐
Nov 10Reply
lynda721
@moongoddess7 Hi Amy. Just wondering if the change in seasons effects your pain level. I usually get wiped out for 4 to 6 weeks between October + November. It also happens during the transition from winter to spring as well but, not as badly and for a shorter period of time. Just wondering if seasonal weather changes affect your Fibro as it does mine. ~Lynda ๐
Nov 11Reply
moongoddess7
@butterfliesposh Oh doll, this is why I posted this, & fybro is only 1 of many conditions I have as well but we both know that the fybro intensifies all of them! I wanted for everyone who has any pain condition to have a safe place to talk without getting told to not chat on their post!! We are all here together, strong as we can be & here for each other when we can't!! ๐
Nov 11Reply
moongoddess7
@lhaag721 Hi Lynda, Hun yes it really does! My body tells me to stay in bed but my bills tell me I can't! It also gives me severe headaches everyday, my ears hurt badly & I have had the worst sore throat for going on 4 months now! It sucks!!
Nov 11Reply
moongoddess7
@sweetjess1979 Hi love, you r so right on, I don't even talk about my pain to people any more, because they look at & don't see someone who is having pain everywhere but those r the days when I wish I could trade shoes for just one day so they know the pain we are in everyday!! We stick together!!โค๏ธ
Nov 11Reply
lynda721
@moongoddess7 I get migraines much more often during the winter. If there is a storm coming across the country or coming up from the south (Iโm in Connecticut) I feel it immediately. I feel like a human barometer. Iโve gotten better at taking meds at the first sign of a headache but, there are many times that they do not work and I just have to ride it out.
Nov 11Reply
lynda721
@moongoddess7 I hope you get some relief sometime soon. Although we both know that any relief is temporary. Itโs just nice to feel human again when you have a good day. Thanks for responding. Itโs unbelievable how many Posherโs there are with Fibro. Take care, honey! ~L โค๏ธ๐โค๏ธ
Nov 11Reply
sweetjess1979
@lhaag721 Omg! YES! My fibro pain as well is the worst during these months while the weather is changing and getting colder. Anytime itโs time for a new change of season Iโm in total flare up mode.๐ But I truly hope your having a reduced pain day today!
Nov 11Reply
armymom92981
May I share your fibromyalgia posts Iโd like to send them to my sister who has this.
Nov 17Reply
armymom92981
This really hurts my heart where it hits hard I have a sister a year younger than me who suffers from this..I have often had taken her her because she didnโt want to be alone I sat beside her in a hospital bed as she waits to get a shot to relieve her pain she doesnโt even have the energy to stand or even open the car door..thank you for these as it brings tears to my eyes watching my little sister in so much pain. ๐
Nov 17Reply
moongoddess7
@armymom92981 Oh of course love, would you be okay with just giving me credit for the slides?
Nov 17Reply
moongoddess7
@armymom92981 I feel really bad for ur sister, I have lupus, 6 bulging disks in my back, fluid in my spinal cord, factor v linden, seizures ect... the fibro. makes all the pain from a long list of disabilating medical conditions I have so much worse!! Poshmark is the only way I can make $ for bills. I can't even drive anymore.....
Nov 17Reply
thatssovogue
Hey luv! I havenโt checked in on/with you in a bit. Iโm so thrilled youโre closer to your goal. Iโm so proud of you and your STRENGTH. Iโm off to help fill up your map, I love your ๐ก ideas and artistic inspiration. Iโm not sure if Iโve asked you before. May I use your slide with this Fibromyalgia? Iโll of course credit youโค๏ธโค๏ธ ๐บRenรฉe much love to you
Nov 19Reply
moongoddess7
@thatssovogue I'm sorry I'm just seeing this, but YES of course! I want this info out to as many people we can reach! xoxoxo Much love back to you sweetheart!
Nov 20Reply
catsdraggeditin
I have it too. It can be a beast. Sending gentle hugs. ๐ป
Nov 27Reply
lindachris
@moongoddess7 Liked followed shared ๐พ
Jan 20Reply
moongoddess7
@lillylife you're welcome! I just hope to inform others that see this horrible disease so many of us have isn't made up! People in my own family don't care, they just don't understand how much pain we all have everyday all day! Blessing to you love!
Jan 20Reply
nikkinak22
๐These are great!!! May I share them to my page? Youโre not alone...any of you! I fight this battle too and weather changes are a huge trigger. I love you all & wish you many pain free days and some day this disease will be a bad memory that we overcame. ๐
Jan 20Reply
ses54
I also have fibromyalgia ๐ขโ๏ธ๐๐
Feb 03Reply
lindachris
@moongoddess7 ๐
Feb 03Reply
dgrmills18
Sadly, I have endured Fibromyalgia for 19 years and it only gets worse as time goes by!! I hope & pray there will be a cure for its symptoms for those who are just now being diagnosed with it. My prayers go out to them!! ๐๐ผ๐๐๐ผ
Feb 04Reply
ccathscloset
I too have FIBROMYALGIA!! Diagnosed finally in 2004 ,I also have Epsteins Barr Virus this Diseases is best known for causing mononucleosis, but less often it can lead to other diseases, including:
Guillain-Barre syndrome
Feb 18Reply
ccathscloset
Certain cancers, including Burkitt's lymphoma and cancers of the nose and throat
Studies also show a link between EBV and multiple sclerosis (MS), but more research is needed to determine if the virus can lead to MS.
Which is why I have only 40-something items posted on my page and like 50 more to go..
