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akimalove
Updated May 03
akimalove
Updated May 03

SALE!! NWT Fibromyalgia Tshirt

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US$29 US$36

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This beautiful Fibromyalgia awareness Tshirt comes in size small to 2X. Support friends or family with this stunning shirt! Or buy one for yourself and wear your purple butterfly in support of Fibromyalgia. 💜
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  • Seller Discount: 15% off 3+ Bundle

  • Ships to: United States

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87 Comments
hopesparkles
hopesparkles ✨💜 I’ve had Fibromyalgia for 20 years since 1999! 💜✨
Jan 31Reply
akimalove
akimalove @hopesparkles oh wow, no a fun disease... I was only diagnosed this past year. But I know I've had it for a while. Which is why I was inspired to create this T-SHIRT. Most people would never understand. 💜
Jan 31Reply
akimalove
akimalove @larabarbosa Hello. I made this myself! I suffer from fibro myself. I can make you a shirt for RA. Do you have anything in particular you would want on it?
Feb 02Reply
akimalove
akimalove @larabarbosa I sure can. I will work on it and tag you when it's done. Give me a couple days. So I can get the color shirt you want.
Feb 02Reply
dana_g89
dana_g89 Thank you SO very much for making this shirt!! It is a terrible illness!! I also suffer from Psoriatic Arthritis and Ankylosing Spondylitis (a cousin to RA).
Feb 12Reply
akimalove
akimalove @dana_g89 I'm so sorry to hear about your illness. I know oh so well the battles we face, having battling Fibro myself. 💜
Feb 12Reply
darlajharris77
darlajharris77 Can you do one for RA Rheumatoid Arthritis?
Mar 06Reply
akimalove
akimalove @darlajharris77 yes i can... i am working on one! Will tag you soon as i put it up! 💜
Mar 06Reply
darlajharris77
darlajharris77 @akimalove thank you so much I really appreciate it 💜💜💜
Mar 06Reply
akimalove
akimalove @c_gavin im so sorry to hear about your pain. I too was diagnosed, and it has been THE HARDEST thing i ever had to battle. So i decided that i wanted to make a shirt to explain how i feel most days. 💜
Mar 13Reply
bothsidesnow
bothsidesnow @akimalove these are GREAT!!! You designed these?
Mar 13Reply
akimalove
akimalove @bothsidesnow yes i did. And thank u!
Mar 13Reply
bothsidesnow
bothsidesnow @akimalove LOVE LOVE LOVE!!!! I don't have fibro but i have friends that do, so im going to keep this is mind. I do suffer from other things people "can't see" so I completely empathize (((hugs)))
Mar 13Reply
akimalove
akimalove @bothsidesnow awe... thank u so much! Wishing u many well days! 💜💜
Mar 13Reply
akimalove
akimalove @maryblevins1972 i sure could love!
Mar 14Reply
akimalove
akimalove @maryblevins1972 they are your standard T shirt fit. Good quality, has some stretch to them. What size are u looking for?
Mar 14Reply
akimalove
akimalove @maryblevins1972 i have slim fitting shirts also which is the reason i ask. Not everyone likes tight fitting. But its an option.
Mar 14Reply
akimalove
akimalove @maryblevins1972 ok. These shirts are true to size. So if you typically wear a large then that will be the suggested size unless you like to have a little more room and to fit a more loosely. But these are not tight fitting shirts. Hope that helps! 💜
Mar 14Reply
akimalove
akimalove @maryblevins1972 NP, let me know when you get ready to order what you want on it!
Mar 14Reply
rethaalexander
rethaalexander I absolutely LOVE this T-shirt!! It’s so difficult to get people to understand how debilitating fibromyalgia can be. I’ve suffered from it for 30 years. I was hospitalized in 1991 for a week while they ran all kinds of tests trying to find out what was wrong with me. Back then they didn’t have a name for it.
Mar 20Reply
rethaalexander
rethaalexander It took another 15-20 years before they put a name on the disease. I even had a neurologist tell me I was crazy and needed to see a psychiatrist because there was no way someone could hurt all over like I did. I wish I could come face to face with her today 🤬 Something I figured out by documenting the severity of my symptoms every day...
