In Loving Memory Prader-Willi Syndrome Awareness Pin and Donation to FPWR Canada
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May is Prader-Willi Syndrome Awareness month!!!
I am selling 5 Prader-Willi Syndrome awareness pins. These pins feature a photo of my son Oliver. Oliver was born premature at just under 32 weeks. He was only 2lbs at birth and had a very long road ahead. Ollie was diagnosed with Prader-Willi Syndrome at 3 months old while in the NICU. He passed away due to complications before his 5 month birthday.
When PWS babies are born they are labeled "failure to thrive". This is due to low birth weight and even lower muscle tone. PWS involves the hypothalamus, the gland which regulates hormones in children and adults. Between the ages of 2 and 8 PWS children will develop an insatiable appetite and they will never feel satiated. They will struggle with their hunger for life, this on top of behavior problems, physical development delays and infertility just to name a few symptoms. PWS is a complex disease and no 2 cases are exactly alike. I encourage everyone to please learn about this disease, and if you can, make a donation to the Foundation for Prader-Willi Research or FPWR Canada.
All proceeds from the sale of these pins will be donated to FPWR Canada.
I will also donate the 20% deducted for posh fees (out of pocket)
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14 Comments

lvmycaddy
πππ
Feb 05Reply

yycposhmama
Fellow medical momma. All my love.
Feb 05Reply

prairiethrifts
@yycposhmama β€ Back at you Mamma!
Feb 05Reply

prairiethrifts
@lvmycaddy β€β€β€
Feb 05Reply

prairiethrifts
@mltomas09 π§‘
Feb 06Reply

vipsales2022
Hi Tara, I read your story and broke my heart. Sending lots of love. Iβm so sorry for your loss. π
Feb 08Reply

prairiethrifts
@vipsales2022 π§‘
Feb 08Reply

jillybcheerful
What a beautiful boy. I'm so very sorry for your loss Tara.
Feb 11Reply

dapper_and_posh
Our friendβs daughter has Prader-Willi syndrome. We sponsor their family on their fundraising walk each year. Sending hugs and condolences. π§‘
Feb 11Reply

prairiethrifts
@dapper_and_posh We have done a few of the Prader-Wili walks. It is such a great community of people. Thank you. π§‘
Feb 13Reply

ricagrey2
What a beautiful baby boy. So sorry for your loss. Wishing you all the best. Take care.
Feb 18Reply

isthatcashmere
πππππ
Feb 23Reply

yosoykari
β€οΈβ€οΈβ€οΈ
Mar 29Reply

grosvenorcloset
πΉ
May 29Reply
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