Feb 18Reply
ccathscloset
Hang in there... I knew when I first started sharing your items on your page that there was something linking us.. ... I could feel it. weird huh? Just listen to your body always, and take care of yourself the best that you can xoxo
Feb 18Reply
shortydoucette
I suffer from fibomyalgia along with 23 other diagnosed conditions. I'm on alot of prescription meds. They thunk since I'm on these meds I shouldn't be in pain. How wrong they are. I've been suffering really bad the last 3 daus. I make custom handmade jewelry and sometimes it is so hard to do. Thanks so much for spreading the word.
Feb 25Reply
moongoddess7
@ccathgo Hi love, I am just seeing this. I have been in so much pain lately itโs been a struggle to get things done.
I just canโt believe some days how this happened, I was always so healthy, then about 9 years ago little things started, then more symptoms. I actually got so sick of going to the doctor just to be sent to specialist after specialist...
Feb 25Reply
moongoddess7
@ccathgo I was fighting going on meds. I thought Iโm strong Iโll get through whatever it is, I just blamed everything on stress. Then finally one day I was sitting in my room & I just couldnโt get myself to do anything, I had energy, & I just felt numb. So I finally went back to the doctor & this time I had everything written down. Lots of questions, I wasnโt going to keep getting passed around any more......
Feb 25Reply
moongoddess7
@ccathgo after a few years of finding different things wrong with me, from total different specialists, I was on so many meds. Nothing was taking the pain away. I was getting so angry because once one of the doctors found something I stopped worrying about other things, I ended up with cervical cancer 1st. And it just went down hill from there.... then my oldest got pregnant & I didnโt care about my pain...
Feb 25Reply
moongoddess7
@ccathgo I just did my best to ignore it, my blood pressure was always perfect 120/60, it just kept getting lower and lower, there were times that they couldnโt understand how I was not passed out. One time they wouldnโt let me leave the clinic.. I told them โI have to go grocery shopping itโs double coupon dayโ. I made them let me leave, but that was a mistake.....
Feb 25Reply
moongoddess7
@ccathgo soon after that I was passing out all the time, not just from getting up to fast. My blood pressure is still if Iโm lucky 80โs/50โs
Then I out of the blue started having seizures, then I was having so much back pain I couldnโt handle it. Then then it was hard for me to breath at times, one time it hurt to move even an inch. I didnโt go into the dr. A few months later, I couldnโt breath....
Feb 25Reply
moongoddess7
@ccathgo turns out I has a PE in my lung that ate away half of my right lung, maybe if I would have went in months prior it wouldnโt;t have happened. But with that happening I got some more diagnosisโs, Factor V Leiden blood disorder, I get blood clots all the time, but because I have orthostatic hypotension & seizures the doctors donโt know what to do because if they put me on blood thinners...
Feb 25Reply
moongoddess7
@ccathgo which they did at first, if I fall or have a seizure and get hurt I could bleed out, but having blood clots can kill me to.
Then I started getting these horrible abscess up my arms I couldnโt put my arms down it hurt so bad and was just swollen. So I got another diagnosis (I canโt spell it) but itโs not curable,
Feb 25Reply
moongoddess7
@ccathgo so when I get the abscesses the doctors have to slice them open and put draining tubes in. One time I was hospitalized because they were so bad, the doctor did his thing and admitted me. Well a week later I was ready to go home, but another on had developed. The doc. Said it looked small so he would just open it and put in a tube, no problem ๐ต well a few hours later I felt something dripping down my side I just thought it was sweat, I looked down & I was covered in blood...
Feb 25Reply
moongoddess7
@ccathgo I hit the nurse button, no one answered it. I kept pushing it, I started screaming for help. The blood was just literally just pouring out of my armpit. I was sitting in the middle of my bed in just my underwire because I was using everything I could to put pressure on it. It took the nurses over 10 minutes to come in my room. They freaked out, they lifted my arm & blood was just coming out in clumps, it was everywhere. They called the surgeon & he said to
Feb 25Reply
moongoddess7
@ccathgo put pressure on it for 15 minutes, well almost 30 had gone by at this point. The nurses looked at me and said they would be right back, they left me in there covered in blood alone. I called my husband at the time & was telling him to tell my kids how much I love them, when the nurses came back in they called the surgeon again, but they brought back like 10 people.. I started to feel my life just
Feb 25Reply
moongoddess7
@ccathgo going away, it was the weirdest feeling. I looked at the nurse & said please tell my kids I love them, & they all freaked out, things were kind of fuzzy after that. I remember the surgeon finally being there and they finally got the bleeding to ๐
So they cleaned me & everything all up, put this crazy huge dressing on I couldnโt put my arm down but the doc said to try to so more pressure was on it, then the nurse said to me just let me know if u need anything as she was walking
Feb 25Reply
moongoddess7
@ccathgo out of them room, but I felt the same wet feeling looked down and yelled blood. It was happening all over again. When I came to the surgeon was punching some powder stuff into my armpit, it felt like he was pushing through my body, he did that for 45 minutes. I was crying, he looked at me and said Iโm so sorry! To this day I donโt really know what he meant by that but he turned me
Feb 25Reply
moongoddess7
@ccathgo over to another doctor, he didnโt want the responsibility of me anymore.
Then not to long after that I got cdiff. Itโs very infectious, I didnโt have a lot of choices, either cut out most of my colon or get a transplant..
girl I could keep going....
I also have lupus
I canโt remember the name of it but something with my bladder is wrong & it is also not cureable...