Mar 20Reply
rethaalexander
rethaalexander Was that my symptoms were triggered by the onset of my period. A few days before I would start, the symptoms would start to worsen, to where when I started I was completely disabled to where I couldn’t even undress myself because of the pain and fatigue. Thankfully I had a great GYN that knew if I said something was wrong then something was wrong.
Mar 20Reply
rethaalexander
rethaalexander I had a complete hysterectomy done in ‘93 at the age of 28 and that helped. Cold weather still triggers it, but that can be avoided. I’m 54 now and still have my bad days, but I’ve learned to live and deal with it. Eating healthy, exercise and taking Lyrica help.
Mar 20Reply
rethaalexander
rethaalexander I want to get a shirt, but like the slim fitting t-shirts better. If I could get this on a slim fitting shirt I would love it. 😁😁
Mar 20Reply
akimalove
akimalove @rethaalexander wow. What a story! The pain and suffering we go through is UNREAL! And to think so many do not believe its real or that us sufferers are crazy is just sad. I made this shirt to bring Awareness of how we feel. But in doing so. So many others have reached out to me about making one for their disease as well. And i am honored to do so.
Mar 21Reply
akimalove
akimalove @rethaalexander i have some slim shirts here that u may prefer. I will tag u in the shirt itself to see if you would like them or not. And then u can just make your regular purchase message me its u whenever u get ready. And i will swp shirts for u.
Mar 21Reply
rethaalexander
rethaalexander @akimalove That’s awesome. I can get one anytime. Just tag me and I’ll get one. Thanks SO much! And yes, it’s distressing how much pain, suffering and disbelief some of us had to go through to get a diagnosis. But then, like I said, there wasn’t a fibromyalgia diagnosis 30 years ago. The funny thing is, I did go to a psychiatrist and after a couple of months she looked at me and said, “what’s wrong with you is physical. They just have to figure out what it is.” Lol
Mar 21Reply
akimalove
akimalove @rethaalexander i have struggled for years. And i think my family may have thought i was a hypochondriac! Cause there was ALWAYS something wrong with me. It made me feel worse, and doctor after doctor. No one knew. They would send me home and say i was fine. Or too much stress.
Mar 21Reply
akimalove
akimalove @rethaalexander then finally one doctor told me he had known for months what was wrong based on my symptoms. And told me to go home and research Fibromyalgia. So i did. And when i read it i was so emotional and i couldn't believe it!
Mar 21Reply
akimalove
akimalove @rethaalexander he told me he had to do an exclusion of everything else first. And was upset no one figured it out! He told me for YEARS women killed themselves because no one believed them and they couldn't bare the pain. That it actually drove them crazy and to suicide. I was in shock. It made me so sad. Then he said. Well at least now u know. But there is no cure. I was floored!
Mar 21Reply
akimalove
akimalove @rethaalexander just so sad at that point. But like u said. U learn to live with it. Its not a day that goes by that im not suffering in some way. I just try not to complain and push through.
Mar 21Reply
rethaalexander
rethaalexander @akimalove That’s how I feel about it. There’s something every day that bothers me, but I’m just going to push through it and come out the other side. With no cure, there’s really not much else to do because I don’t like to complain about it. I did that long enough. Lol. I too was sent from doctor to doctor, with no answers except “it might be....but we will have to wait until the tests show it.” When a cardiologist I had been sent to at the Univ of Alabama Birmingham said I had “chronic PMS
Mar 21Reply
rethaalexander
rethaalexander @akimalove was when I decided no more doctors. I would just give it time and leave it to God to let me know in His time. That’s also when I called my GYN and asked if he could stop my periods. He did for 8 months, but the medicine we used (Lupron) couldn’t be used for longer than that due to risks of osteoporosis. It was the best 8 months I had had in several years. That’s when I told him to just take it all out. I was done having children so I didn’t need it anyway. 😂😂
Mar 21Reply
rethaalexander
rethaalexander @akimalove And yes, unfortunately the only way to diagnose fibromyalgia is to rule out everything else. For a couple of years they thought I had MS because it was the only thing that even came close to matching my symptoms. I had my hysterectomy in ‘93, and they didn’t put a name to this disease until mid to late ‘00s. Before that it was myofibrositis, until they realized it was a neuro issue and not an inflammatory problem.