I have fluid in my spinal cord
Feb 25Reply
moongoddess7
@ccathgo 6 disks in my back that they want to fuse together
Both of my knees need to be replaced from all the falling with the seizures
The seizures are called PNES
I canโt even think any more but the fibromyalgia just intensifies all the pain, but people look at me and see the pain so my family thinks Iโm making it up.
No one talks to me.
My family is 2 of my kids and all of my pffโs on posh now!
Feb 25Reply
moongoddess7
@ccathgo Iโm so sorry for all of that, it just kind of came out of nowhere
Feb 25Reply
ccathscloset
HOLY COW. that's crazy !! It's amazing what we can endure! My Oldest daughter has lupus as well so I can relate with all the stuff it does to attack your body. Just be mindful and listen to your body!! Don't put off going to the DR. I hope you have a good rheumatologist? They are key to helping aid in LUPUS treatments symptoms etc. Eat as healthy as you possibly can...that too is key!!!! xoxo
Feb 25Reply
mar22799
Thank you for sharing this!! People without the condition don't understand which can be lonely!
Mar 02Reply
lukedukebo
My mother has this got diagnosed very young I feel for you how people stare and say making it up only thing gets her through it is my dad sister and me so when think can't think of ones counting on you want to ever talk be more than willing to
Mar 07Reply
renemcook
๐ฅ The 11 confessions list sums it up exactly ! However I never knew that others that have fibro felt guilty & useless too !! I don't have anyone to talk to because the depression has kept me from being able to pick up the phone or go out of my house. Sometimes I want to go out but can't because I dont have the energy to take a shower. Somedays I'm in bed for almost 20 hours. Thanks for making me feel less alone. Can I get a printable copy? Thanks. Irene
Apr 03Reply
moongoddess7
@lukedukebo Sorry I'm just seeing this, that is how I feel every day. Some of the worst days are days like today. It's my birthday and my oldest doesn't talk to me. People think I make up what's wrong & no matter what I say all they see is a person who can walk so I must not be sick!
Apr 04Reply
moongoddess7
@nolaphoenix I'm very happy to have you share him! I made this post for all of us living with or are close to someone in chronic pain. We all need an outlet & sometimes it's easier to talk to people who won't judge you or think ur crazy.
Apr 04Reply
lukedukebo
I know what you mean in end your oldest will come around and don't let life get you down your still here on Earth for some reason or someone so hold head up and happy birthday need anything ask
Apr 04Reply
moongoddess7
@renemcook I feel guilty everyday, I can't do for my youngest what I was able to do for my oldest. I can't even drive because of the seizures.
It's crazy that I read this today, it's my birthday and my kids wanted to go to get dinner for my birthday but I talked them into ordering food because I just can't bare the thought of the walk or that i will have to get dressed. I wish I would have just gone
Apr 04Reply
moongoddess7
@renemcook oh and you can screen capture the sign if you'd like ๐ค
Apr 04Reply
renemcook
@moongoddess7 exactly, I only have one a 13 yr old daughter who has adhd & is not getting the help she needs in school, but because of the fatigue I feel I haven't been able to advocate enough for her & right now she is probably not going to pass 7th grade.
Apr 04Reply
renemcook
@moongoddess7 Thank you ! HAPPY BIRTHDAY, I PRAY FOR A BLESSED YEAR FILLED WITH GOOD DAYS !!! ๐ฅณ๐๐๐
Apr 04Reply
renemcook
@moongoddess7 I know how you feel, my b"day is on Saturday.
Apr 04Reply
annsk
I also have it! ๐๐พ
Apr 05Reply
kimloveslilly
I also have this horribly painful and debilitating autoimmune disease along with arthritis and hypothyroidism. Iโve been suffering with it for 16 or more years. Praying for all who suffer with this chronic illness. ๐ฆ๐ฆ๐๐
Apr 10Reply
refaust94
Awe Iโm very sorry to hear you have fibromyalgia but thank you for this posting! I have rheumatoid arthritis and the struggle of chronic pain and fatigue is so real! These kind of diseases can be very lonely, hugs to you! ๐ฅฐ๐
Apr 18Reply
rockcandystyle
I love you for posting this because people really have no idea what we go through. ๐๐๐๐
Especially when weโre on Posh doing our thing, no one โseesโ the โrealโ person who is silently struggling to get through the day.
Much love and hugs to all of the others who have shared their struggle too. ๐
Apr 19Reply
moongoddess7
@rockcandystyle ik girl it really bothers me at times when people look at me & think I look healthy so I must be. But I don't like to complain so I do my best not to. They have no idea the pain that is screaming inside me!
Apr 19Reply
moongoddess7
@rockcandystyle The other day I toughed it out & went out with my kids, it was only like 5 hours, that was Monday, I'm still trying to recover from it. My body is in so much pain, I've been just passing out in the middle of poshing. I just had to inform people if I could, my own family doesn't believe I'm disabled & none of them talk to me anymore!
Apr 19Reply
moongoddess7
@rockcandystyle I have so many hard to deal with medical issues, lupus, seizures, I need my knees replaced, 6 blown disks in my back, fluid in my spinal cord, very low blood pressure, factor V linden.. it's a blood disorder I get blood clots... I had one get to my lung & because no one ever believes my pain that PE killed half of my right lung... it is what it is but having others know that they are not alone is what I strive for everyday!
Apr 19Reply
rockcandystyle
@moongoddess7 My dear Moon, I feel strongly that people are put in our paths for a reason. ๐
People truly donโt know, I get it. We wear it well(like the song!).
Thereโs times just going to the grocery store takes all my energy and someone carelessly bumping into you with their cart sends ripples of excruciating pain throughout your body.
People donโt understand.
Apr 19Reply
rockcandystyle
@moongoddess7 I wish there was something that I could do to take your pain away. ๐๐๐๐
I have mentioned the fibromyalgia; I also get horrible migraines, the kind that last several days and have sent me to the ER. Again, people donโt understand.
Weโre a group of broken dolls, but at least we understand each other!! ๐๐๐
Apr 19Reply
moongoddess7
@rockcandystyle You got me to smile love, and that's something that most people take for granted, but not me! I'm so happy you were put in my path!! You're right we have eachother! ๐จ๐
Apr 19Reply
aleakloezoeyjoi
Yeah we suffer in silence because we tell our family this is what we got told we have and NOBODY WANTS TO BELIEVE IT I CANT STAND THIS SHIT itโs so frustrating to me that everybody thinks itโs some ploy or lie by me or the doctor OMG I WANT TO RIP MY HAIR OUT while I run after my three babyโs in pain daily ....but itโs all bullshit ,! I canโt stand that line
Jun 26Reply
inthistogether
Thank you for sharing this - so important!!! ๐
Jun 30Reply
frock_n_fashion
Thank you Amy. I was diagnosed with it too after having Epstein-Barr.
Jul 15Reply
moongoddess7
@frock_n_fashion I'm so sorry to read that! You are in a great place here! We are all warriors together! xoxox
Jul 15Reply
junkman71
๐นhiiiii, stopping in for a peek ๐น have a great night ๐น
Sep 04Reply
avecamore
I'm struggling with it. It's a horrible and lonely condition.
Sep 15Reply
johnsontammi38
@moongoddess7 Hi Doll, I know how you feel!!! I also have fibromyalgia, and you are so right about everything!!! I feel the exact same way!!! Stay strong and positive sweetie!!โ Your a fighter!! If you ever need me, I am here!!!!!
Oct 09Reply
1proudmom4522
Hi Moon! I have had fibromyalgia since I was 27 and yes it can get a little overwhelming in life. I know exactly how you feel.. I put a smile on my face and carry on day in and day out. Always stay positive, you seem to be a very strong woman, a fighter I would say. Good Vibes and blessings sent your way.
Oct 09Reply
kikiroxymama
Hello Fellow Pain Warrior! I don't have fibro, but I've had four back surgeries and live in chronic pain. It sucks to have a pain thief in our lives. I do my best to put on a strong face for my daughter and not have my pain and depression affect her. But I'm realizing I'm spending far too much time in my bedroom. Looking for motivation to get out. It takes much mental and physical prep, and then the outing lands me right back. However, I love my work.
Nov 21Reply
kikiroxymama
I have a small business as a math tutor for teenagers. Such a blast! When I'm at work, I'm mostly not in my body. Then, dissolve on my way home. Anyhow, it's a pleasure to meet you. Wish I was in SoCal to join your meetups. I live in the Bay Area. Be well and I hope you are having a good day!
Nov 21Reply
resamcc
Moon!! oh my lovely I didn't know you had this! and you still do all you do! damn girl you keep impressing me daily, you forever grinding, forever working, and doing it with this shit.. you're steadily becoming my hero! I want to be just like you when I grow up!!! (ignore the fact I'm in my mid30s please...)
Dec 02Reply
moongoddess7
@resamcc I have too! my kids need me, I'm all they have! if you read up you will see how many other medical conditions I have. Plus personal too, but us moving here has been the best no matter what because the 3 of us are finally safe & comfortable & that far passes my pain! ๐จ๐๐๐
Dec 02Reply
moongoddess7
@kikiroxymama Wow love! I'm so sorry!! We do it for our kids but love we gotta figure you out something that can help you! are you doing anything for the pain or depression? feel free to private message me ๐๐๐
Dec 02Reply
moongoddess7
@1proudmom4522 So glad I found this message, it's great to meet you! we are warriors for ourselves too which is the hardest part! ๐๐๐
Dec 02Reply
moongoddess7
@avecamore Love you girl ๐๐๐ We are here for you anytime
Dec 02Reply
moongoddess7
@aleakloezoeyjoi OMG I'm so sorry I'm just seeing this! you are living my life, so sorry love
Dec 02Reply
fifibegley
Thank you ๐๐ป from a fellow Fibromyalgia Warrior ๐๐๐๐๐๐๐๐๐๐๐
Dec 09Reply
celestialdv9ds9
I do too..hearing for disability 1/27. Hard to prove how debilitating it can be. I look fine. ๐
Jan 14Reply
travelgirl12
Gut health. I would love to share how gut health can help with what you are suffering with. Please find me on Instagram at leannaspinkjourney or my website at www.leannasoffice.com ๐
Jan 19Reply
coachandtrunk
Wow, love. I just saw this. I can't remember if I told you or not, I have what I "unaffectionately" (my made up word) call the A.I. Trifecta: Fibro, Arthritis & Lupus SLE. And to make things a bit more interesting I found out I have blood disorder, Antiphospholipid Antibody Syndrome. Big huggs!
Jan 23Reply
mrsp_boutique
THANKS AMY FOR YOUR HELP & SUPPORT!! MAY GOD BLESS YOU & YOUR FAMILY!
Feb 10Reply
renemcook
๐๐๐๐๐๐๐
Feb 10Reply
lindachris
@moongoddess7 ๐
Feb 10Reply
_magical_closet
Thanks for this ๐ Me too :)
Feb 20Reply
moongoddessedgy
@sundeena Welcome to being a Warrior like all of us in here!