Mar 21Reply
hunnibscloset
hunnibscloset @akimalove I have been battling fibromyalgia since 2002! I ended up having to have wls because I gained 152lbs over the years from all the steroids! The pain is real!!! I I hurt all day everyday! I have just developed a high pain tolerance and can manage with some but when I get a good flare......🤦🏽‍♀️
Mar 22Reply
akimalove
akimalove @hunnibscloset omg.... im in a flare as we speak! I cant believe how many people suffer from this it baffles me! Im so sorry to hear that. This journey for me has been a unreal nightmare! I suffer daily. And still trying to wrap my brain around it. No real answers on where it came from, makes it really hard to accept.
Mar 22Reply
hunnibscloset
hunnibscloset @akimalove right! On top of that I have chronic plaque psoriasis in the palms of my hands and soles of my feet, psoriatic arthritis and hidradenitis🤦🏽‍♀️ out of them all I think the hidradenitis is the worst.... I’m just 47 and been on disability for 6 years.
Mar 22Reply
akimalove
akimalove @hunnibscloset omg i have hydrigentis too! I wont even go into that on here. Im like where is all this stuff coming from?? Cant even pronounce most of it. Its like all new stuff out of nowhere! But i healed my own hydrigentis for the most part. I have had to take my health in my own hands. Doctors are no help!
Mar 22Reply
akimalove
akimalove @hunnibscloset wow. It is a life changer. Have u thought about seeing a herbalist? Because i have and it has helped me alot.
Mar 22Reply
hunnibscloset
hunnibscloset @akimalove no I haven’t! Maybe I’ll look into that next week ! Thanks!!!! I’m willing to try anything at this point 😂
Mar 22Reply
akimalove
akimalove @hunnibscloset i have plenty of info. Whenever u ready! Just make abundle and we will chat! The world knows all our business now lol. Oh well i have hid in embarrassment for the longest. It is what it is.
Mar 22Reply
heidizme
heidizme I have this sjougrins and Lupus we are having a share event for lupus and autoimmune in may go to closet @candice3076 to sign up... I understand but like u said the world doesn't sometimes doctors dont either.😘😍💜
Mar 23Reply
heidizme
heidizme #17 was here to share my love to my favorite taggers! 💜💜💜If it wasn't for you my closet would be a lagger! 😴 So from the bottom of my heart💜🧡💛❤💜🖤💙💚💜❤💙🧡💛💜🖤❤💙💜 Thanks for being my PFF & never grow apart. Today it's our turn to applaud you and share your closet. You deserve all the clappers!!🙋‍♀️🤗👏👏👏👏👏😘
Mar 23Reply
akimalove
akimalove @heidizme im so sorry to hear of your sufferings. Fibro mimics lupus quite a bit. That they thought i had lupus at first but it wasn't. They are all terrible diseases. Wishing u as many pain free comfortable days as u can get! 💜💜💜
Mar 23Reply
4umatthew
4umatthew @akimalove Hi Lovely 🌻 Stopping by 🦋 share party to share your Beautiful 🌹 Closet ❣️ I absolutely LOVE 😍 that you made this. I was diagnosed 10 years ago & many days can be a struggle. Recently have been trying CBD oil & has been helping. Much 💝 & respect for your strength & beauty . You are not alone, were in this together my Sista👯💐😉❣️✌️💝🌞🌈🌻🎸🦋
Mar 24Reply
akimalove
akimalove @4umatthew thanks my dear! I love CBD. It helps me out a lot!! Wishing u many good days! I know how it can be!