Feb 23Reply
sundeena
@moongoddessedgy Thanks so much for this ๐ค๐ค๐ค
Feb 23Reply
shopaholicami
@moongoddess7 I am right there with you! I have fibromyalgia as well and every day is a struggle! I don't know what you take for it.. I am on so many meds and some days I feel like nothing works or helps! ๐ Prayers to you and ALL other Fibromyalgia warriors and even caregivers.
Feb 29Reply
sundeena
@moongoddessedgy Hey Moon, how are you feeling? I was worried when you missed Sunday's Black Rose group. ๐ค๐ค๐ค
Mar 09Reply
cscidmore
I just burst in to tears reading this. Iโve been struggling with this by myself for so long and you just put a voice to everything Iโm feeling! Thank You for that. I wish you the best of days because I know everyday is a struggle. ๐
Apr 10Reply
moongoddess7
@dreamerspups @cscidmore You both have helped me smile a bit today. Ijust need to inform people about this debilitating condition because so many are suffering & MOST people don't even believe it exists! I wish both the best of days as well & let's keep in touch!!
Apr 10Reply
cscidmore
@moongoddess7 Iโm so glad you spoke out about it! I wouldnโt wish this on anyone.
Definitely letโs keep in touch, hopefully we can encourage each other and if you need an a shoulder to lean on or an ear to listen Iโm your girl! โค๏ธ
Apr 10Reply
renemcook
May I copy any of these to copy on FB?
May 12Reply
moongoddess7
@renemcook Sure hun, the more people that know the better ๐๐๐
May 12Reply
gemsrpretty
@moongoddess7 hi Amy itโs been so long since weโve chatted I saw your price drop and I wanted to stop by and say hello. Last we spoke there was some really rough times I hope you are in a better place sending you lots of love and gentle hugs๐ค๐
May 13Reply
nycide
Check out www:myfmtest.com Iโve signed up but havenโt heard back- look into it as it sounds promising ๐
May 13Reply
lovefaithgrace
@moongoddess7 I am so sorry that you suffer from this too. I love daily in pain. I used to have a pain specialist that would help me with meds. This was until the supposed โopioid crisesโ was announced and I was stripped of all my meds except muscle relaxerโs. Every single day is a challenge. There are some dayโs that I feel like it is too much, like today. My heart goes out to you. I hope you are able to get medical help. God bless! โฅ๏ธ๐
May 13Reply
juggalette1
Me to Moon & Thank You for saying it!
May 19Reply
gentry777fam
Love this
Jun 13Reply
moongoddess7
@queendom4all Hey love show this to your husband ๐น
Aug 04Reply
queendom4all
@moongoddess7 thanks gorgeous will do. โค
Aug 04Reply
moongoddess7
@hopeful42020 Hi Darling, I'm sorry you have the same invisible Disease I do & SO many others. I thought you might get something out of being in here with all the other Warriors I've had the pleasure of getting to know! We share our stories, we are all here for you! โกโกโก
Aug 06Reply
sendingposhlove
1/2 @moongoddess7 Youโre such a sweetheart! ๐ I read so many of these posts and Iโm just smiling after a tough day. ๐ I was shocked that you, Robin, Candice and I had it here but all of these people blow me away! After Lyrica almost killed me last year I seem to flare quite frequently and the flares are longer. On top of that Iโm still having neurological issues and physical issues from the Lyrica. If anyone is on Lyrica please let me know. Thanks again and youโre really amazing!
Aug 06Reply
sendingposhlove
@moongoddess7 Sorry I ran out of room. Lol Thanks again and please let me know if you ever need anything on a tough day or any day! I know you made my day! โฅ๏ธNow if you could just fix the insomnia. ๐
โฅ๏ธ๐นโฅ๏ธ๐นโฅ๏ธ๐นโฅ๏ธ๐นโฅ๏ธ๐นโฅ๏ธ๐นโฅ๏ธ
Aug 06Reply
moongoddess7
@hopeful42020 idk where you live but if you can smoke, (indica type) it makes you tired! โกโกโก
Aug 06Reply
sendingposhlove
@moongoddess7 I have tried a whole syringe of RSO and nothing. My sleep got so bad to the point I was only able to get 2 hours in a week with Lyrica withdrawal and was spending thousands a month at the dispensary. Almost 21 months later and Iโm still having neurological and physical symptoms. Lyrica almost took me out. Iโm wondering if my sleep is bad still from that. I now take MM and medication and it takes forever to get to sleep and up and down all night. Ugh ๐ฉ lol ๐ Thanks my friend! ๐๐๐
Aug 06Reply
my3doves
not sure why I didn't see this before ? So sorry I suffer as well, some days it's all I can do to get out of bed. ๐ค๐ค๐ค๐ค๐๐๐๐ฅฐ
Aug 06Reply
roblyn24
Moon, just saw these for the first time! May I put them in my closet? Amazing every single statement is so true!!!!!! I hate this disease with everything in my power!! I hate the things that I've lost that I used to be able to do!! Unfortunately you know what I mean. ๐
Aug 08Reply
moongoddess7
@roblyn24 Of course you can love, I have more slides I'm going to add now that we can add 16
Aug 08Reply
moongoddess7
@my3doves Weare warriors love!! In this together
Aug 08Reply
kimmysue1979
@moongoddess7 hello I just wanted to check in with you I havenโt heard anything from you in a while I found out I have the same thing not to long ago I wanted to chat with you also have you moved I have been away for a while!! When you get a minute please contact me โค๏ธ๐
Aug 13Reply
dixieming
You are so beautiful, kind, beyond artistic & loving helping all your fellow Poshers & probably a lot of others. I have had Fibromyalgia for a very, very long time. I was a Manager for Large Thrift Stores for 18 years. I had no choice had to work but loved what I did. On top of the Fibro I got injured at work
& had โmanyโ operations over the years. Had a great boss who worked with me BUT
Aug 22Reply
dixieming
She retired, got a new horrible CEO who laid me off 3 years ago. Had an intense mutual dislike. Telling u all this because somehow I got through it. Lived on pain pills, pain management etc. but thankfully loved what I did. He has prevented me from getting any new jobs, but all this said itโs given me time to heal. My fibromyalgia comes & goes but finally taking better care of myself.
Aug 22Reply
dixieming
Sorry about this lengthy post I have never shared any of this but you put yourself out there so decided to share. Stay away from stress & negativity as much as possible to try & help heal yourself. Hugs to all๐โค๏ธ
Aug 22Reply
moongoddess7
@dixieming welcome to our Warriors Group! Iโm so happy you shared your story, Iโm so sorry for everything you have been through, but know that you are not alone anymore! So many people donโt believe or know what fibromyalgia is & that really sucks! The crazy part for me was no one believed my pain except for my doctors! Since I moved to CA I really miss my dr.โs & my therapist but hopefully Iโll be able to find some good ones out here.
Aug 22Reply
moongoddess7
@dixieming Stop in here any time to chat, we are all in this together, we are stronger then most! Much love & light to you love! ~Moon
Aug 22Reply
dixieming
@moongoddess7 I hope you can find someone you like & trust soon Itโs so important .๐ถ๐โค๏ธ
Aug 23Reply
brinabre256
BLESS YOU! I've had it for almost 15 years now and havent worked in 10 years. this is my only source of income and I dont make that much on here. cant get food stamps, disability, nothing. CONSTANTLY in pain, struggle to take care of my kids, no family locally. I wouldn't wish FIBROMYALGIA on my worst enemy. praying for healing over your mind body and soul sister!!
Oct 29Reply
kamo74
I know your pain and and struggle girl! I've had Rheumatoid Arthritis for 30 years. I was diagnosed at 16 and thought my life had ended. Well I'm still here fighting thru the pain and sometimes loneliness because no-one gets it. We are warriors! If you ever need to vent, talk, or just need a push to make it thru the day I'll be around. ๐๐คโช๏ธ Kam ๐ฆ
Nov 12Reply
moongoddess7
@brinabre256 Wow love I'm so sorry & unfortunately can relate to everything you said, single mom, in a new state, no family, don't have friends in person, can't drive being disabled. This is how I pay my bills too. disability & Food Share doesn't even cover my rent.. I left WI because of abuse 2 years ago & now I'm in CA, crazy expensive ๐คฆ๐ปโโ๏ธ I'm here for you as well!โกโกโก
Nov 12Reply
moongoddess7
@kamo74 Oh Kam, you are so right, people who don't have it completely Don't understand, some do try, but it does get very lonely at times! The future worries me... I'm here for you too love, anytime!โก๐
Nov 12Reply
ivy_strange
Just scrolling through your shop & I see this & it really hits me because I have fibromyalgia & it's...SO debilitating.๐ญ๐ญ Much love for spreading awareness!!
๐คโค๐คโค
Dec 25Reply
moongoddess7
@ivy_strange I'm so sorry you have this too! just know you are not Alone anymore, all of us in here are Warriors & that includes you! people that don't have it have NO idea what we go through everyday, how hard it is to not scream out in pain sometimes, but We do! lots of Lโกve & light to you sweetheart! ๐
Dec 25Reply
savyfashiongal
I am a Cronin pain sufferer as well with a degenerative spine. And nerve pain every part of my body. Half the month is good. The other half I try to survive.
Thank you for educating others! Praying for a cure for fibromyalgia!! Hang in there!! โฅ๏ธ๐โฅ๏ธ๐
Mar 26Reply
designerd
This breaks my heart. I, too, live with chronic pain so I totally admire people who help to educate others AND give it their best to swim with the other fish. Iโm wishing you fortified energy to keep on keeping on. โค๏ธ๐ฅธ
May 03Reply
moongoddess7
@savyfashiongal @designerd Hi Ladies, I'm so sorry to hear you also live with this as well!! A few weeks ago I got more news about my medical issues, I have Chronic Severe Rheumatoid Arthritis All Over my Spine, I just turned 45 & my doctor said my MRI scans look like an 80 year olds back. I'm still digesting this new medical issue & scared, they are talking surgery... I'll get through it, my kids need me & I'm not ready to go!! Love to you both! xoxo ~ Moon
May 03Reply
cobraqueen89
I developed this or something mimicking this as a covid survivor. thank you for sharing this
Oct 06Reply
roblyn24
Wow, those slides are great. It is absolutely a thief!! I live with it or I try and all that you put is true. I'm truly sorry you live with it.
Oct 12Reply
catsdraggeditin
Hi. Itโs been forever since we connected in a bundle convo. I love this. Explains fibro so well. I still deal w/a lot of misunderstanding among neighbors, friends, family & the medical profession. There are a few here & there who seem compassionate. I smiled when I remembered you. I hope you are doing as best as you can. ๐๐ปโค๏ธโก๏ธ
Dec 14Reply
lesliehaby
I see you and understand more than you know! Prayers and hugs for greater understanding and even better health!
Dec 14Reply
moongoddess7
@cobraqueen89 That's Awesome of you, I'll check it out!โก
Dec 14Reply
moongoddess7
@something2see Hi love! it has been awhile. I hope you are doing ok. I'm sorry you are still dealing with people not believing, I made more slides because I feel like most of the world has forgotten about 'us' meaning since Covid it's like that's the only thing people think about but I wonder if anybody thinks about how one of us would be with Covid?