Mar 24Reply
shortydoucette
shortydoucette @shortydoucette this shirt is so true. I have fibromyalgia and have had it for years along with chtonic migraines and arthritis in knee jaw neck fingers back feet. My dad thinks it's all in my head cuz you can't see it. I can only wear sports bras cuz they hurt me. It's no fun when your body feels like I've and your bones are breaking. Or when you get so hot it feels like your body's on fire
Jun 19Reply
shortydoucette
shortydoucette @shortydoucette cont. I also have 22 other diagnosed issues. I've been sick since I was 27. I'm now going to be in July 25th 46 years old. I've been on disability this whole time. I was a 2nd grade teacher. I couldn't teach the way I used to and I'd be out more than in. I wouldn't wish fibromyalgia in my worst enemy. So all of you who have it and other isued I sympathize with you and I feel your pain.
Jun 19Reply
akimalove
akimalove @shortydoucette im still trying to wrap my head around this debilitating disease. I too suffer quite a bit and i dont think ive fully accepted it. I couldn't imagine this becoming any worse. Gentle hugs to you 💜
Jun 19Reply
akimalove
akimalove @shortydoucette oh my... Bras have become my WORST enemy! Thats where my pain usually starts all around it and fires up and spreads from there 🤦‍♀️ please join my encouragement group called Fibromyalgia and chronic pain support group on Facebook
Jun 19Reply
shortydoucette
shortydoucette @akimalove yes I feel the same when I wear a bra sometimes even my clothes hurt me. I'll look for your Facebook group. Thanks so much. Much posh love Melissa
Jun 20Reply
shortydoucette
shortydoucette @akimalove I hear you but it can get so bad to where I'm in tears.
Jun 20Reply
shortydoucette
shortydoucette @akimalove gentle hugs to you. Speaking of gentme. That's how I 1st leaneed i had it. I was going to the chiropractor for my headaches and towards the end I was dying in there. It felt like every bone in my body was being crushed. My 5 regular and specialist doctor all said I had it but had to go to a rheumatologist to be properly diagnosed. At the time it was 18 trigger spots on your body. Needless to say I had them all. I have also recently been diagnosed with neuropathy as well.
Jun 20Reply
dylansgal12
dylansgal12 🎀 "There is a lot of noise out there. I don't wan't to follow the trend - I want to create the trend." (Iman) 🎀 🎉🎊 I have chosen this item as a "Total Trendsetter Posh Party" Host Pick!! Congratulations and Happy Poshing!!! 🎊🎉
Mar 10Reply
akimalove
akimalove @dylansgal12 yay! thank u!!
Mar 10Reply
dylansgal12
dylansgal12 @akimalove You're very welcome 🙂🌹
Mar 10Reply
pepepizzazz
pepepizzazz @akimalove i understand.
Apr 17Reply
pepepizzazz
pepepizzazz @dana_g89 i have that too.
Apr 17Reply
sglick77
sglick77 @rethaalexander I don’t know exactly how long ago you posted this, but, did your Drs ever mention Endometriosis?? That would be where the extremely painful periods came from. And to top that off, Fibromyalgia is often seen in patients with Endo!
Apr 17Reply
sglick77
sglick77 Also, if you took Lupron, it’s been discovered that Lupron can CAUSE Fibro, as well as many other things. Lupron is the worst medication ever! There have been petitions trying to get it taken off the market! I was diagnosed with Endo at 19, by the time I was 23, I had been on Lupron 6 times! Yes, SIX times!! This was back in the late 90’s so it wasn’t like I could grab my phone and look it up! If I had known all the horrible things it would do to me, I would never have taken it.
Apr 17Reply
sglick77
sglick77 But I trusted my Drs, at the time I was going to McGee Womens hospital in Pittsburgh, PA, so I had experts! But Lupron destroyed my body. I’m 42 know, and between the Endo and ovarian cysts, 2 c-sections, hysterectomy, 2 knee replacements, and a couple misc things, I’ve had 19 surgeries!!
Apr 17Reply
sglick77
sglick77 I have Osteoporosis, Osteoarthritis, Degenerative Disc Disease, Ankylosing Spondylitis, several bulging and herniated discs. And to top it off I also have Chronic Fatigue Syndrome, and was just diagnosed with Raynauds Syndrome. I am in all sense of the word, A COMPLETE WRECK!! I feel like I’m in my 70’s not early 40’s!! Sorry this is so long! I hope you are staying healthy!
Apr 17Reply
rethaalexander
rethaalexander @sglick77 Hi, yes actually I did have endometriosis. I did have one round of Lupron back in ‘92 because the fibromyalgia symptoms were so bad during my periods and I wanted to see how shutting my ovaries off would change things. I felt so much better. Unfortunately, at least back then, they would only allow 8 months at a time on Lupron so after that they switched me to Depoprovera in hopes it would help. I bled for four months and it made the symptoms worse.
Apr 22Reply
rethaalexander
rethaalexander @sglick77 After that I told my doctor to take it all out. I was 28 with three kids and was not wanting more. Best decision I could have ever made. Still have bad days but not like it was back then. I’ve on estrogen since then so it’s helped with bone loss. I had the symptoms of fibromyalgia long before I took the Lupron so I know it wasn’t that. I’ve had Hashimotos since I was 15 so as an autoimmune disease it predisposes me to others, like the fibromyalgia and Ménière’s disease.
Apr 22Reply
sglick77
sglick77 @rethaalexander I was also on Depo... I think it’s the devil 👿 lol, but seriously I’ve never really met anyone that did better on that stuff!! I had been told for many years that I wouldn’t be able to have children, which I wanted so bad to be wrong. A dr almost talked me into a hysterectomy at 25, I’m so glad I said no because about a year and a half later I got married.
Apr 25Reply
sglick77
sglick77 And with the help of fertility drugs we were able to have 2 kids, a girl in ‘06 and a boy in ‘07. They are exactly to the day 15 months apart! We thought it would take awhile for the second like it did the first, so they are a lot closer in age then what we had planned. But I wouldn’t change anything!
Apr 25Reply
sglick77
sglick77 I had my hysterectomy in ‘08 and was really hoping and praying it would be the answer. I was expecting to be pain free! I put too much faith in it, and I wasn’t pain free. The Drs said between all the scar tissue from all my surgeries and the fact that my Endo was really bad, I now have Chronic Pelvic Pain. And once I was diagnosed with Fibro, things started to make more sense. But anymore I feel like it is literally one thing after another! It sounds like that for you too!
Apr 25Reply
sglick77
sglick77 One of the hardest things is having invisible diseases/illnesses. People look at you like you’re a fake and it’s harder when those people are your family and friends. I hope you’re staying healthy these days. Soft hugs 🤗 😊
Apr 25Reply
rethaalexander
rethaalexander @sglick77 They removed your ovaries too I hope? They furnish the hormones that can feed any microscopic endo implants. Congrats on the babies! Usually endo will cause infertility when it scars and blocks the tubes. That’s when people with endo become infertile.
Apr 30Reply
rethaalexander
rethaalexander @sglick77 my youngest was diagnosed with Endo at 16. The youngest I had ever seen diagnosed with it as it generally takes a few years for the implants to build up outside the uterus. But she was 11 when she started her period and 14 when the symptoms started. I new she had it but convincing her dad, and the docs I worked for to believe it was an issue.
Apr 30Reply
rethaalexander
rethaalexander @sglick77 I finally told her dad we were going to scope her. Thankfully her tubes at the time were clear and again two years later when she had to be scoped again. She got pregnant three years ago and unfortunately it was in one of her tubes. About destroyed her. She’s better now and in a much better place. Getting ready to graduate with her bachelors degree...,at 30. Lol. But she started college late.
Apr 30Reply
sglick77
sglick77 @rethaalexander Yes, they removed it all. Both my Dr & I were worried about not getting it all because of all the pain I still had. But doing more surgery just creates more scar tissue. Although before we started fertility meds they did a laparoscopy & cleaned out what they could. My Dr. at the time was really surprised at how fast it came back. I am very thankful that they were able to do it though. Otherwise I don’t think I would’ve gotten pregnant.
May 02Reply
sglick77
sglick77 I’m sorry to hear about your daughter. 😔 But glad to know she is doing better! Congrats on getting her degree! I wish her all the success in the world!My daughter is 13 & last night I stayed up w/ her trying to keep her mind off the pain. Got her the heating pad & some pain meds. I think she will prob end up w/ it because it does run in my family,4 generation But like I tell her, if she does, at least I know how I can help her & where to go for help.