I had it & was very close to nit making it a few times, that's actually the 1st time I said that out loud (so to speak). Be well my friend โก ๐
Dec 14Reply
moongoddess7
@lesliehaby Thank you that means a lot!!โกโกโก
Dec 14Reply
find_seekeying
Amy, I've seen you on here but not sure we've personally spoken. I love these slides and I'm praying for you! Haven't shared this with really anyone but I suffer this too & my pain is so unbearable today! it's the burning, achy, restlessness that makes me feel like jumping out of my skin!๐ฉ I'm so sorry you go through this too. I feel so alone sometimes
Dec 14Reply
find_seekeying
because I'm just not my happy normal self & just so irritable from it. people want to avoid me thinking I'm Moody. sad thing is, I AM moody...this makes me moody and my docs just changed a bunch making it worse. I never try to be irritable to those around me it just comes out that way. Prayers to you and everyone with this๐Here if you'd ever like to vent.โค๏ธyour way! DonnaXO
Dec 14Reply
nycide
There is an FDA approved blood test which confirms Fibromyalgia It is a simple blood test & the phlebotomist will come to your home http://www.fmtest.com
This was how my fibromyalgia was confirmed as well as to what degree it has effected my body. Go to that website Get info on the studies they are conducting UCLA & the Mayo Clinic are involved Good luck & Merry Christmas
Dec 14Reply
moongoddess7
@find_seekeying Hi love, I'm so sorry you have this too!! ๐ข What you said about feeling so alone sometimes, really hits home with me! Last night I was just sitting in the middle of my bed, tears rolling down my face, that I could not control. I couldn't move, I felt so alone & it makes me so sad. Does it keep you awake at night? I barely get sleep ๐ด not for the lack of being tired because I'm always tired!
Dec 15Reply
moongoddess7
@find_seekeying it makes it hard to work but I can't rest even if I was ordered to because I'm on my own with 2 of my kids, no family. I really love my Posh Family!!!โกโกโก Be well my friend, I'm here as well if you ever need anything! โค ๐
Dec 15Reply
dixieming
Thanks for passing on this important information. I also have it but am in & out of remission. It can make life very difficult.
Dec 15Reply
moongoddess7
@dixieming Yes it really can! It's nice to meet you! Stop in any time if you need to vent/chat! โก
Dec 15Reply
dixieming
@moongoddess7 Thank you & same to you. Hope you have a Merry Christmas ๐๐๐๐ฅฐ
Dec 15Reply
yazznyc
@moongoddess7 You are definitely in my thoughts โค๏ธ I have cervical dystonia, so this really hits close to home.
Dec 16Reply
moongoddess7
@yazznyc Oh man, I'm so sorry to hear that love!! I'm here if you ever need a friend! xoxox
Dec 16Reply
yazznyc
@moongoddess7 Ditto - these โinvisibleโ conditions can be extremely difficult. I had an ex accuse me of faking, etc. I hope you get the best medical care โค๏ธ
Dec 16Reply
jeni_777
๐๐๐๐๐ป๐๐ป๐๐ป
Dec 17Reply
peacegoddess
๐โค๏ธโ๐ฉน๐ค
Jan 03Reply
celestialdv9ds9
I have been in an awful fibromyalgia flare. This is beautiful. Nice to know Iโm not alone. โค๏ธ
Jan 03Reply
mrsp_boutique
HI SWEETIE!!! ITS SO GKAD TO HEAR FROM U!! I AN SUFFERING SO MUCH AND HAVE CANCER RIGHT NOW AND HOPE U CAN PRAY FOR ME AND MAY GOD HEAL US AND FIND A CURE FOR THIS DISEASE THAT DESTROYS UR LIFE IN SO MANY WAYS! THANKS FOR THE SUPPORT AND AWARENESS
Jan 03Reply
jennasvinis
So true.
Feb 01Reply
_fashion_fiesta
Oh wow! I didnโt know you had it to. I was in the hospital like I told you my body felt like it was breaking down. I also have CFS//ME and a few other health problems so Poshing gives me a outlet when Iโm not working but the brain fog is horrible. Iโm just broken. ๐คท๐ปโโ๏ธ Thank you so much for sharing this. I pray for us all. โค๏ธ
Feb 17Reply
fine_fox_attire
Ugh me tooo. Sending love.
Jun 16Reply
moongoddess7
@ohkaycloset Hi love, IDK if you are in here with all of us Fibro Warrior! I'm in so much pain, I wish I could get some time to be able to rest but being alone with just 2 of my kids makes it impossible. My disability doesn't cover my rent so I have to posh all the time. I'm here for you love. I hope you are able to rest when you need to, I wish you many painless days! xoxo
Jun 25Reply
moongoddess7
@celestialdv9ds9 You're never alone!!
Jun 25Reply
sarasparkle331
@moongoddess7 oh my gosh!!!! I have fibro too!! Idk how I havenโt come across this yet on your page, ironically Iโm stumbling across it now that Iโm working on getting disability benefits because mine has been really rough. Wishing you relief and many good days ahead! ๐ค๐ผ
Oct 02Reply
ambaldwin88
Solidarity to invisible illness warriors!!! We have Ehlers Danlos ๐ค๐ฆ๐ค๐ฆ fibro, much like HEds is so frustrating because itโs a โdiagnosis of exclusionโ. Since we canโt โproveโ it (yet) with a test, people donโt take us seriously! I explain โspoonโ theory to them and they get it better. Some days I have a drawer full. Some days the drawer is empty. Much love & Happy Poshing ๐ค
Nov 02Reply
moongoddess7
@lillyfire Welcome to our group!