May 02Reply
sglick77
sglick77 Something I never understood was why they would try and treat Endo with estrogen! It’s like trying to put out a 🔥 with 🔥!! That’s why I was worried if they missed some and then put me on estrogen! But thankfully it’s a low dose so I TRY my best not to worry 🤷🏼‍♀️ Try being the key word!!
May 02Reply
rethaalexander
rethaalexander @sglick77 Estrogen can sometimes aggravate it but progesterone would more. It is the hormone that builds up the uterine lining the second half of the cycle. I’ve been blessed. I do sometimes have pain but it’s nothing that lasts too long. After three c-sections, a laparoscopic hysterectomy and then another
May 03Reply
rethaalexander
rethaalexander @sglick77 diagnostic lap when an abdominal CT showed a septated cyst on my right ovary, that was no longer there, I’ve got a lot of scar tissue also. The “cyst” turned out to be a small piece of my right tube that my doctor had missed during the hyst. It filled up with fluid and then flipped over on itself making it look like a septation. That was a fun one.
May 03Reply
rethaalexander
rethaalexander @sglick77 When my gastroenterologist told me that I had a cyst on my ovary I looked at him stunned and said “I don’t have a right ovary. No left one either.” My OB put me on birth control for a month thinking it might be a small piece of ovary that was left behind but when it got larger he went in and took it out.
May 03Reply
sglick77
sglick77 @rethaalexander I can imagine you looking at the Dr like he was on something! Glad it was taken care of though. I think one of the scariest things for me was when I was pregnant with my daughter. A cyst started to grow and it was taking up all the room she needed to move around.
May 04Reply
sglick77
sglick77 So when I was in my second trimester I had surgery to take it out. I was so worried that something would happen to my daughter, but thankfully she was fine. I’ve had several ovarian cysts, the second one burst while I was at work one night. My manager took me to the hospital, I was in so much pain. Out of the 4-6 I had, only that one burst, which was fine for me!! Right now I’m just dealing with scar tissue causing problems.
May 04Reply
sglick77
sglick77 Everything is adhered to something else with scar tissue. I’m hoping I won’t have to have another surgery, it would be #21 But if have to, then I have to! I had a pain pump that was implanted in my lower right abdomen, then it had a tube that went around my side and to the the Intrathecal space of my spine. I had troubles with it from the start. After surgery to put it in I started having a csf leak and I tell you what, a spinal headache is the worst there is. 😭
May 04Reply
sglick77
sglick77 I wound up having it taken out about a year and a half later. When they went to take it out, the whole thing had fallen apart. So they had to go digging for everything. Once it was out I still had trouble with that area of my spine. The wrong movement or even a light touch in the wrong place caused everything to go numb. When I had my epidural with my son, I told the anesthesiologist to avoid that specific area but he thought he knew better. About 15 mins later I couldn’t breathe.
May 04Reply
sglick77
sglick77 They kicked my husband out and immediately put me under. I almost died, it was pretty traumatic, especially for my family cuz they had no idea what was going on. Because the Dr put the epidural in the wrong spot, my whole body was numb and I couldn’t breathe or talk, it was awful. Once I was in recovery, I developed a spinal headache and couldn’t sit up to feed my son or anything.
May 04Reply
sglick77
sglick77 was flat on my back with a morphine pump. It took over a week to get back in my feet. I’m just very thankful that through all this my son was ok! I’ve been thinking that if you’d like to keep the conversation going, maybe we could email each other. I’m sure the closet owner isn’t happy her comment section has been taken over lol! I’ll send you a private message with my info. I’ve really enjoyed talking with you. ☺️
May 04Reply
moonbazaar
moonbazaar Nice to met you I have fibromyalgia for many years , not fun to live in pain . Thank for sharing . Please follow my closet too , help me clear my closet . 🌸🥹
Jan 27Reply
moonbazaar
moonbazaar @hopesparkles Blessings me too 🦋
Feb 21Reply
blyn2129
blyn2129 Large please.
Dec 09Reply

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akimalove

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akimalove

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Victorville, CA
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