Mar 01Reply
missink3383
Hello fellow Fibro Warrior/Goddess
+warrior gents too๐๐๐ฅฐ๐
'I believe you', I believe in u too๐ฅฐ
We're N๐ซT alone!
Mar 20Reply
missink3383
Constant mentally & physically toll, & I was beside myself feeling screw Anxiety, we've taken on far more than our fair shares, yes it makes us stronger, but some days strength is the word Id describe as days of our lives... certainly more tolerable knowing people, like YOU, gives a reason to smile๐You're beautiful
Stay strong, but know u deserve a break, & time for healing
xo, SerahLyn
Mar 20Reply
toughluck00
@moongoddess7 Dear Goddess, please stay awesome, strong and hopeful that science and God's miracles will heal so many suffering people. Wishing you lifetime blessings and happiness๐๐ค๐๐๐๐๐๐๐
Mar 21Reply
mollynmikesmith
๐คฏwow I found a gem of "item" on Poshmark....never thought I'd ever say that! FYI you've underpriced this it's completely priceless! much love from a fellow "inmate" of this horrible (nope it's not just in my head Dr. ) disease! xoxo!
Apr 03Reply
jessiesarmoire
Sending you love & light my fellow warrior woman! I was diagnosed 4 years ago with Fibro, along with a hand full of other "rare" auto-immune disorders. "Rare" is slowly becoming one of my least favorite words!๐
I agree with the above comment, this is priceless. Thank you for reminding me we are not alone in this fight ๐๐
๐STRENGTH๐PATIENCE๐NEW NORMAL ๐SELF LOVE๐
Apr 12Reply
artxmarilyn
Same! I donโt talk about it. Just live my life like I donโt have it, maintain good health and exercise, and zero stress. It works! Like set it and forget it ๐
An anti-inflammatory diet + rest + not being super overactive (like I was), good supplementsโฆ and cut out all toxic people for sure ๐
Aug 23Reply
artxmarilyn
Not a lot of people listen to this one, but an osteopathic center can literally save you. I received heavy metal chelation therapy for months, and I truly believe itโs the only reason I can function these days. Detox heavy metals!! (But maybe still listen to it hehe) ๐ค
Aug 23Reply
moongoddess7
@mollynmikesmith Wow! I'm just seeing your comment, crazy cause you left this on my birthday! I am so sorry you are suffering from this illness as well! Somedays I just feel like I can't even move. I wish more people including Dr's would stop believing it's all in our heads! Stay strong my friend โค๏ธ
Aug 23Reply
moongoddess7
@jessiesarmoire Hi love! I'm right here with ya, I also have many other "rare" medical conditions. it's been 10 years now since I was finally diagnosed but it doesn't seem to get any easier. I even moved from WI to CA to get fresh eyes but all that did was isolate myself. I feel very alone most days. I wish you well, lots of love & light to you!!โกโกโก
Aug 23Reply
moongoddess7
@art_from_mars Hi love! it's so nice to meet you! I also try to act as if I'm not suffering from this horrible pain. I do have many other conditions as well, all of which started to hit me 10 years ago. I feel I was pretty healthy growing up, but I did go through a lot of abuse.
Aug 23Reply
moongoddess7
@art_from_mars I've tried so many things, I'm actually (or I was) a biofeedback tech. I used to detoxify my body all the time. Recently however I took a bad fall & with my Lupus & DDD (degenerative disk disease) I actually got hurt pretty badly. my tailbone is sideways now. I haven't been able to get my exercise in since then! I miss it so much, it's much-needed ๐ซถ ๐ค
Aug 23Reply
artxmarilyn
@moongoddess7 Iโm so sorry to hear that!!! I hope you get the help you need, whether itโs surgery or something else. Youโre definitely on the right track!!! Active in all these things, good for you! ๐ค
Aug 23Reply
artxmarilyn
@moongoddess7 Same! Doctors have told me the amount of abuse victims that have Fibromyalgia (etc.) is super high =( So sorry that we have that in common. I really think it takes deep inner work (or shadow work) to conquer a good bit of the residual energy and physical manifestations. ๐๐ป May you get well โค๏ธโ๐ฉนโจ
Aug 23Reply
tabimariexo
๐๐๐ sending you love
Oct 13Reply
poshstreetluxe
@darden56
Dec 05Reply
jlowe1441
These are beautiful & as I can attest 100% truthful! I know this b/c I've been sick for 20 years now. I am legally disabled w/ 4 invisible illnesses. Fibromyalgia, Lupus, Sjogren's & Endometriosis. If it's OK, I'm going to print these out & give them to people when they say stupid shit like "I can't believe you're canceling again", when it's the most believable of things I do. The struggle is real.
Dec 21Reply
jlowe1441
Even after all this time, I still have to convince people that when I say I'm sick, I'm sick. What I want to say is "if you felt half of the pain I'm in you'd be in the ER screaming for your mama!" It's amazing how universal our pain & our difficulties with the "normies" can be! Don't let em' get you down & let the guilt they inevitably leave behind go!
Dec 21Reply
avantbetty
This is great! I have Fibromyalgia too, some days are just ok
Oct 28Reply
avantbetty
Some days are bad. And people just donโt get it!
Oct 28Reply
ladybug16676
I can so relate, I hope it helps to know you are not alone. If I didnโt have Jesus Christ I donโt know what I would do!๐
Dec 21Reply
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